The THYROID Thread

[Christine]

We got the news that my blood test was...NEGATIVE!!! Praise God!!! So my next regular blood test is in a couple of weeks. Oh and let me just say that dh and I pigged, yup, absolutely pigged out at disney world. Burned up our whole $750 gift card on food. Hmm, amazing what an LID can do to you I will be writing a little dining review on the boards soon.

Fantastic!!

Yes, I'm pretty much back to normal. It was a rough week though. It took days before the anxiety feelings went away.

WDWBarb--I'm glad your daughter has a diagnosis. I know a few people who have had Hashimoto's since they were young and it seems quite manageable. She will just need lifelong monitoring and her thyroid status can change with hormonal issues (birth control pills, pregnancy, menopause). It is an autoimmune disorder so you know now that she may have a tendancy for those types of things.

 

[jennz]

Well when we were in disney I called the rad. onc. nurse. The night before of course I was an emotional wreck, did alot of crying and praying for sure. Also the day I called was my b day and anniversary too. We got the news that my blood test was...NEGATIVE!!! Praise God!!! So my next regular blood test is in a couple of weeks. Oh and let me just say that dh and I pigged, yup, absolutely pigged out at disney world. Burned up our whole $750 gift card on food. Hmm, amazing what an LID can do to you I will be writing a little dining review on the boards soon.

That's great news!! I think the test is very stressful emotionally. I go to the endo tomorrow and am hoping she doesn't want me to have one!

Glad you had that gift card and looking forward to reading your dining reviews! You were in a great place to celebrate..."what are you celebrating today?" "cancer free!!!!"

 

[mrsklamc]

Christine- Sorry I didn't see your response about my tests before. I wanted to say thank you...We all appreciate your expertise so much.

WDW Barb- Welcome. I'm sorry you're going through this, but fortunately, of the medical conditions you can have, thyroid stuff is comparatively manageable.

luvmarypoppins, I am glad you had a wonderful trip!

Jennz- I go see her on the 9th. Hoping they will schedule my scan for August.

 

[es45]

Christine- Sorry I didn't see your response about my tests before. I wanted to say thank you...We all appreciate your expertise so much.

I agree; your knowledge is invaluable.

 

[es45]

es45 - did you get the final scan and blood test results?

Well when we were in disney I called the rad. onc. nurse. The night before of course I was an emotional wreck, did alot of crying and praying for sure. Also the day I called was my b day and anniversary too. We got the news that my blood test was...NEGATIVE!!! Praise God!!! So my next regular blood test is in a couple of weeks. Oh and let me just say that dh and I pigged, yup, absolutely pigged out at disney world. Burned up our whole $750 gift card on food. Hmm, amazing what an LID can do to you I will be writing a little dining review on the boards soon.

Congrats on the good news! Glad that you were in "the happiest place on Earth" for the happiest news on Earth! I too, received a clean report.

 

[casndan]

Hi! I was hoping to join in here so I thought I'd introduce myself quickly. My name is Cassie and I'm 28, my DH is in the Army currently serving in Iraq and we have a (almost) 10 month old son. I had a total thyroidectomy on Friday and I was diagnosed with papillary cancer on Tuesday, I'm currently on 200mcg of Synthroid and 1000mg of calcium per day, I follow up with the endo in 6 weeks to talk about RAI. I had been on synthroid for years due to being hypo and when they did the TT the path report showed that the tissue was very damaged due to hashimoto's so I suppose either way my thyroid needed to come out! I have tons of questions but I'll come back for those for now I just wanted to say hi! While I'm not really happy to be here I'm glad that this group exists!

 

[luvmarypoppins]

I agree; your knowledge is invaluable.

Yes thanks christine. You are a treasure!! I am sure I drive you crazy with all my questions!!

 

[luvmarypoppins]

Congrats on the good news! Glad that you were in "the happiest place on Earth" for the happiest news on Earth! I too, got a clean report.

I am so glad you got a good report too!!

 

[luvmarypoppins]

Hi! I was hoping to join in here so I thought I'd introduce myself quickly. My name is Cassie and I'm 28, my DH is in the Army currently serving in Iraq and we have a (almost) 10 month old son. I had a total thyroidectomy on Friday and I was diagnosed with papillary cancer on Tuesday, I'm currently on 200mcg of Synthroid and 1000mg of calcium per day, I follow up with the endo in 6 weeks to talk about RAI. I had been on synthroid for years due to being hypo and when they did the TT the path report showed that the tissue was very damaged due to hashimoto's so I suppose either way my thyroid needed to come out! I have tons of questions but I'll come back for those for now I just wanted to say hi! While I'm not really happy to be here I'm glad that this group exists!

Hi Cassie! Glad you made it over here. Your little guy is precious. My cancer is papilary too but with a rare variant. I take 200 mg of synthroid too. I do tend to be a little hyper and emotional but my dh and 3 ds have had to live with it for the last year so they know what to expect now. If you have any questions, ask away, Christine is the best and I guess we can all chime in too!! We have some old friends in Wilmington. I think they live on Shakespeare Drive or Nautilus? I cant remember. Wishing you all the best. Hang in there.

 

[es45]

Hi! I was hoping to join in here so I thought I'd introduce myself quickly. My name is Cassie and I'm 28, my DH is in the Army currently serving in Iraq and we have a (almost) 10 month old son. I had a total thyroidectomy on Friday and I was diagnosed with papillary cancer on Tuesday, I'm currently on 200mcg of Synthroid and 1000mg of calcium per day, I follow up with the endo in 6 weeks to talk about RAI. I had been on synthroid for years due to being hypo and when they did the TT the path report showed that the tissue was very damaged due to hashimoto's so I suppose either way my thyroid needed to come out! I have tons of questions but I'll come back for those for now I just wanted to say hi! While I'm not really happy to be here I'm glad that this group exists!

Hi, Cassie,

Welcome! I had a near-total thyroidectomy, due to Papillary cancer, about 20 years ago and RAI about 10 years ago. I'm sorry to read that you are going through this with DH in Iraq and such a young child at home. I hope that we can provide some support as you navigate through all of this.

BTW, I live just outside of Raleigh. We'll be driving through your area on the way to Holden Beach this weekend.

 

[mrsklamc]

Holy Cow! 5 months post RAI and my left cheek just swelled up like a chipmunk!

 

[es45]

Holy Cow! 5 months post RAI and my left cheek just swelled up like a chipmunk!

Oh my, have you called the doctor yet? I believe you have an infected salivary gland and you need a round of antibiotics for this. I'm sure someone else can chime in who has more knowledge about this RAI side effect.

 

[mrsklamc]

Oh my, have you called the doctor yet? I believe you have an infected salivary gland and you need a round of antibiotics for this. I'm sure someone else can chime in who has more knowledge about this RAI side effect.

Actually there just happened to be a dr. here when it happened! He didn't think it was an infection though, just a blockage, and said to suck on lemon drops. I thought I would be past any surprise radiation side effects by now!

 

[es45]

Actually there just happened to be a dr. here when it happened! He didn't think it was an infection though, just a blockage, and said to suck on lemon drops. I thought I would be past any surprise radiation side effects by now!

Yeah, it does seem rather late for side effects. Massaging the area and using hot or cold compresses should alleviate any discomfort as well as using the lemon drops. I hope it doesn't last long.

 

[luvmarypoppins]

Holy Cow! 5 months post RAI and my left cheek just swelled up like a chipmunk!

Ouch Micala, this has happened several times to me already. The np at the surgeon told me it means the salivary gland is not draining properly. It can happen at any time etc. I think she said to drink alot of water, take tylenol if you need it, apply compresses to it (I think warm?), mine told me if it doesnt go away in 3 days to call them and they will give me an antibiotic, of course if its really bad call your surgeon etc. Hope you feel better soon.

 

[donalduck]

Hi I didn't know where else to post this. If someone could please help me find out what this is and how I can treat it. Thank you

I have had hot ears my whole life I am 32 now. It has happened to me all of my life. It is getting very bad now. Every day it turns hot red like on fire. Sometimes it's just one ear sometimes both ears. The only thing that I have found that works is putting my whole head under the sink and soaking both of my ears and neck and head with cold water. Sometimes after I put the cold water all over my head I go sit outside with no coat on. It works pretty good in the winter time. This is the only solution I have found to cool them off fast. And sometimes even after I do all that they will start to turn hot red again. I have no idea what causes it. I don't have high blood pressure. Please let me know if there is any other way to stop it.

 

[kathleena]

Hi I didn't know where else to post this. If someone could please help me find out what this is and how I can treat it. Thank you

I have had hot ears my whole life I am 32 now. It has happened to me all of my life. It is getting very bad now. Every day it turns hot red like on fire. Sometimes it's just one ear sometimes both ears. The only thing that I have found that works is putting my whole head under the sink and soaking both of my ears and neck and head with cold water. Sometimes after I put the cold water all over my head I go sit outside with no coat on. It works pretty good in the winter time. This is the only solution I have found to cool them off fast. And sometimes even after I do all that they will start to turn hot red again. I have no idea what causes it. I don't have high blood pressure. Please let me know if there is any other way to stop it.

Doubtful this has anything to do with thyroid, which is the topic of this thread. You can try reading this page

http://www.peterbe.com/One-hot-ear

 

[donalduck]

Ya I read that page and I have posted on there. I have also posted on there.
Thanks anyway.

 

[casndan]

Does anyone remember how long it took the lump in the throat feeling to go away after surgery? I feel pretty good but it's driving me crazy!

 

[mrsklamc]

I'm sorry Cassie, I didn't have that feeling. I pray it goes away soon!
Is there someone who can help you when you go hypo?