Sebastian's Make A Wish Trip to Disney

[AmberGreenawalt]

Oh....My...Stars!!!

More amazing Big Give stuff arrived yesterday. It was from PrincessLeighsDaddy...a.k.a. Tom.

I am blown away...I mean Wow!!

Sebastian and Siennah were SUPER excited to open the box!

Inside was the nicest letter from Tom and family, three of the most darling matching outfits, shirts for Brian and I and some pixie dust stickers. Everything was wrapped up so beautifully! It was like Christmas came early!!!

I wish I could give you a big hug Tom!

The clothes are off the charts on the cuteness scale. I can't get over how detailed they are!

Sebastian loved his new outfit!

Siennah looked darling in her's

Can you see that in the Santa fabric, Santa's hat has cheeta trim? I love it!

Even baby Savannah was delighted by her new digs

Isn't it adorable how they match? The undershort part of Siennah's outfit could be worn as another outfit! Sebastian was so excited he kept jumping up and down!

Tom even made shirts for me and Brian. I love the way mine fits! It's super soft and comfortable!

THANK YOU so much Tom and Family! You are AMAZING!!

 

[HeatherSue]

WOW!!! Tom REALLY outdid himself this time!!! Those are spectacular! I can't believe he made something for everyone in the family! I knew he was making AK outfits, but not that they would be this detailed! Great job, Tom!

The kids look SO cute in their outfits! So do you and your hubby!

 

[iu97alum]

HOLY SMOKES! How wonderful! Those look AWESOME! and The smiles on EVERYONE is fab!! Great job TOM!!!

 

[Adi12982]

WOW - I LOVE those outfits. Tom you are amazingly skilled and amazingly kind and generous.

 

[llurgy]

I love those outfits!!!! They are unbelievably awesome!!

 

[jham]

You all look so great in the outfits! Tom is VEERRYY talented! I love everything!

 

[hotmamac]

Those are amazing!!!
I wish I could learn to sew like that...or just be wealthy enough to have Tom on retainer!!
Seriously, those outfits are amazing!
Misty

 

[Khalana]

Those are really awesome!! Tom is really amazing!!! We were totally blown away by the outfit he made for Lydia too!!!!

 

[teresajoy]

Tom is pretty spectacular, isn't he!!! His work never ceases to amaze me!! I knew he was doing the AK outfits, but wowza! Great job Tom!!!

 

[PrincessLeighsDaddy]

I am so glad you liked them! I saw that you made animal print outfits the day that I mailed them out. It was too late for me to change my plans!
Have a great trip!

 

[tinytreasures]

wow those are stunning

 

[mom2lilnick]

Ohhhhh Those are AMAZING!!!!

 

[zeppy68]

HOw great they are. They look incredible

JOe

 

[Dreamer & Wisher]

subscribing

 

[AmberGreenawalt]

I am so glad you liked them! I saw that you made animal print outfits the day that I mailed them out. It was too late for me to change my plans!
Have a great trip!

Tom, we LOVED them! One can never have too much animal print! I think I'll use the set I made for the night we head to T-Rex and your's for animal kingdom

 

[twob4him]

Hi Amber!!!
I just love love love your new haircut!!! You are so pretty and I think it really looks great on you! I hope you are liking it!!! That was very thoughtful and generous of you to donate your hair

Wowza on the Animal Kingdom outfits from Tom! Amazing!!! Sebastian looks so cute with the cargo pants and all. And the dresses on the girls are just adorable!!! Great work!!!

Amber I love the tshirts you made...how cool that you found the Thing patches too! Awesome job!!!

 

[maroo]

oh my goodness!!!

The outfits are so darling...

but your kids...they are SOOOOO cute!!!!!

I just loved the pics of Sebastian jumping... Heck, they were ALL darling!!!!!!!

mary

 

[AmberGreenawalt]

I'm a big believer that prayers have helped us over the past year so here I am asking for them again...this time for Savannah.

I don't have the time to go into every detail but I'll do my best to give a general run-down.

You may have been following along with the various symptoms that baby Savannah has had going on since September including the fussiness, projectile vomiting, two ear infections, fevers, diaper rash, coughing fits and scariest to me the wheezing and rattling in her chest.

We started Savannah on Omnicef and Albuterol on Monday after taking her into the doctor because she was getting progressively worse. Today (Friday), I took her back in for another follow-up.

I brought my friend Ashley with me. She and her husband Rey and their three kids arrived Thursday to stay with us with us. Ashley brought her baby girl with and I also brought Sebastian so that our Pediatrician could take a look at his ears and save me another $25.00 co-pay.

Despite the Omnicef and Albuterol Savannah has really has still not improved much. Her chest continues to rattle and she is still coughing and spitting up like crazy.

Doctor checked Savannah's ear and said that it was not improving as much as she would like to see for five days of antibiotics. She also checked Sebastian's ear and it is not completely back to normal but is MUCH better!

Doctor also weighed Savannah again today. On Monday she was down to 10 lbs. 4 ounces and today she weighed in even less at 9 lbs. 11 ounces. Her weight today was back to what she weighed at her two month well visit nearly two months ago.

Normally really upbeat, I could tell that our Pediatrician was worried. After putting her on that scale all three of us women started to tear up.

Doctor asked me what my results were from Savannah's Cystic Fibrosis test from when I was pregnant. With everything that was going on at that time I honestly could not remember if I even had this test. So I got my cell phone out and dialed Rankin Women's Center and Doctor got on the phone and requested that my records be faxed over...specifically the CF test. She said she needed them today and that it could not wait until Monday.

Doctor let me know that depending on what she found out about my CF test we might have to take Savannah to Carolina's Medical Center to get a Cystic Fibrosis sweat test for her. She took down my cell phone number and said she would call when she got some information.

In the meantime she told me to continue the Omnicef and to give Savannah the Prevacid instead of the Axid for the reflux and to try and get her to gain some weight back.

She told me she wasn't going to tell me not to worry because that is what she told me with the lump on the back of Sebastian's head that it wasn't cancer and she felt really bad about how that turned out.

We met Brian and Rey and the rest of the kids at the Mall and had lunch. Then we took the Lightrail train Uptown and went to Imaginon. On the train trip back the doctor called.

She said that the good news was that I had indeed had the Cystic Fibrosis screening and that it showed a 97% probability that Savannah would not have Cystic Fibrosis.

But, Doctor said she was worried and very concerned about the continued weight loss combined with the other symptoms that just don't seem to be going away.

She said it's time to be aggressive. Doctor wants us to be prepared to hospitalize Savannah on Monday if she doesn't gain weight over the weekend.

Savannah's main Doctor doesn't work again until Wednesday but she gave Savannah's chart to another Doctor in the practice and is having me bring her in on Monday morning to get her weighed again.

This is a big stress right now as we have Sebastian's send-off party tomorrow morning and Savannah's Baptism on Sunday so please pray for our little peanut that she will gain some weight this weekend and we can figure out what is going on with her and get her healthy!

Much Love, Amber

 

[iu97alum]

Oh Amber. Certainly I will keep all of you in my prayers. You poor dear!! Sending hugs...

 

[Khalana]

Praying!!!!