kritter
<font color=deeppink>I need a Disney FIX!!<br><fon
- Joined
- Jul 12, 2005
- Messages
- 27,232
oh my gosh I am sooo sorry thought that I have told you guys about what is happening before...so sorry must be on my cruise thread...
In July of 2004 I had a spontanous pneumonthorax ie: collapased lung...it eneded up resolving and reinflating itself....Six months later had another one on the same side same part of the lung big one this time 80% of the lung...It was soooo damaged since I had pain in my back for a while and a cough but thought it was nothing they had to remove 20% of my lung.....Stayed in the hospt... for five days this time...came home with a chest tube and a nurse...dr. removed the chest tube after having it in me for more than a week....Had to miss the twins fourth b-day since I was home with a chest tube...was terrible...but anyway....after they took the tube out the lung collapased again...had an emergency chest tube inserted while I was awake this time....had this "baby" tube as teh dr. calls it inserted in the front of my chest int he hospt.... for another four days this time... this chest tube was in me for two weeks at hoem witha nurse again etc....the lung collapsed with it in me again the tube I mean....Went into surgery again third time is a charm correct???? Had a large tube inserted and a pluradisis spelled wrong I am sure of it..where they burn the inside of the lung with talcom to make it stick...then they did this procedure as they call it in my room again with me awake and it killed me...my blood pressure fell, etc.. I was a mess..but it worked and the lung was up and we thought all was fine...I have since then been always bothered iwth on and off pain and saw a pulomonoligst...and he said it would heal over time and unlikely it would fall again...well boy they were wrong now on may 12th the lung fell well actually two days before the bottom part collapased...the pulomongolist sent me home and said bed rest lets see if it will resolve itself well I got worse etc..so on the 12th I had surgery which I was awake for ugh!!!!! and they put another chest tube in me...stayed five days and on the fourth day had that plurodissis done again...UGH!!!!!! Well saw the dr. today and it is still up...so that is the short and long of it....
Thanks for listening well reading this saga.....you guys are great thanks soo much for all of your support and friendship!!!!!!!!
In July of 2004 I had a spontanous pneumonthorax ie: collapased lung...it eneded up resolving and reinflating itself....Six months later had another one on the same side same part of the lung big one this time 80% of the lung...It was soooo damaged since I had pain in my back for a while and a cough but thought it was nothing they had to remove 20% of my lung.....Stayed in the hospt... for five days this time...came home with a chest tube and a nurse...dr. removed the chest tube after having it in me for more than a week....Had to miss the twins fourth b-day since I was home with a chest tube...was terrible...but anyway....after they took the tube out the lung collapased again...had an emergency chest tube inserted while I was awake this time....had this "baby" tube as teh dr. calls it inserted in the front of my chest int he hospt.... for another four days this time... this chest tube was in me for two weeks at hoem witha nurse again etc....the lung collapsed with it in me again the tube I mean....Went into surgery again third time is a charm correct???? Had a large tube inserted and a pluradisis spelled wrong I am sure of it..where they burn the inside of the lung with talcom to make it stick...then they did this procedure as they call it in my room again with me awake and it killed me...my blood pressure fell, etc.. I was a mess..but it worked and the lung was up and we thought all was fine...I have since then been always bothered iwth on and off pain and saw a pulomonoligst...and he said it would heal over time and unlikely it would fall again...well boy they were wrong now on may 12th the lung fell well actually two days before the bottom part collapased...the pulomongolist sent me home and said bed rest lets see if it will resolve itself well I got worse etc..so on the 12th I had surgery which I was awake for ugh!!!!! and they put another chest tube in me...stayed five days and on the fourth day had that plurodissis done again...UGH!!!!!! Well saw the dr. today and it is still up...so that is the short and long of it....
Thanks for listening well reading this saga.....you guys are great thanks soo much for all of your support and friendship!!!!!!!!
It's wasn't an easy decision but we felt it was the best choice for us and our family seeing as we were faced with this situation, and now I see it as a win-win situation. The couple will send us letters and pictures once a year, and any more than that is up to us as families. We'll see what happens, right now we're letting the dust settle. I know it will be emotional to see a child which will presumably look like ours do, and to explain all this to our own kids someday (have already started a bit) but I think the better good will come of it, and we'll be able to share in this family's joy from a distance. 
We are preparing to send a little package to them as we speak. 
so I wasn't able (I am on an old computer now while we are having the laptop repaired). We do have pulmonary specialists in our hospital, though, and even though I work cardiac we sometimes work with them, so I plan to ask them about your situation when I see them. I don't know if it will be helpful (sounds like you had the gold standard of care already) but you never know. I'll keep you updated. 
I had one happen last week, in fact. Many years ago, for some unknown reason, I saw an ad in a dog magazine for a dog kennel in another state that breeds German Shepherd Dogs and I said to myself next time I get a GSD I want to get one there. I've never done that before. Fast forward about 8 years or so, and who comes into my hospital unit as a patient but the owner of this kennel. I found out when my coworkers told me there's someone who wants to meet you. 
Turns out, he had pictures of his dogs in his room and everyone at work knows I love GSDs so they kept asking if he'd met me yet. Anyway, kind of weird. I have since gotten another dog but she is not cut out for therapy work so I may in the future want to get a dog who is (my plan is to take the dog into pediatric oncology wards, a perfect thing for me as a nurse, cancer survivor and dog lover; I also worked at Children's early in my career so it makes it even more of a pull). We'll see what happens...
