The THYROID Thread

[mrsklamc]

Eggs are ok? Or is it that egg whites are ok but not yolks? I don't remember now.

 

[luvmarypoppins]

Eggs are ok? Or is it that egg whites are ok but not yolks? I don't remember now.

Whites only. I am probably going to be making some no yolk noodles in a day or two. I have never had an egg white omelet. I think I will just stick to my usual banana breakfast as I suffered through oatmeal today. I actually used the oatmeal crock pot receipe from the budget board

 

[es45]

My LID is a combo of nih,thy ca and the rad. onc. own rules. Its stressing me out. I cant even have tap water as ours is from an aquifer. I like to mix it up. They thy ca. says 6 ounces of meat but I am only suppose to have 4 etc. I think I might go over. I really dont know as I dont have a scale. At least I use the steamfresh vegetables. I think its hard cooking meals for yourself and then a different one for the family etc. Next week my dh will be away so I am having the ds just get themselves stuff I think since I will be a mess from thyrogen tues. for sure. And since this is NY and chinese food is everywhere I do crazy stuff like basmati rice, grilled beef or chicken with orange marmalade and snap peas. Close as I can get. I had oatmeal today, Yuck!!

I think I might try your popcorn recipe. What would be the measurements? Thanks!

Here is the recipe that I use:
http://www.foodnetwork.com/recipes/alton-brown/plain-brown-popper-recipe/index.html

I just use 1 teaspoon of oil and don't bother with the seasoning mix. Of course for the next 1.5 weeks, I won't bother with the salt, either! If using a staple worries you then you could fold over the bag several times. I've done it that way when I couldn't find the stapler.

How do you prepare the chicken with marmalade? I might just stop for Chinese food on the 14th after my scan; sounds like you will too.

 

[luvmarypoppins]

Here is the recipe that I use:
http://www.foodnetwork.com/recipes/alton-brown/plain-brown-popper-recipe/index.html

I just use 1 teaspoon of oil and don't bother with the seasoning mix. Of course for the next 1.5 weeks, I won't bother with the salt, either! If using a staple worries you then you could fold over the bag several times. I've done it that way when I couldn't find the stapler.

How do you prepare the chicken with marmalade? I might just stop for Chinese food on the 14th after my scan; sounds like you will too.

I just do thin chicken cutlets, I figure they are about 4 ounces each. Just put them in a frying pan and after they are browned on both side I put the marmalade on top and just let it get warm and drippy. I have a big problem with dry food and swallowing due to all my surgery, neck dissection and then the doctor who saved my life the 3rd oporation just cut everything up so swallowing is an adventure sometimes. Tonight I did peach preserve and I did an additional chic ken breast with honey, that will be cold tomm with salad. I am going to use some of the noodles and vegetables and some stock I have from a chicken meal I made, make a little soup tomm. and freeze it for next week along with applesauce. Those were the only 2 things I wanted last time when I was feeling sick from the thyrogen. Now I can prepare ahead of time.

I am thinking of going to a greek diner around here and getting something good or our favorite italian place. Hmm, maybe I will take dh take me to both. I hope my scan is not too late in the day. Last time it was like 10:30 I think. They havent told me yet.

Also thanks about the popcorn. I am thinking of renting a movie after church sun to watch and wanted to have some with sprite. Also I am going to try and make a little salsa concotion with tomato, cilantro and onion on unsalted matzoh. Sounds fun, huh. The matzoh for NY and the salsa for when we used to live in Texas. I am sure my 3 ds will not partake.

 

[es45]

I've never used thyrogen before. Does everyone get nauseous from the shots? It sounds like it isn't mild either? I'm thinking I should do like luvmarypoppins and be prepared if the nausea is so common.

 

[es45]

I just do thin chicken cutlets, I figure they are about 4 ounces each. Just put them in a frying pan and after they are browned on both side I put the marmalade on top and just let it get warm and drippy.

This sounds like something my entire family would eat with me. Thanks.

 

[Christine]

I've never used thyrogen before. Does everyone get nauseous from the shots? It sounds like it isn't mild either? I'm thinking I should do like luvmarypoppins and be prepared if the nausea is so common.

No, not everyone one gets nausea. In fact, when I was participating in the thyroid cancer mailing list (thyca.org), most people didn't get nausea or any side effects.

I found the nausea to be mild, not debilitating, but it just made you not want to do anything. I never got close to having "dry heaves" or vomiting.

 

[luvmarypoppins]

This sounds like something my entire family would eat with me. Thanks.

Yes as Christine said, I didnt actually vomit or have the "dry heaves" just had an unbelievable feeling of nausea like you didnt want to eat anything too etc. Also I know the lst day I had a bad headache, constant tylenol was o.k. I cant remember if I had the headache on day 2, I was more concerned with the nausea feeling. I think thinking of eating a good meal 2 days later helped alot

 

[mrsklamc]

So you guys must feel like the thyrogen is worth it, since you do it?

 

[es45]

So you guys must feel like the thyrogen is worth it, since you do it?

I felt crazy without Synthroid for 8 weeks the first time that I had the scan. I couldn't concentrate or stay awake. I felt awful. Even with the LID and the potential for nausea, knowing that the process is only 2 weeks, makes it worth a try for me.

 

[luvmarypoppins]

So you guys must feel like the thyrogen is worth it, since you do it?

The first time I was not given any options since I had almost died, the coma, and bowel obstruction, 4 operations etc. They said my body couldnt take it. (Being off synthroid) Really only the onc. nurse talked to me, she said something weird, like Oh wow, I cant believe you are getting this. Its really expensive. (PTL we have good insurance, thank you dh!) We just usually use this for older people who cant take being off the med that long etc. I guess my body qualified as "old" then.

Now it just seems really like that is all the rad. onc. does anyway. I am assuming since the sheet is already preprinted and it seems to be the thyroid cancer "protocol" for this hospital as I saw somethig on the website. Stating using thyrogen allows our patients to have normal function/quality of life while undergoing testing, or something like that, blah, blah etc.

 

[mrsklamc]

The idea of it making me nauseous just makes me nervous I guess. If it were just a couple weeks, I can spend that holed up at home. ...I will just have to talk to my doctor as we get closer and see what she wants to do...

Had bloodwork today and passed out cold! Just checking my levels...don't go back til the first part of July so we'll see.

Thanks for the feedback so far on the thyrogen.

 

[WDWDancer]

So I found out that I am Hypothyroid...surprise surprsie they have started me on Synthyroid and I'll go back for my retest in 4-6 wks and the goiter's and cyst will be repeat FNA and ultrasound in 4-6 mts.

I've been seeing an oncologist for my lymph nodes througout my neck had a repeat CT Scan to see if they have gone down at all but they have not changed so go back to see him on the 19th for a consultation on what the next step is.

 

[es45]

So I found out that I am Hypothyroid...surprise surprsie they have started me on Synthyroid and I'll go back for my retest in 4-6 wks and the goiter's and cyst will be repeat FNA and ultrasound in 4-6 mts.

I've been seeing an oncologist for my lymph nodes througout my neck had a repeat CT Scan to see if they have gone down at all but they have not changed so go back to see him on the 19th for a consultation on what the next step is.

I hope the Synthroid relieves your symptoms.

 

[luvmarypoppins]

Just wanted to know if anyone on the LID ever had severe foot/leg cramps. I know this is from lack of potassium. Mine was so bad sat. night. I was screaming in pain. I had to eat 2 bananas and then when I went to bed Dh had to bring me a huge glass of OJ and 2 percocets leftover from my surgery last year. Usually I eat a banana every morning, but sat. morning I ate oatmeal only.

Oh and I didnt have the popcorn or salsa as I was feeling nauseous.

But I did have some Hagen Daz raspberry sorbet. Checked the ingredient list and it was acceptable. Yummy.

 

[es45]

I found the nausea to be mild, not debilitating, but it just made you not want to do anything. I never got close to having "dry heaves" or vomiting.

Christine, This is the perfect description of what my nausea feels like. I appreciate everyone's posts to this board because I was prepared when I started feeling the effects of the shot. It's not awful but if I hadn't read about the possible side effects here I would have been concerned when I started feeling queasy.

 

[es45]

Just wanted to know if anyone on the LID ever had severe foot/leg cramps. I know this is from lack of potassium. Mine was so bad sat. night. I was screaming in pain. I had to eat 2 bananas and then when I went to bed Dh had to bring me a huge glass of OJ and 2 percocets leftover from my surgery last year. Usually I eat a banana every morning, but sat. morning I ate oatmeal only.

Sorry you are having cramps. I haven't experienced any problems with the LID but I can imagine that a lack of potassium (or any nutrient) would be a common side effect.

 

[luvmarypoppins]

Well Thyrogen #1 shot and pregnancy test down. I was feeling a little "foggy" headed before. But I did cook dinner for myself.

Anyone hear of this either? I had to sign a paper stating that I "observed" the thyrogen injection and saw there were no particles in it. She said that must be done because of something that is out on the internet????

Also I forgot to ask them to weigh me, as I am wondering how much weight I lost. I will ask tomm. if my mind remembers

And remember I said I was asking for the zofran, just in case. Well I only saw the nurse and she got the script from the rad onc. - so generous of her, I got 4, yup TOTAL zofran pills. Thanks! I hope I dont have to use them etc.

 

[Christine]

About 6 months ago, I did read that there was some problems with Thyrogen. That there were particles in some of the batches and that is was something like pharmaceutical waste. I didn't get the impression that it was a hoax or anything like that. I just though to myself "Geez...what's up with everything these days."

I have been off my thyroid meds for 5 days now. I am preparing for a "stimulated Tg" test since I don't want to use Thyrogen. I'm going to try to make it for 3 weeks. I wonder if I can. I was in my early 30s the last time I did withdraw from meds. I'm a lot older and crankier these days. Uuuggggh..I just hate dealing with this FOREVER it seems.

 

[luvmarypoppins]

Christine how is it going?

Well I got thyrogen shot #2 today and havent felt nauseous at all PTL!! Just tired. Hmm, now its a semi foggy headache and ringing in my ear.

I had the nurse weigh me and I have lost 10 lbs. in 2 weeks. Last time I lost 20 lbs in the 2 weeks.

Tomm. they said they will go over the radiation precautions with me when I get the pill. The one nurse already said 3 feet away, double flush the toilet, glad my dh is at a conference. I will just have to stay away from the ds etc.

I am like Pavlovs dogs salivating over food commercials on tv. Worse I sat with my ds in the wendys drive in line. I told him he could get something for taking me etc.