Packed & Moved..Disboutiquers Part 6 Kids Disney Boutique / Customs Clothes we sew

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Karebaear ~

I wanted to show you these for 2 reasons......

1) I know how scary it is to have someone you love go through something so traumatic. I wanted you to see how sick Riley was at the time and show you how quickly a body can heal itself. I know every situation it different, but Riley's prognosis was pretty bleak. I didn't listen to it though. I just knew she had to get better!

2) The incision for Riley's surgery is most likely what a liver transplant patient would have. She has a huge honkin scar, but that is a small price to pay obviously.

This is Riley at about 2 1/2 weeks old. We had just brought her home and at the time there wasn't much hope. We just wanted to have her home some before she got too sick. At the time of this pic. her tumor was about the size of a softball.
babyriley004.jpg

This is Riley right before they took her for her surgery. She had already had a biopsy and even then they really didn't know if it was something that could be removed. We were just running out of time because it was getting so big. Her tumor was about the size of a football when they removed it. Chris actually went with her oncologist and held it. I didn't!
babyriley001.jpg

This is the first time we saw her after 10 hours of surgery. To us she looked beautifu!
babyriley002.jpg

This is the day we went home. I took her clothes all off and just stared at her. Chris wasn't even at the hospital when they discharged us, but I wanted out so bad I carried her and all of the stuff we had accumulated in the 7 week stay out in 1 trip!
babyriley003.jpg

Finally! Just a normal baby, looking at her fist and going cross-eyed!

I just wanted to show you what amazing things can be done. Riley has taught me to never ever give up hope! God can see us through anything. I honestly believe that too. I felt his pressence the whole time Riley was sick. I think he kept me from really absorbing the seriousness of it all, because if I had, I think I would have crumbled into a heap on the floor.

My prayers are with you, whatever is going on in your life.
 
I started work on my cindy applique and I need HELP!!!!!!

I pretty much have it sorted out except for the eyes. Here is what I have so far:
DSCF0036.jpg


and here is what I am working from:
bigcindyface.gif



I tried a pice of white material for the eyes appliqued with black thread, but i think it was just too small I couldn't bget the outline to look right. Should I just hand embroider them or is there a better way I don't know about?

I'm not an applique' er, but maybe if you outlined the eyes in white and then went back with the black by hand. Honestly it looks awesome though!!!! Have you gone to the photobucket and looked at Lisa's princess faces. I noticed she had posted several of her faces there.
 
Hi Disboutiquers,

You are all so talented.:worship: Maybe you can help me. I am looking for the Pink Cinderella dress (the one that the mice made) for my DD(3) for our next trip. Could you let me know where I can buy one or maybe where I can get a pattern? (I am a true beginner when it comes to sewing!)

TIA!
Jeanna
 
iluvwdw4ever - those outfits are gorgeous. LisaZoe does such amazing work.

I was thinking earlier today that I don't have enough stress in my life so I decided to bite off more than I can easily chew. I have had an idea floating around in my head for a while and today I threw caution to the wind and prayed that some pixie dust would come flying back at me.

stitchapplique003.jpg


I love Stitch. I think he is just so cute and lovable despite his tendency to get into trouble. :stitch2: :stitch2: :stitch2: :stitch2: :stitch2: :stitch2:
This is my first pieced applique. I have no immediate plans for this piece so I put it on plain white fabric for now. I still have to give him some teeth and claws and outline his arms/hands/feet better.

Sorry, he seems to be sideways. He is straight in photobucket.:confused3 :confused3 :confused3
GREAT JOB!!! That is really fantastic!!!!!!
Karebaear ~

I wanted to show you these for 2 reasons......

1) I know how scary it is to have someone you love go through something so traumatic. I wanted you to see how sick Riley was at the time and show you how quickly a body can heal itself. I know every situation it different, but Riley's prognosis was pretty bleak. I didn't listen to it though. I just knew she had to get better!

2) The incision for Riley's surgery is most likely what a liver transplant patient would have. She has a huge honkin scar, but that is a small price to pay obviously.

This is Riley at about 2 1/2 weeks old. We had just brought her home and at the time there wasn't much hope. We just wanted to have her home some before she got too sick. At the time of this pic. her tumor was about the size of a softball.
babyriley004.jpg

This is Riley right before they took her for her surgery. She had already had a biopsy and even then they really didn't know if it was something that could be removed. We were just running out of time because it was getting so big. Her tumor was about the size of a football when they removed it. Chris actually went with her oncologist and held it. I didn't!
babyriley001.jpg

This is the first time we saw her after 10 hours of surgery. To us she looked beautifu!
babyriley002.jpg

This is the day we went home. I took her clothes all off and just stared at her. Chris wasn't even at the hospital when they discharged us, but I wanted out so bad I carried her and all of the stuff we had accumulated in the 7 week stay out in 1 trip!
babyriley003.jpg

Finally! Just a normal baby, looking at her fist and going cross-eyed!

I just wanted to show you what amazing things can be done. Riley has taught me to never ever give up hope! God can see us through anything. I honestly believe that too. I felt his pressence the whole time Riley was sick. I think he kept me from really absorbing the seriousness of it all, because if I had, I think I would have crumbled into a heap on the floor.

My prayers are with you, whatever is going on in your life.

Denise, :hug: that had to be such a hard time for you and your family. I had no idea you went through all that. :hug: Riley is one amazing little girl. :hug:
 

I wanted to thank you all for your prayers for our Grandma this past week. It was a pretty stressful week for us all! Our family, except Heather had planned to go to Toledo for a convention this weekend, but when Grandma went into the hospital, we thought we'd cancel. But, on Friday, Granma insisted that Mom go. We worried about her so much! On Saturday, when we called to see how she was doing, we were told her bloodpressure was way out of wack after they took her off some of her medications. They told us not to come home, but Mom and I were just worried sick. Then, right after our session was over, my Dad's cell phone rang (my Dad's cell is only for emergencies) and Mom and I were petrified, and sure that someone was calling to tell us that Grandma had died. Thankfully, as you all know, they were calling to tellus that she was doing better! I thank you all for taking the time to care about us. :hug:

I sewed a few outfits this last week, one for Wall-E, and matching "paradise" outfits for the kids for our convention. I didn't get very good pictures of the kids all together in their outfits, but I will try to post them soon so you can see. They turned out really cute, I think!
 
Hi Everyone....sorry I don't have the time to quote everything, as I am trying to get packed for our road trip to Michigan. Anyway....I love all the new outfits!!!! Everything looks beautiful, of course!!!

Denise.....I really hope Riley is feeling better and that you can find a doctor who will listen to you and help her!!! Those pictures you posted of Riley as a baby are just incredible. That poor baby.....but what a heck of a lil' trooper too!!!! Riley ROCKS!!!!!! She is such a cutie pie!!! My thoughts and prayers are with you!!!

Heather & Teresa...glad your grandma is home!!! I hope she is feeling much better. :goodvibes
 
I am in search of clothing labels for DD's stuff. She starts pre-school this fall and the school wants all of her things labeled. I found a few sites that make iron on labels but thought some one here might have some more suggestions.

http://stuckonyou.biz
http://www.lovablelabels.ca/?gclid=CK6aipCSrpQCFQ5THgod6mCQtw

I'm too much of a recycler to put an iron-on label onto DD's clothes. So I bought some twill tape (JoAnn's or WalMart, either by-the-yard or with the notions somewhere), wrote her name on a piece of the twill tape with a (gel) ink pen, and sewed it on (by hand was easier). Worked through tons of washes. Color me TICKED when DH sent her to school with a hoodie that I hadn't gotten to and they wrote her name in it with a pernament marker... And, now that we're getting rid of stuff, I pull the labels off and will sew them into next year's sweater collection.

Deb
 
Awww, shucks! :lovestruc

Thanks for the warm welcome everyone!

I've been so encouraged by the "when I started" and "where I am now" photos lately.

We are taking the girls to a family reunion in SC this weekend and I have gotten it in my head that the girls NEED twirl skirts! (Is there a crazy woman smilie?) Yup, I think the bug has bitten me!:goodvibes

OK, so now I'm off to Walmart to get *ahem* a few things. :rolleyes1
Have a great evening everyone!
 
Nope, I have antiphospholipid antibody syndrome. It causes blood clots and lots of frustrating "unofficial" symptoms.

The password is disboards. It's in the first post in the thread, too.

I just looked that up since I had never heard of it. OMG how scary! I am glad they figured out what was going on with you and hopefully you are healthy now.

Hi everyone!!! OMGosh it's been about 4 months since I have been on here last and everyone is just sewing up a storm. The outfits and such look amazing. Way to go!!

Anyways I just wanted to come out and show everyone my new ceation that I have been working on. It's NOT clothes but it does involve sewing of matieral and such.

It's a diaper cake that has two Mickeys on it. The mommy to be was expected to have twins; so I put on the two Mickeys to represent that. It was loaded with socks, baby wipes, baby shampoo, baby wash, rattles, bottles, pacifiers, baby powder, plus more and then I had 4 cake tiers done in over 150 PAMPERS diapers.

If I can find my pics I will show you my Winnie The Pooh ones also that I have done. I just started about a month and a half ago and I have done prob. over 50 cakes. Some are even over 4 feet tall now!!!

Thanks again and keep on sewing!!!!



100_1672.jpg

It is so cute!

iluvwdw4ever - those outfits are gorgeous. LisaZoe does such amazing work.

I was thinking earlier today that I don't have enough stress in my life so I decided to bite off more than I can easily chew. I have had an idea floating around in my head for a while and today I threw caution to the wind and prayed that some pixie dust would come flying back at me.

stitchapplique003.jpg


I love Stitch. I think he is just so cute and lovable despite his tendency to get into trouble. :stitch2: :stitch2: :stitch2: :stitch2: :stitch2: :stitch2:
This is my first pieced applique. I have no immediate plans for this piece so I put it on plain white fabric for now. I still have to give him some teeth and claws and outline his arms/hands/feet better.

Sorry, he seems to be sideways. He is straight in photobucket.:confused3 :confused3 :confused3
He looks so good! You did a great job!

Heather's house is just amazingly gorgeous! As she said, Henry built it, but Heather picked out some of the most amazing things to decorate it with! Like those mosaics in her floor!She has a few of those throughout her house! They are so cool, and she has what I call stained glass panels (but she has a fancy word for it) above each of their doorways, and don't even get me started on her sinks! SOOO COOL! Her back porch even has ceiling fans, which amazes my kids to no end!! Ceiling fans, OUTSIDE! Heather won't brag about her house, but that doesnt' mean I can't! :rotfl:
Ok party at Heather's house! LOL I love stained glass windows! We have a few originals in our house one we actually have to have fixed eventually there is a crack but it will be$$$. We have fans on our front porch but we have never used them:scared1: We NEVER use the front porch how sad is that!?!
I started work on my cindy applique and I need HELP!!!!!!

I pretty much have it sorted out except for the eyes. Here is what I have so far:
DSCF0036.jpg


and here is what I am working from:
bigcindyface.gif



I tried a pice of white material for the eyes appliqued with black thread, but i think it was just too small I couldn't bget the outline to look right. Should I just hand embroider them or is there a better way I don't know about?
It looks so pretty! Sorry I can't help I haven't started appliqueing yet....
Karebaear ~

I wanted to show you these for 2 reasons......

1) I know how scary it is to have someone you love go through something so traumatic. I wanted you to see how sick Riley was at the time and show you how quickly a body can heal itself. I know every situation it different, but Riley's prognosis was pretty bleak. I didn't listen to it though. I just knew she had to get better!

2) The incision for Riley's surgery is most likely what a liver transplant patient would have. She has a huge honkin scar, but that is a small price to pay obviously.

This is Riley at about 2 1/2 weeks old. We had just brought her home and at the time there wasn't much hope. We just wanted to have her home some before she got too sick. At the time of this pic. her tumor was about the size of a softball.
babyriley004.jpg

This is Riley right before they took her for her surgery. She had already had a biopsy and even then they really didn't know if it was something that could be removed. We were just running out of time because it was getting so big. Her tumor was about the size of a football when they removed it. Chris actually went with her oncologist and held it. I didn't!
babyriley001.jpg

This is the first time we saw her after 10 hours of surgery. To us she looked beautifu!
babyriley002.jpg

This is the day we went home. I took her clothes all off and just stared at her. Chris wasn't even at the hospital when they discharged us, but I wanted out so bad I carried her and all of the stuff we had accumulated in the 7 week stay out in 1 trip!
babyriley003.jpg

Finally! Just a normal baby, looking at her fist and going cross-eyed!

I just wanted to show you what amazing things can be done. Riley has taught me to never ever give up hope! God can see us through anything. I honestly believe that too. I felt his pressence the whole time Riley was sick. I think he kept me from really absorbing the seriousness of it all, because if I had, I think I would have crumbled into a heap on the floor.

My prayers are with you, whatever is going on in your life.

Riley was(is) beautiful! She is a true inspiration she has lived through so much!
 
GREAT JOB!! That is fantastic!!! I can't believe that's your first pieces applique!!

Heather, Tessa looks adorable! You did a great job, I love the pink and yellow on her! The way you did her hair reminds me of how I use to do the French braid across the top of you head, and then hanging down the side. You know, like we saw on "Santa Barbara" was it Eve or Kellly that wore it like that???

Heather's house is just amazingly gorgeous! As she said, Henry built it, but Heather picked out some of the most amazing things to decorate it with! Like those mosaics in her floor!She has a few of those throughout her house! They are so cool, and she has what I call stained glass panels (but she has a fancy word for it) above each of their doorways, and don't even get me started on her sinks! SOOO COOL! Her back porch even has ceiling fans, which amazes my kids to no end!! Ceiling fans, OUTSIDE! Heather won't brag about her house, but that doesnt' mean I can't!

Happy sewing anniversary Heather! Lydia and Tessa look so little in that picture! They sure have lost a lot of their baby looks this past year! :sad2:

I believe it was Kelly. ;)

Thank you so much. :hug:

Thanks for the happy anniversary!! I cant' believe how much older the girls look either!

That is looking great!! I would hand embroider the eyes if you're having a hard time doing them on the machine.

1. I've had several accidental Diser meetings! Sometimes I see Heather someplace I wasn't expecting her, and sometimes I see Disneymom5 (Sarah) around town or galavanting outside of her house when I drive by!

2. I thought of Tessa when we went by that pond on Friday. How sweet that she threw pennies there for Grandma too. :hug:

3. Please tell Tessa that her Aunt Teresa is SO proud of her! And I think the pillow is the most beautiful pillow I have ever seen in my entire life! And, give her a hug and tell her I love her! :hug:

4. TIFANI- Did your friend have a portal vein thrombosis? Heather's APLS caused her to have one, and she was in more pain than I have ever seen anyone in in my entire life. It was just horrible.
1. :lmao: You smarty-pants!
2. She wished really hard and then she'd pray really hard in the car too. She was so upset that Great Grandma was at the hospital.
3. I will tell her! She'll be so pleased!
4. I was wondering the same thing. That WAS some awful pain!

That must have been so hard for you! :hug: I've said it before and I'll say it again- I can't imagine how hard it would be to see your child in pain.

Then, right after our session was over, my Dad's cell phone rang (my Dad's cell is only for emergencies) and Mom and I were petrified, and sure that someone was calling to tell us that Grandma had died. Thankfully, as you all know, they were calling to tellus that she was doing better! I thank you all for taking the time to care about us. :hug:

I sewed a few outfits this last week, one for Wall-E, and matching "paradise" outfits for the kids for our convention. I didn't get very good pictures of the kids all together in their outfits, but I will try to post them soon so you can see. They turned out really cute, I think!
:hug: How awful that you thought Grandma had died for minute. :hug:

I want to see all the outfits!!!

Hi Everyone....sorry I don't have the time to quote everything, as I am trying to get packed for our road trip to Michigan. Anyway....I love all the new outfits!!!! Everything looks beautiful, of course!!!

Denise.....I really hope Riley is feeling better and that you can find a doctor who will listen to you and help her!!! Those pictures you posted of Riley as a baby are just incredible. That poor baby.....but what a heck of a lil' trooper too!!!! Riley ROCKS!!!!!! She is such a cutie pie!!! My thoughts and prayers are with you!!!

Heather & Teresa...glad your grandma is home!!! I hope she is feeling much better. :goodvibes
Whereabouts in Michigan are you heading?

Good Job Tessa! BTW, I just bought that same shirt (FairyGodmother time) for my Disney trip!
I'll tell Tessa you liked her pillow!
I had to get that shirt when I saw it!

Wow!! That is SOO cool!!

This was 3 or 4 weeks ago and she is still in the hospital. Her spleen threw a blood clot and the dr.s wouldn't listen to her and check into her severe abdominal pain by the time they did (3 days later) the clot had cut off the blood supply to the liver for too long and they need to replace it. She has been moved to the highest priority on the waiting list. She has been having trouble w/ the doctors listening to her all along b/c of her age. They were removing her gall bladder when they found out her liver was severely degenerated. The Doc. grabbed her chart to make sure he had the right gall bladder patient. B/C of her age they totally grilled her and basically pegged her as a severe alcohol and drug addict, from my understanding. But it turns out that it was a degenerative disease she'd most likely had her whole life. But after the transplant she was complaining of SEVERE abdominal cramps and they basically accused her of just wanting them to up her morphine dosage. :mad: I swear, what has this world come to that our doctors no longer take the complaints of their patients seriously.

HOORAY TESSA!!!!!You did a great job sugar!
I can totally empathize with your friend. First they told me I had acid reflux when I went to the doctor in horrible pain. Then, the doctors wouldn't listen to me when I was in the hospital, AFTER they knew I had a portal vein blood clot (between my intestines and my liver). They seemed to think I was just fishing for morphine, too. But, I was in HORRIBLE pain!! The worst pain in my life! This is coming from someone who had 2 kids without an epidural.

Hi Disboutiquers,

You are all so talented.:worship: Maybe you can help me. I am looking for the Pink Cinderella dress (the one that the mice made) for my DD(3) for our next trip. Could you let me know where I can buy one or maybe where I can get a pattern? (I am a true beginner when it comes to sewing!)

TIA!
Jeanna

I made a pink Cinderella dress using the Simplicity Belle dress pattern and just changing the skirt a bit.
 
I am really at the end of my rope. I am looking into mayo clinic, but I know that when I call they will want to know what has been done so far. If they know that there are tests scheduled they will want to wait to find out what the tests show.

I am so far behind on this thread, so I apologize if others have already mentioned this - you do not need an appointment to get into Mayo. You can simply show up and check in and you are generally seen by a Dr. within 72 hours. I highly recommend going to Mayo. A few years ago, my 25 yr. old cousin was having some very serious medical problems. He saw many doctors locally, was in the hospital several times, etc. They kept ordering psych consults and ignoring his symptoms. So, my mom and aunt left the hospital with him and drove to Mayos. He ended up going to the ER there and was quickly referred to the proper physicians.

I feel so bad for Riley. I had bladder reconstruction surgery 2 yrs. ago, so I know what she is going through. Fortunately, the surgery was successful for me. It just breaks my heart that a young girl would have to suffer so much with this. Don't give up on finding her the treatment she needs.
 
So did she actually have the transplant yet, or is she on the list?

Yes and yes. She had her transplant. Just afterward there was a clot that came from her spleen but because the doctors didn't check it out for 3 days the new liver was damaged so severely that they had to keep her in the hospital until they get ANOTHER new liver. Her spleen had been a problem before so when they open her up again they are going to take it out too, the poor girl is gonna be hollow:laughing: 1st her gallbladder now her spleen. B/C she is so young it's been hard to match a liver for her they really need to find a very young liver, the last one belonged to a 5yo:sad1:

TJ- they didn't say what kind of clot it was. Just that they are sure it came from her spleen since she was already having difficulty w/ it. She was in a lot of pain that's for sure. This was 3 or 4 weeks ago, I know her family is anxious for another liver and to take her home. They had to wait almost 2 years for the first liver. But hopefully it won't be long since they moved her priority up.
...t.
 
I wanted to thank you all for your prayers for our Grandma this past week. It was a pretty stressful week for us all! Our family, except Heather had planned to go to Toledo for a convention this weekend, but when Grandma went into the hospital, we thought we'd cancel. But, on Friday, Granma insisted that Mom go. We worried about her so much! On Saturday, when we called to see how she was doing, we were told her bloodpressure was way out of wack after they took her off some of her medications. They told us not to come home, but Mom and I were just worried sick. Then, right after our session was over, my Dad's cell phone rang (my Dad's cell is only for emergencies) and Mom and I were petrified, and sure that someone was calling to tell us that Grandma had died. Thankfully, as you all know, they were calling to tellus that she was doing better! I thank you all for taking the time to care about us. :hug:

I sewed a few outfits this last week, one for Wall-E, and matching "paradise" outfits for the kids for our convention. I didn't get very good pictures of the kids all together in their outfits, but I will try to post them soon so you can see. They turned out really cute, I think!
You welcome! I am just so happy your grandma is doing better!

Can't wait to see the new outfits!
 
Karebear: I don't know anyone, but I have to ask you why you are asking?

I let Tessa use the sewing machine for the first time yesterday! She picked out some fabric at JoAnn and some ribbon. She wanted to make a "fancy dress" with them, but I talked her into starting out with a pillow! :lmao:

She did SUCH a great job and she was so giggly and excited. It was so cool to teach her about something I love!

She pinned the ribbons on the fabric, just how she wanted them and she got them pretty straight. She was in charge of steering the fabric while I pressed on the foot pedal. I think her favorite part was using the string cutter on the side of the sewing machine. Here are some pictures.

Putting in the stuffing (I just let her tear apart an old pillow and use the stuffing).
DSC09921_360x480.jpg


Sewing (I was behind her on the chair, so it was hard to get a good picture).
DSC09928_640x480.jpg


This is her face while she was sewing.
DSC09927_640x480.jpg


The finished product.
DSC09942_640x480.jpg

It is gorgeous! That is one talented girl! princess: If I let Luke see this he will be begging to sew :scared1: :rotfl: right now he is happy with taking all my scraps of fabric and paper and taping and pinning them into various creations.

Here are some more pictures from our June trip.

The AMAZINGLY TALENTED Lisa made these for me. SOOOOOOOO GORGEOUS!!!!!!:worship:

WDWJune20083009.jpg

WOW! Lisa is amazing and your kids look so cute! I'll bet they got a ton of attention! That Minnie and Tink are a couple of my favorite outfits ever!

iluvwdw4ever - those outfits are gorgeous. LisaZoe does such amazing work.

I was thinking earlier today that I don't have enough stress in my life so I decided to bite off more than I can easily chew. I have had an idea floating around in my head for a while and today I threw caution to the wind and prayed that some pixie dust would come flying back at me.

stitchapplique003.jpg


I love Stitch. I think he is just so cute and lovable despite his tendency to get into trouble. :stitch2: :stitch2: :stitch2: :stitch2: :stitch2: :stitch2:
This is my first pieced applique. I have no immediate plans for this piece so I put it on plain white fabric for now. I still have to give him some teeth and claws and outline his arms/hands/feet better.

Sorry, he seems to be sideways. He is straight in photobucket.:confused3 :confused3

He is looking great! I can't wait to see the finished product!

And I lost the Cinderella applique quote :eek: that is also looking great! y'all may end up getting me to attempt a princess applique for our October trip.

Karebaear ~

I wanted to show you these for 2 reasons......

1) I know how scary it is to have someone you love go through something so traumatic. I wanted you to see how sick Riley was at the time and show you how quickly a body can heal itself. I know every situation it different, but Riley's prognosis was pretty bleak. I didn't listen to it though. I just knew she had to get better!

2) The incision for Riley's surgery is most likely what a liver transplant patient would have. She has a huge honkin scar, but that is a small price to pay obviously.

This is Riley at about 2 1/2 weeks old. We had just brought her home and at the time there wasn't much hope. We just wanted to have her home some before she got too sick. At the time of this pic. her tumor was about the size of a softball.
babyriley004.jpg

This is Riley right before they took her for her surgery. She had already had a biopsy and even then they really didn't know if it was something that could be removed. We were just running out of time because it was getting so big. Her tumor was about the size of a football when they removed it. Chris actually went with her oncologist and held it. I didn't!
babyriley001.jpg

This is the first time we saw her after 10 hours of surgery. To us she looked beautifu!
babyriley002.jpg

This is the day we went home. I took her clothes all off and just stared at her. Chris wasn't even at the hospital when they discharged us, but I wanted out so bad I carried her and all of the stuff we had accumulated in the 7 week stay out in 1 trip!
babyriley003.jpg

Finally! Just a normal baby, looking at her fist and going cross-eyed!

I just wanted to show you what amazing things can be done. Riley has taught me to never ever give up hope! God can see us through anything. I honestly believe that too. I felt his pressence the whole time Riley was sick. I think he kept me from really absorbing the seriousness of it all, because if I had, I think I would have crumbled into a heap on the floor.

My prayers are with you, whatever is going on in your life.

Okay, you had me bawling. How amazing that Riley was such a strong little baby, no wonder she is such a strong little girl! You have been through so much with her! More prayers and hugs as she continues to fight to be well and free of pain. :hug:
 
I am so far behind on this thread, so I apologize if others have already mentioned this - you do not need an appointment to get into Mayo. You can simply show up and check in and you are generally seen by a Dr. within 72 hours. I highly recommend going to Mayo. A few years ago, my 25 yr. old cousin was having some very serious medical problems. He saw many doctors locally, was in the hospital several times, etc. They kept ordering psych consults and ignoring his symptoms. So, my mom and aunt left the hospital with him and drove to Mayos. He ended up going to the ER there and was quickly referred to the proper physicians.

I feel so bad for Riley. I had bladder reconstruction surgery 2 yrs. ago, so I know what she is going through. Fortunately, the surgery was successful for me. It just breaks my heart that a young girl would have to suffer so much with this. Don't give up on finding her the treatment she needs.


Thank you for this!

I don't know why, but it is a really scary step to take. She has such a long strange medical history that it is really overwhelming to even think about seeing new doctors. I am going to sit and really pray about this tonight. After reading what you read, I am wondering if the next time she is having bad symptoms if I should maybe just take her to Mayo ER.

Her doctors and their nurses think I am crazy. I really feel sorry for anyone who has been told it's all in their head. When you are already frazzled and scared it really makes you start to doubt yourself. I have had those moments and then I snap out of it when I see my 10 year old laying around the house like an elderly woman because she feels so yucky!

I'll let you all know if I make a break for Mayo in the near future. I'll take my computer too so I can give updates.
 
It is gorgeous! That is one talented girl! princess: If I let Luke see this he will be begging to sew :scared1: :rotfl: right now he is happy with taking all my scraps of fabric and paper and taping and pinning them into various creations.

:lmao: That's the same thing Tessa does! She's always wanting my scraps and then she tapes them to her pictures and such.

mytwotinks: I say go for it. What have you got to lose, besides some $$ if your insurance won't cover it, that is.
 
Denise-

Thanks for posting about Riley- it really touched my heart.

You are her mom. Follow your heart when it comes to your DD. You know her best.
 
Love all the outfits posted !
thought i would share what i have sewed lately.
DSCF2064.jpg
a Lil pet shop pillowcase stripwork jumper
DSCF2125.jpg
Mayson's 3rd b-day Mickey outfit
DSCF2172_edited-1.jpg
Jayedyn's just for fun outfit.
DSCF2204-2.jpg
Zoo themed for a trip to the zoo
I will find a better picture so you can see them better
 
Thank you for this!

I don't know why, but it is a really scary step to take. She has such a long strange medical history that it is really overwhelming to even think about seeing new doctors. I am going to sit and really pray about this tonight. After reading what you read, I am wondering if the next time she is having bad symptoms if I should maybe just take her to Mayo ER.

Her doctors and their nurses think I am crazy. I really feel sorry for anyone who has been told it's all in their head. When you are already frazzled and scared it really makes you start to doubt yourself. I have had those moments and then I snap out of it when I see my 10 year old laying around the house like an elderly woman because she feels so yucky!

I'll let you all know if I make a break for Mayo in the near future. I'll take my computer too so I can give updates.
Let's hope she isn't ever in that kind of pain again but if god forbid she is go for it! And we all will be sitting buy our computers waiting for updates and praying:surfweb:
 
You all are too fast for me! I can't keep up!;)

Love all the outfits posted !
thought i would share what i have sewed lately.
DSCF2064.jpg
a Lil pet shop pillowcase stripwork jumper
DSCF2125.jpg
Mayson's 3rd b-day Mickey outfit
DSCF2172_edited-1.jpg
Jayedyn's just for fun outfit.
DSCF2204-2.jpg
Zoo themed for a trip to the zoo
I will find a better picture so you can see them better
They all looks so cute! I almost bought that Mickey fabric for Kyle yesterday but it wasn't on sale and I couldn't bring myself to spend 48 for it...
I am a bargain hunter.
 
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