franandaj
I'm so happy, I could BOUNCE!
- Joined
- Nov 15, 2009
- Messages
- 37,740
So here we are back at life update time, much sooner than I thought we would be. As you know, Fran had a CAT scan Friday, they told us that it would be 3-5 days until it could be read so we figured that we wouldnt hear anything until after we got back from our Thanksgiving trip.
On our way to our 9AM Monday morning appointment, we got a call from the Rhuematologist office saying that the CAT scan was completely normal. Since they couldnt find anything irregular going on in her body, the elevated liver readings must be due to the arthritis drug. They would be stopping it could she come in Wednesday to discuss additional options.
Since we were leaving the next day at the crack of dawn obviously this wasnt an option. So they were able to squeeze her in that afternoon at 3PM. The problem for me was that I was planning to meet Corinna out at the park around noon and hang out with her until somewhat after dark. It was too important for me not to miss the Dr. appointment, and for those of you who were reading when PIO visited in 2012 you know its possible to go, turn around and get back in under two hours. The only wild card would be the Dr visit and wait time in the office.
I did meet Corinna and her crew at noon (or maybe a little bit late) and we had a great time from 12-2, they continued to have a great time while I drove back to Long Beach met Fran in the parking lot for the Doctors office and we both went to her appointment. We found out that there are two options for her and I wont bore you with all the details. Basically one is a pill the other is an infusion (like she has been having, but not as frequent). She needs to take time so her liver readings come back to normal. Once that happens, she can start a new drug, however, she needs to choose and also find out how much her insurance will cover of each one. Its confusing and now were at a contact insurance companies and wait and see kind of place. She has hope, she just doesnt know what form it will take.
This is yet another chapter in the arthritis saga. Its sad because the Actemra was doing so good for her, but as we have seen each drug eventually takes a toll on her liver and she needs to move on.
So heres a couple pictures from that day, and then back to the TR!



Grand Cayman: Yet another day that doesnt go as planned.
We woke on the second day of our cruise to find that the sun was not rising off the verandah. In fact the sun had already risen, we were up a little bit late. Today was the first port day, we arrive slightly late and its a Tender Port. Which means that we ride smaller ships into the harbor since the ship cannot dock in the shallow waters. Last year we stopped in Grand Cayman and we picked up some tasty Rum Cakes at a store right across from the port. That was definitely in our plans as well as an Island Tour that we had booked through the ship. But first, lets peruse the Navigator for the day.






Our Island Tour didnt begin until 12:15 and it was a two and a half hour tour. We wouldnt be back on the ship when the buffet was serving lunch, so I figured that we needed a hearty breakfast. We headed to Tritons to fill the bill.






I started off with a Cheese Pastry.

Fran had a Chocolate Croissant

We both got orange juice and V8.

I went with the Eggs Benedict, fully knowing that I was only going to eat half.

Fran got the Waffle Sandwich, two waffles filled with Dulce de Lece and rolled in sugar and cinnamon. I was supposed to eat half of this, but after one bite, I realized that it was just way way way too sweet for my taste.

We also got a side of bacon.

This plate was a sorry example of the pasty choices we had to choose from. Most trays had more options when they came out of the kitchen.
[Continued in Next Post]
On our way to our 9AM Monday morning appointment, we got a call from the Rhuematologist office saying that the CAT scan was completely normal. Since they couldnt find anything irregular going on in her body, the elevated liver readings must be due to the arthritis drug. They would be stopping it could she come in Wednesday to discuss additional options.
Since we were leaving the next day at the crack of dawn obviously this wasnt an option. So they were able to squeeze her in that afternoon at 3PM. The problem for me was that I was planning to meet Corinna out at the park around noon and hang out with her until somewhat after dark. It was too important for me not to miss the Dr. appointment, and for those of you who were reading when PIO visited in 2012 you know its possible to go, turn around and get back in under two hours. The only wild card would be the Dr visit and wait time in the office.
I did meet Corinna and her crew at noon (or maybe a little bit late) and we had a great time from 12-2, they continued to have a great time while I drove back to Long Beach met Fran in the parking lot for the Doctors office and we both went to her appointment. We found out that there are two options for her and I wont bore you with all the details. Basically one is a pill the other is an infusion (like she has been having, but not as frequent). She needs to take time so her liver readings come back to normal. Once that happens, she can start a new drug, however, she needs to choose and also find out how much her insurance will cover of each one. Its confusing and now were at a contact insurance companies and wait and see kind of place. She has hope, she just doesnt know what form it will take.
This is yet another chapter in the arthritis saga. Its sad because the Actemra was doing so good for her, but as we have seen each drug eventually takes a toll on her liver and she needs to move on.

So heres a couple pictures from that day, and then back to the TR!



Grand Cayman: Yet another day that doesnt go as planned.
We woke on the second day of our cruise to find that the sun was not rising off the verandah. In fact the sun had already risen, we were up a little bit late. Today was the first port day, we arrive slightly late and its a Tender Port. Which means that we ride smaller ships into the harbor since the ship cannot dock in the shallow waters. Last year we stopped in Grand Cayman and we picked up some tasty Rum Cakes at a store right across from the port. That was definitely in our plans as well as an Island Tour that we had booked through the ship. But first, lets peruse the Navigator for the day.






Our Island Tour didnt begin until 12:15 and it was a two and a half hour tour. We wouldnt be back on the ship when the buffet was serving lunch, so I figured that we needed a hearty breakfast. We headed to Tritons to fill the bill.






I started off with a Cheese Pastry.

Fran had a Chocolate Croissant

We both got orange juice and V8.

I went with the Eggs Benedict, fully knowing that I was only going to eat half.

Fran got the Waffle Sandwich, two waffles filled with Dulce de Lece and rolled in sugar and cinnamon. I was supposed to eat half of this, but after one bite, I realized that it was just way way way too sweet for my taste.

We also got a side of bacon.

This plate was a sorry example of the pasty choices we had to choose from. Most trays had more options when they came out of the kitchen.

[Continued in Next Post]