The Mad Chatters thread Part 9

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I hate the night. I have to wait for morning to have people around me. Good thing the internet came up...........thought I was going to go zonkers...............
 
paigevz said:
He's on a drug to slow down the damage to his liver..........but it isn't slow enough. The symptoms increase as the damage does, but right now it's just muscle cramps and fatigue.

The new disease he has can be helped with strict diet and exercise........they think.

He is still to be checked to see if he needs treatment for diabetes and high cholesterol, since there's a big link between his NASH and those.

And then the big threat is liver cancer. Which I won't think about right now.


It sounds really scary, Paige.

I just looked it up on the internet...wow...I really hope this can be controlled with his diet. Do you think he'll stick to that kind of diet?
 
mom2taylorandemily said:
Honey this isn't about my feeling better, its about you!!!!! I want you to feel better, I'm not facing this trouble right now, you are and I want you to find some comfort.
Mary, I am not finding comfort in prayer................

However, having my friends around is very nice.
 
paigevz said:
Mary, you're sweet. You do what makes you feel better.
Mary, I already told her I am praying for her and dh and the rest of her family if they like it or not...I won't push anything on them or mention it...but they are getting the prayers so tough cookies!! I also told her that she can't stop me from :wizard: :wizard: ing her all over the place. :smooth:
 

paigevz said:
Mary, I am not finding comfort in prayer................

However, having my friends around is very nice.
Ok than I will go with that! :thumbsup2
 
Oh Paige....I'm sorry you are going through such a trying time.:guilty: I've only been able to read back a few posts but I think I've got the gist of what's going on with your DH. I'm so sorry. Someone mentioned earlier about how these internet friendships are very real and I agree with that 100%!!! You should never apologize for being honest with friends about how you are feeling!! I don't even know you and yet I care about this as well.:grouphug: :grouphug: :grouphug:
 
hiwaygal said:
It sounds really scary, Paige.

I just looked it up on the internet...wow...I really hope this can be controlled with his diet. Do you think he'll stick to that kind of diet?
Not sure, he talked like he would. Jay, we talked just a bit. He just says he's dying...................he needs something.

His first problem R2, is called autoimmune hepatitis............if you want to look that up, it's rather rare and hard to find stuff on.

He's also diagnosed with moderate cirrhosis.
 
Hi Lisa!!! (and Mary, and Jay, and Paige)

Sorry I didn't say Hi to everyone earlier...I just sorta jumped right in! :rotfl:
 
jaycns said:
Mary, I already told her I am praying for her and dh and the rest of her family if they like it or not...I won't push anything on them or mention it...but they are getting the prayers so tough cookies!! I also told her that she can't stop me from :wizard: :wizard: ing her all over the place. :smooth:
I never said you couldn't, ya nut.
 
jaycns said:
Mary, I already told her I am praying for her and dh and the rest of her family if they like it or not...I won't push anything on them or mention it...but they are getting the prayers so tough cookies!! I also told her that she can't stop me from :wizard: :wizard: ing her all over the place. :smooth:


That pretty much sums up what I said earlier today. I'm praying too, whether she likes it or not ;)

There are worse things Paige...if nothing else, the positive energy from your FRIENDS is a good thing!

I know you never said you didn't want us to pray, you just said it wasn't something you were into right now...
 
paigevz said:
Not sure, he talked like he would. Jay, we talked just a bit. He just says he's dying...................he needs something.

His first problem R2, is called autoimmune hepatitis............if you want to look that up, it's rather rare and hard to find stuff on.

He's also diagnosed with moderate cirrhosis.

Paige...what he needs (at least what he needs that you can provide) is plain and simply YOU! :hug:
 
hiwaygal said:
Hi Lisa!!! (and Mary, and Jay, and Paige)

Sorry I didn't say Hi to everyone earlier...I just sorta jumped right in! :rotfl:
Hi Denise! :wave:

I'd have said hi too, but I wanted Paige to know that I wasn't mad at her, that was first and foremost for me.
 
Tiffer said:
That pretty much sums up what I said earlier today. I'm praying too, whether she likes it or not ;)

There are worse things Paige...if nothing else, the positive energy from your FRIENDS is a good thing!
Hey Tiffer, I love you...................there are worse things. There are also better things............maybe even some normal things, that I am hardpressed to understand why we can't have. My dh is a hardworking, loving, kind, wonderful guy...............he's also been through a lot already...........why does he have to have this too? And why couldn't it just be ONE liver disease? Why TWO? And why now, when he's young and we have kids at home? Why not when he's older?
 
jaycns said:
Paige...what he needs (at least what he needs that you can provide) is plain and simply YOU! :hug:
He's had that. I will say this certainly cured our small issues...............
 
paigevz said:
Not sure, he talked like he would. Jay, we talked just a bit. He just says he's dying...................he needs something.

His first problem R2, is called autoimmune hepatitis............if you want to look that up, it's rather rare and hard to find stuff on.

He's also diagnosed with moderate cirrhosis.

It sounds like he's tired...and I don't blame him! Living with any kind of disease can get to you. I hope he finds a way to work through the bad feelings.
 
hiwaygal said:
Hi Lisa!!! (and Mary, and Jay, and Paige)

Sorry I didn't say Hi to everyone earlier...I just sorta jumped right in! :rotfl:

Hi Denise!!!
 
mom2taylorandemily said:
Hi Denise! :wave:

I'd have said hi too, but I wanted Paige to know that I wasn't mad at her, that was first and foremost for me.


I know...we all got caught up in the LOVE! ;)
 
paigevz said:
Hey Tiffer, I love you...................there are worse things. There are also better things............maybe even some normal things, that I am hardpressed to understand why we can't have. My dh is a hardworking, loving, kind, wonderful guy...............he's also been through a lot already...........why does he have to have this too? And why couldn't it just be ONE liver disease? Why TWO? And why now, when he's young and we have kids at home? Why not when he's older?


You know what Paige. I know how you feel. As I have posted before, my Brother was diagnosed with Neuroblastoma when he was 1 yr old. he was given a 20% chance to live about 6 mos. After max chemo, max radiation, a bone marrow transplant.......

He's getting ready to celebrate his 21st birthday. He has some residual effects..but is generally in great shape.

So there is always hope. We did alot of he why us..he's only a baby...I rebelled alot..my favorite uncle (who was my bro's god father) died in a car accient inthe midst of it all at age 22...

But it worked out. It can for you too.

I went throughit all again last sumer when my 22 yr old brother died in a car accident as well.......

It is totally natural to feel the way you are feeling...
 
Did I mention how glad I am that you guys are here????
 
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