disney_mommy
"Dear god, what am I doing? This is half a man."
- Joined
- Jul 21, 2005
- Messages
- 3,075
That article really pisses me off. Thank you for bringing it to my attention. As to this:
I think this all comes down to how agrressively they've managed to put themselves out there. If a stroke charity or a lung cancer charity would put forth the immense effort, they could get well known, too. Of course, breast cancer has a good head start, so it would be an uphill battle.
I am going to get flack for this, but I have problems with the Susan G. Koman Foundation. It gets an disproportionate amount of attention. And apparently it's run like a evil corporation.
"October is Breast Cancer Month!" It gets plastered everywhere. That's spiffy. I'm glad people are aware of breast cancer. Why isn't there a "Coronary Heart Disease Month" with a blue ribbon? Or stroke? Long cancer? Pulmonary disease? Why does the media and the NFL and everybody and there mom focus only on this one disease? I do understand that it's #9 on the list of top 10 killers in First World Countries. What about the 8 that kill more people?
I think this all comes down to how agrressively they've managed to put themselves out there. If a stroke charity or a lung cancer charity would put forth the immense effort, they could get well known, too. Of course, breast cancer has a good head start, so it would be an uphill battle.
Never again will they get a penny from us. OP if there is a way to donate for research on Alpha Mannosidosis please let us know.
I mean, I'm not saying Presidents/CEO's should make peanuts but that's way beyond excessive for a "charity" organization, IMHO.