Seizures

[Razzy]

My son has seizures as of now they are under control with meds any safe rides he can go on of course I dont think anything that may scare him he will go

 

[Cheshire Figment]

Hi and to both DisBoards and disABILITIES!

A few questions first. How old is he and how tall (in inches) is he? This is necessary to know as some attractions have minimums. Also, do you know what his triggers are, and does he have problems other than seizures?

 

[DevilDuckie]

My son has seizures as of now they are under control with meds any safe rides he can go on of course I dont think anything that may scare him he will go

A lot of that depends on his triggers. HusbandMan is epileptic but not photosensitive, so strobes and flashes don't bother him, but will send other seizure patients into a grand mal. Have to pin pointed what sets him off yet?

 

[Razzy]

So far it seems like a high fever or a cold sets them off I know its not lights and strobe lights

he's about 4 ft

 

[SueM in MN]

So far it seems like a high fever or a cold sets them off I know its not lights and strobe lights

he's about 4 ft

Then you should not have any problems with the attractions.

If you look in the disABILITIES FAQs thread, there are some links in post 3 of that thread that should be helpful.

There are some things that lower the seizure threshold (how easy it is for a seizure to happen). Common things that lower the seizure threshold are overtiredness, changes in schedule, missing or late doses of medication and dehydration.
I'd suggest having some type of reminder (like a watch with an alarm). It's very easy to lose track of the time and all of a sudden find that you are late with medications.

 

[Razzy]

Thanks that seems when he usually has one when he is over tired misses a dosage ect thank god he hasnt had one in a yr thanks to the meds he is on, and he only gets his meds in the am and before bed
Thanks for all the info

 

[OneLittleSpark]

If you're worried about him tiring out at the parks, you could look into getting a Guest Assistance Card (GAC) to allow you to use a stroller in lines, attraction buildings and pavilions (this permission is termed as "stroller as wheelchair"). For more information on the GAC, see the FAQ thread, post 6.

GL and have a great trip!

 

[caralyn817]

I also have seizures, but mine are induced by certain chemical smells. I can't be around fresh paint and other smelly chemicals for a long period of time. My advice is to not rush around and stay hydrated. Take an afternoon break to go swimming, take a nap, or just relax at the resort. If your son starts to look tired then, just sit and have an ice cream bar or a cold drink while at the park before moving on. Since his seem to be fever related, then I don't think you have to much to worry about. I would still check with his doctor before you go for any recommendations.

 

[mickey&minniealways]

I also have siezures as do 2 of my three children. Fortunatly we are all well controled on meds. There are however things that can lower your threshold. Fever as you have already found can be one. Not everyone has triggers. Some people like myself have auras that tell them if one is about to come on. When this happen I either lie down somewhere, or if that is not possible I sit in cool shady place and shut my eyes. Stress can also lower your threshold as can fatigue and dehydration. So I would suggest you plan a few breaks into your day. This can be as simple as sitting inside with a cool drink. We like to plan pool breaks, thats why we like to go in warm weather(spring, not to hot). You should also keep a water bottle with you so he does not get dehydrated. Hope this all helps.