The logistics of taking 4 special needs kids to WDW

rjthkids

Mouseketeer
Joined
Sep 22, 2005
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298
It's been several years now since we've been to Disney World and we've added to our brood. All four of our kids have special needs and by the time we go to WDW they will be:

7 y.o. DD--- blind (she does have some object perception in bright light), Low functioning autism, MR,

5 y.o. DS--- HGH deficiency (he's the size of an average 2.5 y.o in height), High functioning autism and a couple of alphabet soup labels that don't pertain to a WDW trip.

3 y.o. DD--- a whole host of heart issues, she'll be about three months removed from a heart surgery when we go; typically she doesn't have a lot of restrictions of activity.

3 y.o. DS---- moderate cerebral palsy; he has braces but in the past couple of weeks has become ambulatory. He does not use a wheelchair at all. He also has cognitive/developmental delays and he is entirely g-tube fed.


We are low-key people with low-key expectations. I don't have notions in my head of doing a million rides or schlepping to more than one park in a day. My biggest concerns at this point are trying to figure out the logistical stuff. In typical day-to-day life I usually carry my now 2 y.o ds on my back, have my 7 y.o. hold my hand wherever we are, and just keep an eye on the other two. For stuff with a ton of exertion and really long walks I'll throw my 2 y.o. with the heart conditions in a stroller.

But, WDW is *a lot* of walking. My 7 y.o. is slow as molasses.....if she is not holding directly onto me she's wandering who-knows-where or she gets turned around because her O&M skills are pretty limited and then she's latching onto whatever person happens to brush by her. When she's holding on me I'm usually providing all the muscle because she'd just rather let me pull her along than actually pay attention to where we're going, lol.

I don't think either my will-be 3 y.o.s can stand that kind of walking. My 2 y.o. with C.P. is just starting to be able to walk now at 2.5, with supports. A lot could change in 7 months but I'm not confident he'd have a ton of stamina, and my other one will be three months removed from heart surgery and really isn't supposed to walking marathons every day anyway.

My will-be 5 y.o. should be fine. I don't anticipate issues with him in terms of walking around.

So, would renting a double/triple stroller be practical for WDW? Are there even places that I could rent one around WDW? Or would one be too bulky and heavy to be worth the bother of lugging one in and out a WDW bus and finding places to park it near rides? Can any one else think of a creative solution to our moving-around-the-parks dilemma? I can always continue to put my three year old (one of them anyway) on my back, but I'm concerned he'll get really heavy after awhile.


My other two dilemmas revolve around rides for my 3 y.o. with heart issues and 5 y.o. with HGH deficiency. Is there are a list of rides that are contraindicated for people with heart conditions? I doubt there will be many in this category that are also suitable for a three year old anyway, but I'd like to double check to make sure we're not bringing her by something she'd be disappointed to find out that she couldn't do at the last minute.

And how firm is WDW about height restrictions on rides? I feel a little badly for my son. He has the maturity and enthusiasm for "bigger" kid rides but he just doesn't have the height. He is little, little, little. Just started wearing 2T clothes, and he's 34 inches tall and 24 pounds. If the policy is firm because the *height* itself is a safety issue, then we'll deal with the disappointment. I have discovered a lot of places have a height restriction when it's really not a height issue, but age restrictions are less reliable because people can always fib on age where they can't on height. I don't know if any one has any experience with this at WDW?

Lastly--- my daughter carries and uses a long white cane. Will she be able to take it on rides with her, or is there a place to safely stow it once she gets on a ride to be picked up once we get off?

I can't imagine we'd need any special accommodations for the actual rides. Both my kids with autism actually do pretty well in crowds, and we're hoping to go at a time of low-crowds any way (January). The only thing I can think of that might be a concern is if the getting on/getting off process is on a moveable walkway where we only have a couple of seconds to try and get everyone on and off. My oldest and my one with C.P. can't go quite that fast....we wouldn't need everything to STOP, but can they slow it down once we get to the front of the line?


TIA. I look forward to all the wonderful BTDT wisdom! We're incredibly excited to be taking the whole crew!

ETA: I forgot my g-tube question, so I posted it under response #5, in case any one has experience on how to get your cases of formula to travel efficiently!
 
Wow that is a lot.

Get two double strollers that way all the kids will be strapped in and comfty without slowing you down and they can save their energy for fun things like meet and greets and play areas. the FAQs for this board has links and Orlando Rentals is great. If you have strollers at home you can bring them for free on the airlines.

Get a GAC for a Stroller as a Wheelchair which will allow you to take the stroller into any place that a wheelchair is allowed even if the sign says "No strollers allowed". Also get a GAC for the blind daughter for her limitations.

The blind child can take her cane on any ride by storing it or holding except for wild rides like roller coasters and in that case they would store the cane for her. The kid with heart problems would be too young for most rides. There is a disabled guidebook that lists what rides are not for heart patients. Also you have to decide if a ride like the Safari ride is too much jostling as it can get bumpy. Even if heart patients are allowed you may want to consider the forces of the ride on the child.

Using the GAC would allow you to access the disabled boarding areas on some rides like Toy Story where the ride vehicle parks while the guests board. Only Peter Pan and Tomorrowland Transit aka People Mover have ramps that do not stop ever. As for height, yes, they are very strict and can be fired if they are caught letting people ride who are too short.

http://www.wdwinfo.com/wdwinfo/height.htm
That will tell you what your kids can ride.
 
I assume you will have at least one other adult with you. :confused3

Personally I think you should have 2 strollers. At least one double stroller, and the other one could be a double stroller or a sit and stand stroller. I recommend you look into the stroller options from Orlando Stroller Rentals: www.orlandostrollerrentals.com

I only have one child I am bringing this summer who is 7 (developmentally 3). I couldn't imagine trying to do disney without a stroller for her.

There is a LOT of walking at Disney parks. With the CP, Heart issues, Visual impairments, and size issues, you have significant mobility issues will all 4 kids. You add in the Autism characteristics, I would strongly suggest going the stroller route for all 4 kids.

With all 4 kids you are looking at rides that are designed for Preschoolers, either do to their age or their developmental level. Check out the DisneyWorld web site: Traveling with Little Ones at Walt Disney World Resort
http://disneyworld.disney.go.com/planning-guides/in-depth-advice/traveling-with-little-ones/

They have a set of maps there called: Magical Beginnings Park Maps (like on right side of page). These maps point out things in each park that would appeal to Preschool age kids. There are also many books and web sites out there that others can direct you to that point out rides that might not be good for a person with heart conditions, but I would also suggest you have an in-depth desicussion with your doctor about any restrictions.

Well I might say more later, but I was suppose to be in bed an hour ago. My classroom of Special Needs kids really need me somewhat awake for school tomorrow. :teacher:
 
My daughter who is now 11 doesnt use it anymore,
But when she was 7 she sure did!

Not only does it save time for parents, BUT
The truely wonderful things about the strollers.

1rst. You know where your kids are!
2nd. Keeps them happy, No Tired kids, tired feet, sometimes our kids dont tell us these things, and we wind up with meltdowns


If I could put my 11 year on in a stroller to shut her up sometimes, I would! My son got a stroller for the last time when he was 6,
The trip that we took when he was 7, all he did was cry, complain, whine. Now we have to deal with him at 8 with no stroller

Belive me, if they didnt raise the prices to 32 dollars a day, I would have gotten him a stroller but for 15 days, I just couldnt swing it..
 

I can't believe I didn't think of two strollers, what a great idea! And yes my husband will be with me but for some reason I wasn't envisioning him doing anything on this trip, lol. He travels a lot for work so I guess I'll blame my duh-brain on that.

Developmentally my 7 y.o. is around 2ish/early 3ish in age, so we have anticipated sticking to the preschool stuff and rides. Although I know that my 5 y.o. would have loved to have tried a roller coaster, I'm sure he will be plenty excited just to be there.

I have one other question I forgot to ask, relating to g-tube equipment. My will-be 3 y.o. DS is g-tube fed and gets between 4-5 cans of Nutren Jr. a day. For a 2 week stay in WDW that means bringing 70 cans of Nutren Jr. with us. It's *REALLY* heavy, so I am concerned about that throwing us over weight limits on an airplane, never mind actually lugging it through the airport and to the hotel.

What do other people do? Have you ever had success attempting to get it out of state in FL? This is the first time we've taken a long trip on an airplane with him, so the first time this issue has come up. I'd really like to avoid taking it with us, if I can.
 
There are two options for the canned nutrient.

1. Have a case or two sent to your hotel thus saving the wear and tear on you since you have so many things going on.

2. Take a couple cases on the plane with you. Anything that is medical such as canes, crutches, scooters, wheelchairs, rollators, allergen free bedding, braces, canned supplements for diets such as your son is on, etc are not counted toward the luggage weight. If you are bringing a special needs stroller then that would be luggage weight exempt.

Make sure you have extra supplement in your carry on luggage in case the plane ends up in Detroit, gets stuck on the tarmac, or whatever. I got stuck in an airport because the plane had come from a monsoon and was being dried out.

Two strollers from home or Orlando Scooters would mean you could store bags and canned supplements. The nurses station at each park in DLR and WDW will let you store medical needs stuff like formula and supplements, monitors, and refrigerated medicine. The baby centers at each park in DLR and WDW have some baby things for sale like diapers and have changing tables, rockers, and microwaves for heating formula and supplements.

http://www.disboards.com/showthread.php?t=1925663
That thread has pictures and discusses baby centers.

http://www.allearsnet.com/pl/restrooms.htm
A list of companion bathrooms. Legally a man can take a female disabled person to the bathroom in either gendered bathroom and a woman can take a male disabled person into either gender of bathroom. The companion bathrooms are large and have room to take a stroller into so you can change kids or potty break. Nurses Station and Baby Centers are more sanitary for medical needs.

http://www.cassworld.ca/photosbathrooms.htm
That shows the bathrooms of WDW in pictures.

Good luck on your trip and do read FAQs as it is very informative and I have just tossed out a few things to help.
 
I also think you should talk to orlandostrollerrentals. If you tell Shannon your situation, she may be able to give you a price for two strollers, and she is awesome to work with. BTW, the strollers are very lightweight and maneuverable. I really with I had one at home. I second what Laurie said, the cans for feeding can not be counted against your weight limit. I would encourage you to get at least a stroller as w/c tag for your strollers. Kids with ASD tend to do a lot better with a "nest" and your little guy w/ CP will probably not be able to walk the full length of a lot of lines (trust me, they're longer than they look.) As far as height restrictions go, your little guy can do goofy's barnstormer, and check BTMR, I think the height restriction is lower on that one. For your child with a visual impairment, there are accomodations for that, as well. Does she have any vision? She could get seating for those visually impaired that would put her as close as possible to the action for shows (it might help her feel a little more part of it.) Please keep asking questions if you have 'em- if we don't know the answer, we might at least know where to find it!
 
My son is tube fed also. I have contacted our airline and I am seperatley boxing up all his supplies, formula and bottled water. I also have to bring his IV pole down with us and we will not be charged anything for these items.
 
My son is tube fed also. I have contacted our airline and I am seperatley boxing up all his supplies, formula and bottled water. I also have to bring his IV pole down with us and we will not be charged anything for these items.
You might want to check with your supplier and see if they could send the necessary supplies down to you directly. Or they may have a comnpany down here they tie in with who could deliver the supplies directly to the resert.

It may be a lot easier to invest in a few phone calls that to have to pack and haul everything yourself, even if the airline does not charge.
 
You guys have been so helpful, I really appreciate it!

I just read the disability FAQ thread here, and I have a question about GACs--- if we are all in the same family, would we need a different GAC for each child?

The only thing I can think that we would need a GAC for would be the option of slowing down a ride for boarding--- (for both my oldest DD and my youngest with CP). Would they each need their own separate one, or would one GAC do?

My daughter does have some residual vision in her right eye, but the problem is that she has such a restricted field of vision and it is so dependent on the amount of light/light contrast/angle of seating etc. etc. that there really isn't a general "right" seating area for her. It really is so dependent--- sometimes the best seating area is actually up higher, because of her field of vision is so restricted then she can't see anything if she is seated to close to a raised stage. Her pupil is also fixed, so once everything gets dark she essentially loses what remains of her vision and she is totally blind. In that case, it renders the whole point of where she sits rather moot.

You are all a wealth of information. I really appreciate it. :-)

:-)
 
GAC - Guest Assistance Cards are given to a person, not a group. That is very critical. The child with the name on the card has to be with you to take advantage of the GAC. I recommend that you get a GAC for each of the 4 kids. There are issues with all 4 of them that would benefit from a GAC, but in different ways.

You will have 4 kid and two adults. If two are taking a nap and the others go to get on a ride, you need a GAC for one of the ones taking the ride. Maybe the 3 year olds will be warn out and one of the adults take them back to the resort, while the other adult stays in the park with the two older kids. Or you take two kids to the change diapers and maybe do a tube feeding, while the other adult takes the other two kids. Maybe two kids want Dumbo while the other two want Mr. Toads wild ride. Basically you never know what kid will be with you, so you need to have a card for each kid that needs one. Remember the name on the card must match the kid using the card.

Now with all that said, you only need to show one GAC to address the group when you go to a ride. Show the GAC with the issue you need for that ride.(Group - how many people can be attached to one card. With a group of 6 do they need two cards just to get everyone in?)
 
. . . yes my husband will be with me but for some reason I wasn't envisioning him doing anything on this trip, lol. He travels a lot for work so I guess I'll blame my duh-brain on that. . .

You know we forgot one solution to your struggles of balancing all those little kids while at Disney. Since Dad does not get the chance to spend time with the kids while he is traveling for work, this is his time to be Daddy. Hmmm Mommy needs a vacation and a visit to the Spa sounds nice. Envision Mommy not doing anything and him balancing the 4 angels and seeing what Mommy deals with every day. :scared1: Oh sorry, maybe we do not want to scare him that much. :rotfl2:
 
/what teachallday is correct. The GAC is for the disabled person and up to 5 guests. The person whose name is on the GAC must be present and must ride the ride, see the show, or view the parades and fireworks.

None of that bringing granny along to get a GAC then the kids ride with the GAC, lol. Granny would have to ride Space Mountain too.:lmao:
 
Perhaps you have already thought of or done this but would one of your children be considered for a special wish. All the kids are treated like gold and you could always add days on your own afterwards if you want to stay longer. Ask someone at your local childrens hosp for help.:love:
 
I have enough problems taking 2 kids with special needs to WDW ... I can't imagine how you would do it with 4! You are a better person than I am. ;) I suggest you get the 2 double strollers. It will make life a whole lot easier and everybody should enjoy themselves more. I think you also need to get at least 2 GAC cards. If you and your DH ever split up to take in different rides with different kids, then you could do that with different GAC's.

My kids are now in their teens and as they get bigger and older, we have had to switch from strollers, to the larger MaClaren stroller and now we are using adult sized travel chairs. I know your children are still small, but you need to do some practice runs pushing a double stroller around. It was much less exercise pushing around my kids when they were 6 & 8, but now that they are 17 & 19, we get a really good workout when we are at WDW. If we didn't get ourselves in shape before our trips, we would be exhausted.

I'm sure you have a routine all worked out when you are at home, but since WDW is a whole different ball game, perhaps a friend or family member could go with you to help out. I also like the suggesting of applying to Make-A-Wish for one of your kids. It is a wonderful experience and if you did want to take along another person to help, usually your local chapter would include them in the trip, especially since you have 4 children with special needs.

Good luck! :thumbsup2
 
Wow! You're a woman after my heart. I hope you conquer the world. All the rides with potential heart problems are marked on the website, map, and signs outside rides. Your five year old might be able to ride the kiddie coaster-Goofy's Barnstormer.

We had a trip with four disabled adults! My trip report link is below if you want to see how we adapted.

Good luck!
 
Perhaps you have already thought of or done this but would one of your children be considered for a special wish. All the kids are treated like gold and you could always add days on your own afterwards if you want to stay longer. Ask someone at your local childrens hosp for help.:love:

That is exactly what I was thinking. Don't know the full issue...but if any of your kids have a life threatening illness (does not have to be terminal anymore!) then they may qualify for Make a Wish...which is a WONDERFUL trip! And they can help you with a lot of these logistics, too.

And I would suggest bringing a 3rd adult...if you can. It would help your sanity.
 
Wow! You're a woman after my heart. I hope you conquer the world. All the rides with potential heart problems are marked on the website, map, and signs outside rides. Your five year old might be able to ride the kiddie coaster-Goofy's Barnstormer.

We had a trip with four disabled adults! My trip report link is below if you want to see how we adapted.

Good luck!


And this is STILL the best DISabilities TR I have ever read!!!!!! :)

You got me hooked on the DIS! Thank you sooooo much!!!!!!!! :)
 
I just wanted to post a very big "thank you" for all the wealth of information you guys have given me.

Eternal Disney Fan, it took me a while but I read through your whole trip report and you have definitely sparked a new enthusiasm for going and feeling like our trip will truly be fun, no matter how long it takes us to get ready and get moving any where! (And it does take us f-o-r-e-v-e-r). I'm so encouraged :-)

I also want to thank the few who mentioned Make-A-Wish. Honestly, it had never even occurred to me to think any of my children would qualify. I have seen other children who go to the same cardiology practice as my daughter go on Make-A-Wish trips (one teenage girl just went to the set of E.R., she was so proud of showing her pictures to everyone), but she had been doing relatively well so it just never came to mind. She doesn't have a specific, named syndrome, but she was born with multiple "complex" heart defects. Since January she's already 1 surgery and was supposed to have another in October. The last month she's kind of cascading to the poorer end of things so they want to add an additional surgery in April. We've been living down there lately and we had a discussion about Make-A-Wish this week and her cardiologist said he would definitely qualify her and she would qualify for MAW under complex heart conditions.

So, I don't know when/how we'll handle doing a wish for her or even how the whole process really works, but I'm excited she'll get that opportunity. We might wait until she is a little older (she just turned 2 1/2 this month) to so she can help plan it and remember it. We're still planning to to Disney in January with the whole family. I'm going to continue to plan with the optimism that her surgeries are going to be successful and she'll be well enough to go in January. Thankfully we already plan to take this VERY slowly and it's one of the lighter crowd periods of the year. We're still looking forward to having a lot of fun! We just found I'm pregnant so we'll be adding a newborn to the mix too!
 













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