PolynesianLily
Peace, Love, Disney World
- Joined
- Jul 10, 2009
- Messages
- 2,225
If a doctor diagnoses you with something, get a second opinion. In all seriousness, my dad was diagnosed with terminal brain cancer in 2005 and in 2009 he found out that it had begun to grow back. In 2009 he was given 3 options: radiation, clinical trial, or surgery. Well, my dad chose the clinical trial, because he didn't want radiation due to the damage that it would cause him. In order to participate in the clinical trial he had to not have a specific gene deletion. According to a doctor, he didn't have that gene deletion. For the clinical trial he had a 50% chance of getting chemo and a 50% chance of getting radiation.
Well, yesterday he went for his most recent MRI results, and found out that he couldn't participate in the clinical trial anymore because he had the gene deletion. They found this out after they tested his frozen tissue sample. WELL, a doctor made a mistake, we all do. But he asked the person, if he had said to go ahead with the radiation would they have done it without any testing first, and they said yes
. He went into the clinical trial thinking that he didn't have the gene deletion when he actually did. We were so SO happy when we got the news yesterday because this gene deletion means that he will have longer to live, since those who have it tend to live longer than those who do not.
Lesson #1: Don't be so quick to accept what a doctor tells you. They may be a doctor, but they might not always be correct - only the patient knows themselves. My dad had a feeling that doing the radiation was not the appropriate thing and he was right. Now he doesn't have to worry about treatment for a little while, and when he gets treatment he can get chemotherapy.
Lesson #2: Always have faith. Never give up. If I had given up on everything and thought that everything was going to be bad news, than it might have been. Stay positive, especially if something is happening to someone you love.
Of course he still has these issues, but it is more manageable now. To see him smile yesterday meant the world to me.
Well, yesterday he went for his most recent MRI results, and found out that he couldn't participate in the clinical trial anymore because he had the gene deletion. They found this out after they tested his frozen tissue sample. WELL, a doctor made a mistake, we all do. But he asked the person, if he had said to go ahead with the radiation would they have done it without any testing first, and they said yes
. He went into the clinical trial thinking that he didn't have the gene deletion when he actually did. We were so SO happy when we got the news yesterday because this gene deletion means that he will have longer to live, since those who have it tend to live longer than those who do not.Lesson #1: Don't be so quick to accept what a doctor tells you. They may be a doctor, but they might not always be correct - only the patient knows themselves. My dad had a feeling that doing the radiation was not the appropriate thing and he was right. Now he doesn't have to worry about treatment for a little while, and when he gets treatment he can get chemotherapy.
Lesson #2: Always have faith. Never give up. If I had given up on everything and thought that everything was going to be bad news, than it might have been. Stay positive, especially if something is happening to someone you love.
Of course he still has these issues, but it is more manageable now. To see him smile yesterday meant the world to me.
for you and your dad
