This doesn't sound very "Charitable"

That article really pisses me off. Thank you for bringing it to my attention. As to this:

I am going to get flack for this, but I have problems with the Susan G. Koman Foundation. It gets an disproportionate amount of attention. And apparently it's run like a evil corporation.

"October is Breast Cancer Month!" It gets plastered everywhere. That's spiffy. I'm glad people are aware of breast cancer. Why isn't there a "Coronary Heart Disease Month" with a blue ribbon? Or stroke? Long cancer? Pulmonary disease? Why does the media and the NFL and everybody and there mom focus only on this one disease? I do understand that it's #9 on the list of top 10 killers in First World Countries. What about the 8 that kill more people?

I think this all comes down to how agrressively they've managed to put themselves out there. If a stroke charity or a lung cancer charity would put forth the immense effort, they could get well known, too. Of course, breast cancer has a good head start, so it would be an uphill battle.
 
If you look at this page http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=4509 you'll see 93% of the money donated goes to program expenses and admin.

It's all overhead. That's disgusting. So the money people give keeps them in business, and only a teeny percentage goes to research.

83% of the money goes to program expenses; 16% to fundraising and administrative.

Isn't program expenses what they spend on their various programs, research, etc? That's how I would read it and if you look at other organizations, it reads the same. Since there are no separate listings for research, outreach, etc, I would imagine that is what the program expenses are. (Program may not be the best for the website to use as many might think it means "running the program" rather than the services provided.)

And, it isn't the word "cure" but the "for the cure" that they want people to stop using. That has been trademarked by them and is heavily associated with their cause. They need to be careful that "fake" organizations don't pop up and solicit donations and thus take money away from breast cancer research and programs. Unfortunately there are some shady people out there that would do that.

They probably wouldn't really care about the local event for a specific disease or person, but if they let one person use it, then it becomes easier for others and where do you draw the line. Someone near us used "for the cure" in an event and I, as well as others, thought it was raising money for breast cancer until we read more about it. So, people can be easily misled.

The smaller fundraising groups will need to come up with other phrases or sayings to use that aren't so easily identifiable with Komen; many times it is easier to just use a phrase someone else has used and had success with, rather than taking the time to come up with something else or they are hoping it will get attention because of its similarity.
 
Thanks for posting this OP. I have not personally donated money to SGK but it still is ridiculous. I use websites (like the one listed above) before I contribute to any charity.

I clicked on the link and was shocked to see that the President/CEO makes $531,924 a year! :scared1: I mean, I'm not saying Presidents/CEO's should make peanuts but that's way beyond excessive for a "charity" organization, IMHO.
 

NBC news covered this a couple of weeks ago. If I was ever inclined to donate to them, the story changed my mind. There are many other deserving charities to donate too. Especially ones that are associated with Orphan Diseases, those are the ones that get the list amount of attention. For example my disease Neurofibromatosis research is slowly but surely making strides in finding the causes and how to stop it.

I was about to post that we should all be wary of the source. The HuffPo is not exactly known for getting the facts right, and when they do, they seldom give credit to the original news source! But if it was on NBC also, I think it is well worth looking into. And if it is true, I have to agree with pp's - I will not be supporting that cause anymore. There are plenty of other organizations who could use our support!

ETA This is up on the Wall Street Journal, too. I am on my phone, so I can't post the link. I'm sure google will take you there!
 
OP here.

I wanted to thank the people that have contacted me and offered to donated.

I do not want to break any rules here and my intent was not to solicit donations.

I wanted to bring this out into the open in hopes that if they get enough feedback, SGK may back off of the little guys that are looking for a cure for other diseases.

Cancer research is something that we are in favor of. My MIL battled breast cancer twice and won. Sadly, she lost a 5 year battle with lung cancer about 3 years ago. We would very much like to see a cure for it but we would also like to see a cure for Alpha Mannosidosis and ALL of the horrible diseases out there.

Thank you again to those that have contacted me. We really do appreciate the warm thoughts that you have sent.

:thanks:
 
If you look at this page http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=4509 you'll see 93% of the money donated goes to program expenses and admin.

It's all overhead. That's disgusting. So the money people give keeps them in business, and only a teeny percentage goes to research.

I'm confused.

Program Expenses 83.4%
Administrative Expenses 10.5%
Fundraising Expenses 6.0%
Fundraising Efficiency $0.07

"Programs" is 83.4%. That means what they are actually doing. That's pretty good, actually. Or am I missing something? Basically 17.1% goes either to Admin or back into Fundraising. Why are these numbers bad?

I mean, I don't know what "programs" are, but I assume research is part of that.
 
Here is the defense argument from SGK

PEORIA —
Stephen Colbert lampooned it. The Huffington Post highlighted some of its aggressive legal actions against small mom-and-pop charities. The Wall Street Journal headlined "Charity Brawl: Nonprofits Aren't So Generous When a Name's at Stake."


This unwanted recognition building over the past year is focused on Susan G. Komen for the Cure and the organization's sometimes aggressive and expensive legal battles to protect its trademark that covers not just its name but also the phrase "for the cure."


Komen's legal team has targeted charities such as "Mush for the Cure," a small dog sledding fundraiser in Minnesota and "Kites for a Cure," a family kite-flying event that raises money for lung cancer research.
Komen spokeswoman Andrea Rader, from the organization's Dallas headquarters, said misunderstanding surrounds this issue.



The organization has been evaluating its position and expects to have a revised strategy for dealing with trademark issues in 30 to 60 days.


Rader said Komen sends a "respectful letter" when learning of other charities using "for the cure." She said Komen has not seen a decline in charitable donations but is aware of the large volume of negative comments on social media.


"It is unfortunate this is such a distraction to the work we are doing," Rader said, noting that sisters Susan Komen and Nancy Brinker grew up in Peoria.


With more than 2 million charities in the country, there are just so many words and colors that can be used, and legal wrangling about pink and "for the cure" begins to "sound ridiculous," said Laurie Styron, an analyst with the American Institute of Philanthropy. "This could really backfire if Komen takes it too far."


The American Institute of Philanthropy gives Komen a ranking of "B+" based on its financials. In 2009, Komen directed 74 percent of its total expenses to programs. It spent $17 to raise each $100 in public support. The American Institute of Philanthropy's top-rated charities direct 75 percent or more of total expenses to programs.
Sandra Minuitti, spokeswoman for Charity Navigator, which evaluates the operations of not-for-profits, said she is unaware of other charities that have a trademark on just a portion of their name.


Susan G. Komen for the Cure is maintaining its top, 4-star rating by Charity Navigator, but Minuitti warns that Komen's numerous legal disputes with other charities could risk alienating donors.


"Charities and for-profits have to protect their brand. Nothing is wrong with that," she said. "The risk is going too far. That's the road Komen is going down. There are more friendly ways to protect their brand than legal actions against even little mom-and-pop charities."
When donors give money to a charity, they expect it goes to the cause, not to legal battles, Minuitti said.
Ed Bond an associate professor of marketing at Bradley University, disagrees with the notion of being too aggressive in brand protection.


"Organizations invest huge amounts of time and money into establishing their brand and must protect it. With global organizations like Komen, I can see the need to be very aggressive. There is a huge risk. Organizations owe it to their customers to protect their brand in order to avoid confusion with other organizations over which they have no control," he said.


A statement on the Komen website insists its legal bills are much less than the nearly $1 million cited in news reports. The statement said Komen considers its action to protect its trademarks responsible stewardship of donor funds and total legal expenses have been $515,405, only a portion of which is for trademark protection.


Styron said $515,405 is based on Komen's 2009 tax filing and does not include expenses for all of last year.

http://www.pjstar.com/news/x448583826/Komen-defends-its-for-the-cure-trademark-protection
 


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