I asked b/c DD was having issues this past summer. I told the story many times here on the DIS so if you heard it I'm sorry lol.
DD has always had issues with constipation our ped recommended seeing a GI so we did. In those 2 months she was on miralax and changed her diet and everything seemed fine so he weened her off of it (as per his instructions).
The next 6 months maybe it started again so back on miralax we went. When things seemed normal we weened her off again. In May (right before memorial day) DD went to school for her screening, it was her first time in a school setting. She seemed to enjoy it. We made a big deal about it, took her out to lunch after, praised her etc. About 2 weeks later she stopped eating, drinking and then (b/c shes not eating or drinking) no poop. But she DID poop prior to not eating or drinking. For whatever reason she stopped. I called peds office and got (from nurse or receptionist) "its probably viral and there's nothing we could do for that, just make sure she drinks". I knew it wasn't viral, Next day, no progress. I call again with concern, got the same thing with "if your that concerned you could take her to the hospital" so we did since they really didn't care to see us. She was moderately dehydrated and had to be put on IV fluids for 24 hours. They gave her enema and she went to the bathroom but not all that much. I had a team of doctors asking me a million questions about our home life as they were all baffled b/c her urine came back OK and her blood test came back OK too. Also had x-ray of her brain and stomach. Her brain, all was ok (thank God) and her stomach showed gas. She lost some weight b/c of not eating and drinking. Left the hospital and made an appointment with another GI. Also had tests done for celiac's disease and cystic fibrosis in the following weeks, all neg.
She was doing ok with the new GI doc (met with him many times over the summer to see her progress) until the end of Aug, right before our Disney trip she was burping uncontrollably! Took her to GI and he gave her prevacid and said she was good to go to Disney. While at Disney things got worse, took her an hour to eat nuggets, wasn't eating much of anything but mickey bars and then she started doing a twitching thing as she ate but ONLY as she ate. When we got back from Disney she got sick so that Mon. we were @ ped office and she was put on antibiotics for bronchitis and we were told to see GI about her burping and twitching. Our ped wasn't concerned about the twitching b/c he said kids sometimes develop little nervous tic (eye blinking etc) but if it continued in a month he'd bring her back in. So on Wed we were @ GI he said she needed to see a neurologist over he tics. Friday we were @ a neurologist. She did initial testing and she said everything looked ok but wanted to do an MRI of the brain anyway and set it up for 3 weeks later.
That Tuesday (after all these doctor visits) DD started school for the 1st time. First 2 days were awful! She cried and kicked and screamed and I told the school what was going on with her, gave them the heads up with all the medical stuff, etc. By the end of the week she was off to school with no problems, eating well again and by the end of the next week the tics were completely gone. It was like I had my daughter back! Watched her closely and decided I didn't want the MRI done. I called and canceled the MRI, We were supposed to go for MRI on a Friday, the very next day(Sat) I got a letter in the mail from insurance company saying the MRI would not be done at X hospital but @ Y hospital. Well....great, when would I have known this if we followed through with the MRI, when we checked in? THEN later on the week the insurance co. totally denied coverage for the MRI stating "tics and not a sufficient reason to schedule an MRI". Just seemed like a lot going on.
So here we are in March. DD has seen Ped in mid Sept for a scheduled vaccination (not true well visit as we spread out the vaccines) that we decided to get a Titers for instead as she had a bad reaction to the 1st vaccine. She is eating well, pooping well, and we just saw GI doc in Feb who was happy with her progress. No facial tics, just back to normal. I called our ped. office about 2 weeks ago b/c DD needed an epipen refill as hers was about to expire, they refilled it and the office said she needed a well visit and I said I'd schedule it next month before I could even finish my sentence the lady hung up on me
I came home last night and there was a message on my machine to call the office back I assume its about the well visit. I am just so tired of seeing DRs and it bothers me that they didn't care to see her when they thought it was "viral" in the summer but now they are looking for us.