Oxygen providers near Disney

[luvsviola]

I am coming to Disney on a trip with our school. My son is G-J fed, and this week also started using oxygen when he is sleeping. He de-sats down in the 70s. He is still de-satting, even on oxygen a couple times a night.

We will need it at night, and at home, he has a 150 pound tank and then a small portable tank for the car. Obviously that isn't going to work for him for traveling. The portable tank only lasts 6 hours, and they last about 48 hours between fills. We are traveling by charter bus to get there.

Anyone done this before and have service providers in Orlando (that would take Medicaid from Indiana)? How did you do it? This is all new to us, and I am feeling VERY overwhelmed.

Thanks for any tips. We cannot leave him home because he is foster, and isn't legally allowed to stay with anyone (nor is there anyone able to care for his needs).

 

[looo33]

You might want to check into a concentrator both for at home use and at Disney. It is a machine that plugs into the wall and uses takes room air and concentrates the oxygen in it for use. I use one at night and I just called my oxygen company, told them my dates for disney and where I was staying, and they are making arrangements. I find the concentrator much easier than oxygen bottles.

 

[SueM in MN]

Call his current oxygen supplier. Many are part of a national chain or have contacts with other providers in the Orlando area.
Your current provider will help with doctor's orders, getting what you need in terms or equipment/supplies and billing.

I am going to move this from the disABILITIES Community Board to the disABILITIES Board since it is about travel to WDW. There is also some information that may be helpful to you in the disABILITIES FAQs thread. That is located near the top of this board or follow the link in my signature to get there ( you want to especially look at post 3).

 

[luvsviola]

Thanks!

Our provider won't do concentrators for people under 14. He's only 2.5, so we are out of luck from that. I'll call the company tomorrow.

 

[SueM in MN]

Oxygen concentrators don't work for everyone, depending on the concentration they need.

You should be able to work it out with the oxygen supplier.

If you can't, you might want to check with the county you are in - they may have respite foster care providers who would be able to care for him ( both my sister and my niece have done repute foster care ).

You should also check with the county before taking him out of state to make sure it is allowed.

 

[luvsviola]

Thanks for all the advice. We will definitely need a court order to take him, but it hasn't been a problem before. We've had him for almost 3 years. We have taken him out of state for a weekend before, but this will be our first week long excursion, and his first on oxygen. He would definitely not do well in respite, and we are the only feeding tube foster parents in our county. I hate that my mom is competent to be his daycare, and take him to all his therapies (he has 4 a week) and most of his doctor appointments, but DCS won't let her keep him overnight while we are gone.

I just keep telling myself that I am not the first one to take my kid to Disney, and surely people have plans for this stuff if I call.

 

[canopynut66]

I am coming to Disney on a trip with our school. My son is G-J fed, and this week also started using oxygen when he is sleeping. He de-sats down in the 70s. He is still de-satting, even on oxygen a couple times a night.

We will need it at night, and at home, he has a 150 pound tank and then a small portable tank for the car. Obviously that isn't going to work for him for traveling. The portable tank only lasts 6 hours, and they last about 48 hours between fills. We are traveling by charter bus to get there.

Anyone done this before and have service providers in Orlando (that would take Medicaid from Indiana)? How did you do it? This is all new to us, and I am feeling VERY overwhelmed.

Thanks for any tips. We cannot leave him home because he is foster, and isn't legally allowed to stay with anyone (nor is there anyone able to care for his needs).

I am from Indiana and have aprivia here and all I do is call them (here) and tell them the dates and they set all the oxygen up for me and it is there when I arrive in Disney. It is in bell services or has been the last three times and they will bring to the room as soon as we are assigned one. I use the concentrator when I lay flat as my oxygen drops so low. and the one they bring is same as I have at home. there is no more charges for this service and I am on medicare and Humana now. aprivia told me if I would decide to spend the night anywhere just call them and tell them where I need it delivered to as they like patients to get out and go places...so I do good luck to you.....they will bring you all the tubing in the same kit you get at home as well---if your his legal foster parents years ago in Indiana we had no problem taking the kids we had in home any where we went out of state.....

 

[luvsviola]

AWESOME!!! We have Apriva too. That makes me feel so much better.