mom x4 grandma x4
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- Joined
- Feb 18, 2005
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Okay so we are back from the doctor...thank you everyone for your prayers![]()
We actually ended up seeing a different doctor then we were suspose too but Glen actually read about the doctor we did end up seeing online...he had done some pretty big cases and has a very good name for himself. The good news is the cyst is the most common kind they see on the brain and is located in the best place. It is however very rare for these type of cyst to rupture...he has only seen three other cases in his long career. He is actually writing a paper on those cases now. He figures it ruptured when I brought her to the ER in May. That makes me very upset since the doctor in the ER at the time basically asked her a whole bunch of questions about her home life and life at school...told me that it was nothing to worry about...kids get headaches all the time and sent us homeAnyway everything does happen for a reason and I truely believe that...if she would have had a CT scan that day she would have gotten emergancy surgery to remove the fluid from the brain...by some mircle her body over a 2 month period drained the extra fluid on it's own and repaired itself...this is a blessing and I got the impression that this is a really big deal. The cyst however is still there and we have have to have more testing done to see how we can prevent it from rupturing in the future...I have no idea why it ruptured in the first place...she never had any type of head injury which is what caused cyst to ruputure in the other cases. We have a MRI schedule for tomorrow and a EEG in two weeks...
Jaimie,
looks like it really was a good day for her. after you get the test results back you should have a plan of action

I am thankful her tests are the painless kind. I have had those before and there is NO pain involved.
Please keep us posted.
Kathy