Ok soooooo after our wonderful day of Big Gives the girls were on a high....

we didn't expect to get another 4 boxes on Saturday!! They were so shocked to see them.....
Their 3rd Big Give of the day was from Wishin on A star.... the cutest Mickey shirts, notebooks, pens, glow sticks, clips, pony tail holders, glitter.... Thank you sooooooo much for all of this stuff
Again thank you thank you thank you....... I get all emotional everytime a Big Give arrives. The girls just ignore me now & they say oh no there goes Mom again....

THANK YOU SOOOOOOOO MUCH FOR MAKING OUR GIRLS FEEL SO SPECIAL!!!!
I am done with the publicity now for rare disease day, which is today, I went to stand outside the Today show today & they showed the kids pics for a lil but & the founder of Liam's Lighthouse Foundation spoke. It was nice I just wish we could of had a lil more time..... Thank you to those that watched....
Now it is time to plan, make list, pack, make more list, pick up all medications, etc we are only 13 DAYS AWAY!!!!!!!!!!!!!!!!!!!!!!!!

We heard from MAW they are coming over on Saturday morning to bring everything over.....