The THYROID Thread

[angwill]

We decided no meds for now and test again in 3 months. Thanks for your help!

Good luck in 3 months. I hope your levels will be right on.

 

[luvmarypoppins]

We decided no meds for now and test again in 3 months. Thanks for your help!

Glad they are on top of everything and will be watching you closely.
Wishing you all the best.

 

[luvmarypoppins]

Micayla - wishing you all the best with the repro. endo on Monday.

I hope you like him/her and that you can both be on the same page.

I am having a thyroid holiday so to speak. After new years its the blood tests, sono and my lovely 6 month endo visit in Jan. Also have the cardiologist and the infusion on my back burners. Dh is traveling again so we will have to do things around his schedule etc.

 

[mrsklamc]

Thank you...It's excluded from coverage in our insurance, so i found out yesterday that this initial appointment is going to be $400. Of course, it wil be more than worth it if it works, and a kid is far more expensive. I am intentionally not keeping track of our total expenditures for this, I think it would make me ill.

Had a rough day emotionally yesterday... I think just because of the reality that we've gotten to this point...plus I think I'm hyperthyroid cause I've lost about ten pounds, but due to have that checked in a couple weeks again.

 

[ILoveMyDVC]

Thank you. My scan showed less than 1% thyroid tissue left and Tg went down from 4 right after the surgery to to 1.9 after the Thyrogen and before the scan. Will still be given RAI in January.
Had gallbladder out on Friday. It's been quite an ordeal. Teaching me a lot. Hope I retain the lessons.

 

[mrsklamc]

Well the appointment with the fertility specialist really threw me for a loop, I figured we had all kinds of injections and things to go through before invitro even came up, the first thing they asked was if we were willing to try it. He says the success rate is so much higher, they prefer to just start with it instead of go through the emotional exhaustion...but I'm not sure we want to do it. Total information overload.

 

[luvmarypoppins]

Well the appointment with the fertility specialist really threw me for a loop, I figured we had all kinds of injections and things to go through before invitro even came up, the first thing they asked was if we were willing to try it. He says the success rate is so much higher, they prefer to just start with it instead of go through the emotional exhaustion...but I'm not sure we want to do it. Total information overload.

Its a very private and personal matter that only you and your dh can decide together. My cousin and friend both went through it and it did not work for either of them. My friends got to adopt a baby from a friends friend they knew. My cousin ended up adopting a boy and girl from Korea.

I do know my cousin ended up donating all the drugs or whatever they had left back to the fertility clinic because they were asked if they wanted to do this because some of the other couples stuff was not being paid for by insurance either.

I think both of them tried it at least twice.

I would def. ask them their success rates because it varies among places etc.

That is why I said before, its such a personal journey. My prayers are with you. (and your dh too).

 

[WDWDancer]

Well the appointment with the fertility specialist really threw me for a loop, I figured we had all kinds of injections and things to go through before invitro even came up, the first thing they asked was if we were willing to try it. He says the success rate is so much higher, they prefer to just start with it instead of go through the emotional exhaustion...but I'm not sure we want to do it. Total information overload.

My husband and I have just started this journey also. We will do another round of fertility drugs next month, and then after we come back from vacation in Feb we will be meeting with them to discuss the next step (IUI or IVF).

Do they think the thyroid (or lack of) is playing into this for you? For me personally they say it is not "common" but the total thyroidectomy can cause the reproductive hormones to go a little crazy and this is what they think is happening.

My prayers are with you and your husband as you start this journey

 

[mrsklamc]

My husband and I have just started this journey also. We will do another round of fertility drugs next month, and then after we come back from vacation in Feb we will be meeting with them to discuss the next step (IUI or IVF).

Do they think the thyroid (or lack of) is playing into this for you? For me personally they say it is not "common" but the total thyroidectomy can cause the reproductive hormones to go a little crazy and this is what they think is happening.

My prayers are with you and your husband as you start this journey

I have no idea as unfortunately we didn't spend much time trying before they found my cancer. Today I am thinking that we might look into a second opinion.

 

[mrsklamc]

Its a very private and personal matter that only you and your dh can decide together. My cousin and friend both went through it and it did not work for either of them. My friends got to adopt a baby from a friends friend they knew. My cousin ended up adopting a boy and girl from Korea.

I do know my cousin ended up donating all the drugs or whatever they had left back to the fertility clinic because they were asked if they wanted to do this because some of the other couples stuff was not being paid for by insurance either.

I think both of them tried it at least twice.

I would def. ask them their success rates because it varies among places etc.

That is why I said before, its such a personal journey. My prayers are with you. (and your dh too).

They say 75% is their success rate. I understand the part about emotional exhaustion but it just seems like 4 months of clomid and straight to IVF is a huge step, and I feel that they really pressured us that even trying IUI was a waste of time and money. I just don't know.

 

[luvmarypoppins]

wdwdancer - prayers for you and your dh too as you begin the journey. Wishing you all the best

 

[luvmarypoppins]

hmm - should this bother me? It did really and I asked my ds about it.

We always send out an annual christmas picture. Had someone at church take it. I have on a v neck blouse.

Well in the "originall" picture, it shows a lot of veins by my neck and something sticking out from the collar bone area etc. Not bad, but noticeable as its my regular look etc.

Well when dh shows me the photo I ask him about it. I asked him if he
photoshopped my neck. He says, well there is a blemish thing etc.

I just felt kind of sad that he did that, he is going to be a nurse. I just felt like he couldnt leave well enough alone and didnt like what he saw etc.

Its far away so its not an up close picture, but just the thought that he did that made me sad.

Am I nuts for thinking this way?

 

[mrsklamc]

I don't think they probably meant anything hurtful by it; I know in my own pictures there are lots of things I would like photoshopped so they might have thought you would like it!

I do think it's a pretty standard thing for photographers to do.

But, it's a very personal thing; I know that Sofia Vergara prefers not to have her scar photoshopped (though I frequently see pics of her with it done) and recently read the same thing about an actress with a birthmark that makes part of her eye appear darker; she prefers not to have it photoshopped but it usually is.

 

[luvmarypoppins]

I didnt type it right I guess.

I was trying to say my own ds photoshopped me, that is why I was upset. Its like he doesnt like the way I am etc.

 

[mrsklamc]

I would guess that he probably thought you didn't like the way it looked and was trying to be kind.

 

[WDWDancer]

Quick question has anybody been diagnosed with Breast Cancer after Thyroid?

I am 27 and discovered a thick knotty area Wed called the doc she had me come in Thurs at 8 am did not like what she saw so she sent me for a diagnostic mamo, ultrasound, and biopsy. They have decided it is not a cyst but a solid mass my breast are very dense and the biopsy cells were undetermined/inconclusive. They have scheduled me for a "molecular breast imaging" test?

I know the odds are on my side but this just feels so much like déjà vu if last year with my thyroid.

 

[Christine]

Quick question has anybody been diagnosed with Breast Cancer after Thyroid?

I am 27 and discovered a thick knotty area Wed called the doc she had me come in Thurs at 8 am did not like what she saw so she sent me for a diagnostic mamo, ultrasound, and biopsy. They have decided it is not a cyst but a solid mass my breast are very dense and the biopsy cells were undetermined/inconclusive. They have scheduled me for a "molecular breast imaging" test?

I know the odds are on my side but this just feels so much like déjà vu if last year with my thyroid.

No breast cancer here but tons of breast issues. I've had four fibroadenomas removed. The first one when I was 14 and the last in my 40s. Not pleasant. Fortunately everything has been benign and I apparently have "busy" breasts.

 

[luvmarypoppins]

I also had a fibroadenoma removed when I was in my early 20's. It was as large as an egg.

Wishing you all the best. Hang in there!

 

[robynslp]

New to this board. I have family history of thyroid problems but unfortunately don't know the exacts other than grandma, great grandma, and great aunt all had thyroid problems. Two years ago my sister went for a routine physical and her doctor immediately asked what was being done for her thyroid (it was enlarged to the point he saw it when he walked in). After several tests and biopsies, they removed it. She urged me to find someone who would listen to our history. After several false starts, I found a nurse practitioner that read bloodwork based on the old levels and wanted a baseline ultrasound. I expected a clear ultrasound and was surprised with 8 nodules. We watched the nodules for the past 2 years and there was little change. For some reason, my NP really wanted to biopsy one nodule that was just barely big enough to worry about. Two days ago the dr called and said they read follicular neoplasms and I need to have a partial thyroidectomy. I have my first appointment to discuss all this on Wed. I'm apprehensive about surgery. So I am joining my sister in this journey. (As a footnote to my sister's journey, her thyroid regrew and had to be removed again!)

I look forward to gaining insight into this new medical journey.

 

[Christine]

Welcome!!

As you probably know now, nodules are very common in malfunctioning thyroids. The more nodules you have, the less likely any of them are to be thyroid cancer. Hopefully when you have your thyroidectomy, they will get a true reading on all of them. My understanding is that a follicular neoplasm is a gray area--meaning they don't know if they are benign or malignant. Mostly they will be benign.

What are your thyroid levels like? Have you been feeling poorly?