macntosh
Wonders if the Tag Fairy is still around?
- Joined
- Sep 8, 2005
- Messages
- 1,376
Well I thought I would at least get a place holder and start this party.
Let's start with the cast:
I am the Disney addict that has pulled in the whole family, when my wife and I met 12 and 1/2 years ago I worked for Warner Bros, but had always enjoyed the Disney Gang. We were married only six months after meeting each other and I took her to Disney for our Honeymoon, which is a story in itself and I will share at a later date.
My wife is the girl next door and the strongest women I know for going through all of this with me. She herself is a type one diabetic since the age of six, so for over 25 years she has faced a life threatening disease with charm and elegance. She has provided me with love and friendship in good times and bad and most of the time when I don't deserve it.
Our first son Griffin was Born Still on June 6th, 2001, D-Day. With our dark sense of humor we now refer to that day as Delivery Day or worse dependent on our mood. That was a very trying time for us, but we let him go from our hands to His and work hard at never forgetting our first precious angel.
Mya our wish child was Born on November 13th Mya Quinn is a perfect princess with Hannah Montana Attitude. She was born 8 weeks early and lived in the NICU for 17 days before coming home. When she came home we thought she was just perfect, but a friend of ours who had a baby shortly after her thought our child was "stiff". At about four months of age we had her evaluated and no body wanted to diagnose it, but they would say under their breath Cerebral Palsy. It was at one year of age that she had her first Brain Scan, it revealed what we thought. Mya had two small clouds at the base of her skull that were causing messages to not make it all the way to her legs as planned. This resulted in increased muscle tone and tightness in her legs that standard stretching and such does not really fix.
Mya crawled on her belly until she was almost two, walked with a walker for 6 months and then used forearm crutches for almost a year and half. Oh was she cute on those bright purple things with stickers all over them. Finally she walked but had to hold a hand for quite some time and still likes to hold one when using steps, stairs or uneven ground.
Other then her legs though, our child is smart as a whip. She started kindergarten this fall, but already reads like a first grader and has started to learn sign in order to communicate with her little brother, who is deaf. She also assists with his care which includes being sure his trach does not become clogged or if he needs assistance with some medical issues, shes willing to yell out loud for us.
Our third child is Aidan and if I didn't know better this is the child I would have thought would be receiving the wish. Aidan was born March 9th of 2007 and at three days of age was transported to the same Hospital Mya had spent 17 days in, only this time he was going to stay much longer. Aidan was going to have an emergency surgery and we found out that he had a dieing small intestine, at the end of surgery he had lost 75% of his small intestine. Mya's stay in the NICU was going to be a cake walk as opposed to what we were about to experience. When it was all said and done, Aidan's stay lasted a little over 8 months, one code blue, multiple de-canulations, many ambu bag experiences, medically enduced paralysis, sleepless days and nights, multiple surgeries, many deaths around us, tracheostomy, feeding bags and deafness just to mention a few.
Well that was long and I'm sure a lost a few of you, but next I will write about how we got involved with Make A Wish.
This is our Journey and I hope you enjoy it.
Here is Our Story
Chapter 2?
New Camera and the Big Give has Begun
Gifts from Maroo
Arial Outfit from PeachyGreen
Crayon rolls and other things from gcast1
Autoraph books from Heather
Tonight's surprise gift 2/6/09
Hannah Montanah outfit from mommyof2princesses
Two cute outfits by Tinka_Bella
Cute outfit for Aidan given by revrob
Let's start with the cast:
I am the Disney addict that has pulled in the whole family, when my wife and I met 12 and 1/2 years ago I worked for Warner Bros, but had always enjoyed the Disney Gang. We were married only six months after meeting each other and I took her to Disney for our Honeymoon, which is a story in itself and I will share at a later date.
My wife is the girl next door and the strongest women I know for going through all of this with me. She herself is a type one diabetic since the age of six, so for over 25 years she has faced a life threatening disease with charm and elegance. She has provided me with love and friendship in good times and bad and most of the time when I don't deserve it.
Our first son Griffin was Born Still on June 6th, 2001, D-Day. With our dark sense of humor we now refer to that day as Delivery Day or worse dependent on our mood. That was a very trying time for us, but we let him go from our hands to His and work hard at never forgetting our first precious angel.
Mya our wish child was Born on November 13th Mya Quinn is a perfect princess with Hannah Montana Attitude. She was born 8 weeks early and lived in the NICU for 17 days before coming home. When she came home we thought she was just perfect, but a friend of ours who had a baby shortly after her thought our child was "stiff". At about four months of age we had her evaluated and no body wanted to diagnose it, but they would say under their breath Cerebral Palsy. It was at one year of age that she had her first Brain Scan, it revealed what we thought. Mya had two small clouds at the base of her skull that were causing messages to not make it all the way to her legs as planned. This resulted in increased muscle tone and tightness in her legs that standard stretching and such does not really fix.
Mya crawled on her belly until she was almost two, walked with a walker for 6 months and then used forearm crutches for almost a year and half. Oh was she cute on those bright purple things with stickers all over them. Finally she walked but had to hold a hand for quite some time and still likes to hold one when using steps, stairs or uneven ground.
Other then her legs though, our child is smart as a whip. She started kindergarten this fall, but already reads like a first grader and has started to learn sign in order to communicate with her little brother, who is deaf. She also assists with his care which includes being sure his trach does not become clogged or if he needs assistance with some medical issues, shes willing to yell out loud for us.
Our third child is Aidan and if I didn't know better this is the child I would have thought would be receiving the wish. Aidan was born March 9th of 2007 and at three days of age was transported to the same Hospital Mya had spent 17 days in, only this time he was going to stay much longer. Aidan was going to have an emergency surgery and we found out that he had a dieing small intestine, at the end of surgery he had lost 75% of his small intestine. Mya's stay in the NICU was going to be a cake walk as opposed to what we were about to experience. When it was all said and done, Aidan's stay lasted a little over 8 months, one code blue, multiple de-canulations, many ambu bag experiences, medically enduced paralysis, sleepless days and nights, multiple surgeries, many deaths around us, tracheostomy, feeding bags and deafness just to mention a few.
Well that was long and I'm sure a lost a few of you, but next I will write about how we got involved with Make A Wish.
This is our Journey and I hope you enjoy it.
Here is Our Story
Chapter 2?
New Camera and the Big Give has Begun
Gifts from Maroo
Arial Outfit from PeachyGreen
Crayon rolls and other things from gcast1
Autoraph books from Heather
Tonight's surprise gift 2/6/09
Hannah Montanah outfit from mommyof2princesses
Two cute outfits by Tinka_Bella
Cute outfit for Aidan given by revrob
Great start! Can't wait to hear more!! 
