Trip of Extremes and Dreams! Tons of Pics! 11/30 -12/10 Update Highlight to the End

[addictedtothemouse]

Hey Heidi, just wanted to say I hope your feeling better and sending to you.

 

[alan_renfroe]

Hey ladies! I'm a little late with this post, but CONGRATULATIONS on the STEELERS VICTORY!!! Since my beloved Falcons couldn't make it to the Superbowl, I was pulling for the AFC.

 

[SkyGirl]

Hi Everyone, thanks for the nice comments.

Unfortunately, I don't have good news for you. The doctor's suspect this might be COPD, which is very frightening. It is the fourth leading cause of death and there is no cure. They are treating me for it although the diagnosis isn't in yet. I have more testing to do.

I've popped on and off the DIS, wanting to connect with all of you, but never having the energy to stay more than a few minutes. This has taken all the energy that I have and I spend most of every day in bed. I hate that.

I'm trying to decide about continuing my TR. I don't have the energy and my mind is just too filled with meds and doctors and tests to know what to do. I hate not to finish it - we have such great pictures and communicating with you is one of the best parts of any day. And DD is taking care of me, working, and worrying. But right now, I'm just too sick.

I'll be back after I have a diagnosis and let you know. I'll know then about doing the TR or not.

Hugs, Heidi

 

[momoftriplets]

Oh, Sweetie!



Once again, I don't know what to say, so I will offer a bunch of hugs.

I am praying for your health.

Love ~ B

 

[disneydusted]

Oh my goodness Heidi! I'm sorry to hear all you are going thru! Know that all of your DIS friends are keeping you in their prayers.
Take your time about your TR, we will wait for you... just get better.

 

[addictedtothemouse]

You're in our prayers.

 

[DisneyJo]

Heidi I'm so sorry, get well soon You know we're all here for you and thinking of you and your health is so more important than a TR. Love you

 

[jaycns]

Heidi I'm so sorry, get well soon You know we're all here for you and thinking of you and your health is so more important than a TR. Love you

I am in 100% with what she said! HUGE HUGS! Get better Heidi.

 

[SkyGirl]

Hi Everyone! I've really missed you!

I have all my appointments set and next Monday, Tuesday, and Wednesday, I will be seeing everyone from my PCP to my Oncologist to having the tests for a diagnosis. I'll let you know what is happening when I do.

I do have some good news -- the meds that I'm on are helping a bit and a bit is a really good thing! I'm not having breathing "attacks" every day anymore and that is pure relief. They seem to come and go now. So we might be on the right track.

DD and I talked last night and we really want to finish this TR! After I have my diagnosis and am on the right meds, I will definitely be back. Our next day on the TR is EPCOT and it was an amazing day. We met TWO celebrities (one of them was Disney Jo!!! ) and we want to share the pictures.

Love and hugs to you all!!
Heidi

 

[sanapunk]

I'm glad to see you are doing better, we're all rootin' for ya!

 

[disneydusted]

Heidi, I was so happy to read your post! Looks like things are going the right way.... I am glad you are having an easier time with breathing... Looking forward to hearing what the doctors have to say and getting your celebrity update!

 

[momoftriplets]

Yay!!!! Heidi's Back!!!!

We've misssed you, Girlfriend!

 

[DisneyJo]

I'm so pleased you're getting better Heidi And awww me a celebrity It was a great morning wasn't it and I can't wait to hear your version but in your own time

 

[SkyGirl]

Hey Everyone

I wanted to let you know the progress so far. I went to the doctor today and after a meeting with other doctors, they decided I am "too sick" (their words) to be treated by a PCP and are sending me to a Pulmonary specialist. The doctor admitted she had no idea of what to do with me and felt terrible that I am no better. She did increase my medicine from 100 mg. to 250 mg. She told me that lung damage from radiation isn't curable and that it is hard to treat but that going to the specialist will put me in the right direction. They can't reverse what has been done but can try and control it with meds and other therapy. It's really scary and I don't understand why I had to get this after fighting cancer but of course, that's why I got it. Catch 22, I guess.

Tomorrow is the oncologist (and he better not find anything!) and the next day is my lung tests. On Friday I will hopefully have all the results.

I'm still spending 80% of the day in bed and I just hate that. (Especially without Diva to keep me company) I do hope to update over the weekend if I've come to terms with what is going on and am feeling better with the increase in meds.

Thanks so much for sticking by me and the good thoughts. DD and I are really scared and just trying to get by.

Love, Heidi

 

[jaycns]

Heidi-You know I am here. PM me, email me, write me, call me. Whatever you need. Let me know. Sending very gentle hugs your way.

 

[DisneyJo]

Heidi I hope the appointment goes well today As Jay said we're all here for you, if there's anything we can do just shout and we'll do it Send your DD a huge hug too, I'm sure she's looking after you superbly

 

[addictedtothemouse]

 

[disneydusted]

Oh Heidi, add my hug to the others! I know this is a fightening time, it's very hard when you health is not what it should be. We are all praying for you!

 

[momoftriplets]

Heidi-You know I am here. PM me, email me, write me, call me. Whatever you need. Let me know. Sending very gentle hugs your way.

Ditto what Jay said.

 

[momoftriplets]

What did the oncologist say?