Boy do i know what you mean! My daughter had a liver transplant when she was 10 months old. She is now 4, has a new liver disease, chronically damaged kidneys, epilepsy and much more. One main symptom of her new liver disease is malaise(crankiness, generally not feeling well) This does not mean she is tired and i should leave disney world and take her for a nap. It means she is a sick little girl and has every right to be there. T
Looking at her she looks perfect you wouldn't know how sick she is. Hidden disability. Every now and then when she becomes "malaised" she can be a real bear. It really brings me to the end of my patience just dealing with it. LOL, so people should watch out if they are going to comment becasue I would never take it out on my precious babe who fought so hard and fights so hard every day to live. But I will take it out on ignorant rude people who should just thank their lucky stars they have healthy children and don't have to worry about outliving them!
Did you ever see this:
SPECIAL MOMS
When a toddler gets into the plant pot dirt, a special mom
appreciates how well their fingers work.
When a child yells "NO!" A special mom enjoys the sound of their spoken word.
When a child must wear a helmet when riding a bike, a special mom is grateful that the helmet is not being worn to prevent injury from a seizure.
When a child plays the `chasing game' with mom in the grocery store, a special mom is thankful that her child can run at all.
When a child makes a mess while eating their lunch, a special mom is glad she does not have to put their lunch through a feeding tube.
When someone's child is having a `tantrum' in the shopping mall, a special mom never jumps to conclusions.
When a child gives themselves their first haircut, resulting in an embarrassing head shave, a special mom is blessed that they are not bald because they're going through chemotherapy.
When a child listens to annoying rap-music, a special mom enjoys that her child can hear any music.
When a child is at the hospital for an ear infection, a special mom feels blessed her child isn't in congestive heart failure...again.
When a child complains about taking an awful tasting cold medicine, a special mom is relieved that it is not heart medication, seizure medication, anti-rejection drugs or something worse.
When a child in a wheel chair is out for a stroll with mom, a special mom understands that it may not be a good day to ask questions.
When a child needs extra tutoring to get through math, a special mom is relieved that her child doesn't need a team of seven people and five pieces of specialized equipment, just to get him through the school day.
When a child needs the light on at bedtime, because they're scared of the dark, a special mom is thankful that her child does not live in constant darkness.
A special mom looks at her special child with pride, while strangers often look at the special mom with pity.
A special mom appreciates all the things typical children do, whether naughty or nice.
A special mom rarely complains about the 45-minute wait at the doctor's office for a check-up, when she's spent months at a children's hospital with her dying child.
A special mom would never feel disappointed that her healthy newborn was not the gender she had hoped for.
A special mom views the world through special eyes, ears and hands.
By Luanna Buburuz
Really, I just ignore them becasue what goes around comes around. Unless I need to vent.
Their are cranky poeple of all ages. You know just what I mean. Peopel would never comment like that to a cranky 30 or 40 yr old that should go home and take a nap. It is just more discrimination against kids. Some poepl just don't like them and that is fine.
www.caringbridge.org/nj/erin