OT: what kind of accomodations for As?

Taratink

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Aug 31, 2004
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This is OT but I value and trust the info that I get here. My DS 7 has Apergers Syndrom. The school is doing nothing to help him. He has been on some meds that help for a couple of months and then stop. They just want me to find a new med. The meds are disguising his problems and they are not being dealt with. The next meds suggested are too dangerous and I will not allow him to take them. What kind of accomodations can they make at school to help my DS? I don't know what to ask for or expect. Please help.
Tara
 
It really varies from state to state, school district to school district even. What does it say on his IEP? Does he have one?
 
Federal Education law is pretty straight forward. he needs to receive a free public education in teh least restrictive setting with whatever services are appropriate to facilitate his kearning regardless of the cost.

Does he have an IEP? If not, then you need to request he gets one ASAP. Complaint to the state board of ed if they don't have one in place by the end of January.

If he has an IEP, what is on it? Are they providing the services on it? Is there anything they aren't doing that would help him? Call a CST meeting and tell them you want to review and possibly change the IEP.

I guess the question is, what are you expecting of the school that he isn't getting?

Anne
 
There is no IEP. :confused3 They say that he does not need one. I asked for a team meeting and told the guidance counciler that I expect one. I am gearing up for battle. The guidance conciler said that he behaves nicely when she is in the classroom. I asked if you need to have bad behavior to get services. She said No. She then asked if I could put him back on the meds he was on last year. I told her that meds only work for a month or two and that I was sick of pumping meds. into him. I told her it was their turn and I expect help. I voulenteer all the time at the school. I have taken my son off the bus, put him on meds. and take him for any therapies that we can afford. It is their turn. I am tired of doing this alone. My son is in the grey zone. It is a place where help is hard to find.
Tara
 

Does he have an official diagnoses from a medical doctor? If so, call your state department of education.

The guidance counselor sounds like an idiot. Next time she says to medicate, ask for her medical license. Aspergers is a recognized disability, and your son is protected under IDEA. Call the district office and ask to speak to the director of special services. Let that person know that your son has a legally defined disability and you need an IEP for him, and that the school guidance counselor isn't helping.

The school can not force you to medicate, although if your son is disruptive, they can place in him a non-mainstream class--which is sometimes a better place anyhow.

What would you like to have provided for your child in terms of services?

Anne
 
In each state there is a free advocacy group that will help you go to battle to get the IEP. Please google the one for your state. I have used the PAC in Wyoming and she was wonderful and free.

Also, don't accept only the services they offer, get what your son needs! That is our lessons. CDC offered one hour a week of ST, but Hunter was non verbal. How would one hour a week help? It didn't!

In the end we started the first home based ABA program in the state of Wyoming. Self funded, can you say second mortgage the family farm!!!

Good luck and let us know what happens.
 
Taratink said:
There is no IEP. :confused3 They say that he does not need one. I asked for a team meeting and told the guidance counciler that I expect one. I am gearing up for battle. The guidance conciler said that he behaves nicely when she is in the classroom. I asked if you need to have bad behavior to get services. She said No. She then asked if I could put him back on the meds he was on last year. I told her that meds only work for a month or two and that I was sick of pumping meds. into him. I told her it was their turn and I expect help. I voulenteer all the time at the school. I have taken my son off the bus, put him on meds. and take him for any therapies that we can afford. It is their turn. I am tired of doing this alone. My son is in the grey zone. It is a place where help is hard to find.
Tara


Geez, my AS son has been on an IEP since preschool. He's a 4th grader now. Have you gotten him diagnosed by a doctor? I remeber mentioning it when we did the transition to kindergarten and getting a "oooo" from the principal and psycologist. Our family doctor insisted on it, he had enough experience with school psychs "misdiagnosis". We have never had a problem, though DS is not that severe. Do you have a county educational service center? Ours has an mentor for parents dealing with autism.

I am sorry to hear this, as we got news that DS will be doing regular Language Arts with his classmates starting in January. He will only go to the special needs room to take his tests (he gets extra time).
 
My DS is trying so hard. He keeps sitting at the teachers desk with her because he says that he can think there. He is so distracted by everything going on in the class. He is smart but very impulsive and unpredictable at times. He is a very specail boy whom I will do anything for. I am speaking with my son's Psyciatrist the Friday and I will get a formal letter from him to give to the school.
 
Taratink said:
My DS is trying so hard. He keeps sitting at the teachers desk with her because he says that he can think there. He is so distracted by everything going on in the class. He is smart but very impulsive and unpredictable at times. He is a very specail boy whom I will do anything for. I am speaking with my son's Psyciatrist the Friday and I will get a formal letter from him to give to the school.

Again, I'm still not certain what services you would like him to receive?

It sounds like he could benefit from a self-contained placement or program for high functioning ASD kids.

Is the lack of ability to concerntrate due to the ASD or ADD?

Anne
 
ducklite said:
Federal Education law is pretty straight forward. he needs to receive a free public education in teh least restrictive setting with whatever services are appropriate to facilitate his kearning regardless of the cost.
Anne

regardless of cost - Massachusetts has a law stating that the schools can limit how much they have to spend on a student. It states something like 'to a reasonable amount', or 'unless it creates a burden on the district'. I'll try to find the actual wording tomorrow at school.

FYI - it was Gov. Romney who was responsible for this legislation. He also cut grants to schools that were awarded before he was elected...
 
Schmeck said:
regardless of cost - Massachusetts has a law stating that the schools can limit how much they have to spend on a student. It states something like 'to a reasonable amount', or 'unless it creates a burden on the district'. I'll try to find the actual wording tomorrow at school.

FYI - it was Gov. Romney who was responsible for this legislation. He also cut grants to schools that were awarded before he was elected...

The Feds heavily subsidize sped--one of the reasons some districts are so eager to "classify" ADD kids who perform fine in a regular room and without special services. A district has no right to limit cost under Federal law. I can't wait to see that one challenged--the state will lose.

Anne
 
Actually, there is wording in the IDEA that states that a state/county can have the right to limit costs - because MA has Prop 2 1/2, they can use that as a limiting agent.

I went to the Mass DOE SE website, but got distracted by the downloadable documents about cases in litigation/discussion, etc. I have better access at school tomorrow, but it depends on how much time I have to be on the computer.

Federal law states that a child get a Free and Appropriate Education - which is left up to others to decide what is appropriate. If a parent demands a child be schooled out of state, in a private boarding school that doesn't accept state funding, but the school district states that it can supply the same services at its school, the school has the advantage because it can provide an appropriate education. Appropriate (in MA anyways) means an IEP is created and the services given in the IEP are met. That's about it.

I'm not saying this is the way it should be, or if this best serves our children, but this is how it's done in my state. I know my town has been known as one of the best sped services towns in the area, but then many families moved here specifically for our strong sped services and the financial burden caused us to be more stingy on IEPs. Now we're about average in services.

It's become a lot harder to get an IEP loaded with out-of-classroom services such as OT, PT, ST, etc. Rising Sped costs have caused the school system to cut the elementary school Spanish classes, students are charged $$$ for riding the school buses (varies with grade/distance) History textbooks have the first Bush as president...

Are the Sped students to blame? Definitely not! But there is rising resentment in my town about the costs, property taxes are going up, class sizes are increasing every year, and some people can't afford to live here anymore.

I don't know the solution, and it really worries me when I hear what townspeople say at budget meetings that deal with the Special Education portion of the school budget.
 
Schmeck said:
It's become a lot harder to get an IEP loaded with out-of-classroom services such as OT, PT, ST, etc. Rising Sped costs have caused the school system to cut the elementary school Spanish classes, students are charged $$$ for riding the school buses (varies with grade/distance) History textbooks have the first Bush as president...

Comments like this make me feel so naiive and overly optimistic entering the workforce as an SLP. I think it is DISGUSTING to deprive children of a needed opportunity to gain skills that their peers are developing and achieving naturally.

That said, when I commented to someone about specializing in AAC (augmentative and alternative communication), to someone who is an SLP, she commented that when looking for a job I should make sure that the school provides AT (assistive technology) services :sad2: What do you mean they dont provide them at all??? What if a child NEEDS it? It's not like walking into a store and asking "do you sell lime green shirts?" and the store saying "nope we dont" and you moving on to the next store... The education system doesn't provide that option.

Parent's are the child's number one advocate! I can't stress that enough. But hearing this crap makes me soooooo frustrated and I'm still a student!
 
The things that I would like are
1. To be in a social skills group a couple times a week.
2. A teacher to explain to him the unwritten rules.
3. He needs time. If something happens he needs 10 minutes to collect his thought before he is asked to apologize etc.
4. Advanced notice of changes in schedule.
5. A seat near the teacher.
6. a flexable and understandinf teacher with info. on AS.

Here are a few things that I can think of.
Tara
 
Your first step is to get an IEP in place immediatley. I would call your local parent support network office (that's what it's called here) and they can give you information on how to handle the IEP meeting and what should be included in the IEP. Be firm, go into the meeting with a witness (my word and from experience). Good luck
 
Schmeck said:
Actually, there is wording in the IDEA that states that a state/county can have the right to limit costs - because MA has Prop 2 1/2, they can use that as a limiting agent.

I went to the Mass DOE SE website, but got distracted by the downloadable documents about cases in litigation/discussion, etc. I have better access at school tomorrow, but it depends on how much time I have to be on the computer.

Federal law states that a child get a Free and Appropriate Education - which is left up to others to decide what is appropriate. If a parent demands a child be schooled out of state, in a private boarding school that doesn't accept state funding, but the school district states that it can supply the same services at its school, the school has the advantage because it can provide an appropriate education. Appropriate (in MA anyways) means an IEP is created and the services given in the IEP are met. That's about it.

In that case then of course the school has a valid reason to deny a out-of-state placement. But if the school doens't have an appropriate program, then "cost" isn't an excuse. They MUST either begin a program to meet the childs needs, or find a suitable one. If the school self-contains all nine year old IEP kids requiring a self-contained placement into one self-contained room, lumping ASD, visually impaired, OOD, and low functioning mentally retarded, parents are going to SCREAM! It's not a suitable placement for any of them, even if the IEP states "self-contained room."

If on the other hand they put the children working on a 5th grade level who are ADHD, ODD, and Bi-Polar into one room, it's *probably* acceptable for most of those kids, as academically they are about in the same place--at least with most subjects (gym, art, music, plus probably history and science for example) and the structure, discipline, etc. are going to be the same for most if not all of those children. (Some ASD kids might also fit in well in that room.)

I'm not saying this is the way it should be, or if this best serves our children, but this is how it's done in my state. I know my town has been known as one of the best sped services towns in the area, but then many families moved here specifically for our strong sped services and the financial burden caused us to be more stingy on IEPs. Now we're about average in services.

That's a shame, actually. That's a good argument for changing the way some states fund education...

It's become a lot harder to get an IEP loaded with out-of-classroom services such as OT, PT, ST, etc.

But those services MUST be provided if the child needs them, regardless of available funds. The district MUST come up with funding for services like those or they will be in violation of IDEA and Title IV.

Rising Sped costs have caused the school system to cut the elementary school Spanish classes, students are charged $$$ for riding the school buses (varies with grade/distance) History textbooks have the first Bush as president...

I'm not sure what your point is. Spanish isn't required in elementary school--in fact it's actually a fairly new thing in most schools. Parents have the option of driving students, or they could walk--walking would probably do a lot of todays youth some good. I can't recall ever having completely up-to-date texts in school. Teachers can supplement with handouts and current events.

Are the Sped students to blame? Definitely not! But there is rising resentment in my town about the costs, property taxes are going up, class sizes are increasing every year, and some people can't afford to live here anymore.

I pay $11,000 a year in property taxes and don't have a kid in school. :charac2: It is NOT jsut SPED that's causing costs to skyrocket. Insurance, teachers and administration salaries (in some areas), redundant clerical positions, legal bills stemming from parents suing because Mary jumped off teh swing and broke her arm...

I don't know the solution, and it really worries me when I hear what townspeople say at budget meetings that deal with the Special Education portion of the school budget.

Schools need to work together with neighboring districts to come up with non-redundant programs to help cut SPED costs. They need to ustilize teh funds they have more wisely. I saw the district we lived in in NJ SQUANDER SPED funds--something several teachers and administrators admitted to, but when asked why they didn't do soemthing about it, the response was always the same. "We don't know where to start" or "That's the way it's always been."

Anne
 
Is he working at or near grade level in his academic subjects? What kind of support does he get in school now?

My son is ASD as well, I've never gotten a social skills group through the school, that has always been something we did privately.

The other things on your list are not necessarily things you need an IEP for, most of them the teacher should be able to do as a matter of course.

Have you looked into private schools? Contacted an education lawyer?

Good luck.
 
Taratink said:
The things that I would like are
1. To be in a social skills group a couple times a week.
2. A teacher to explain to him the unwritten rules.
3. He needs time. If something happens he needs 10 minutes to collect his thought before he is asked to apologize etc.
4. Advanced notice of changes in schedule.
5. A seat near the teacher.
6. a flexable and understandinf teacher with info. on AS.

Here are a few things that I can think of.
Tara

1. This might not be easy to accomodate if there aren't other children with his diagnoses. It's not a cost issue. I'd ask for maybe a "peer mentor" if a social skills groups can't be established.

2. Should be pretty easy to accomplish, BUT instead request a teacher or suitable member of the child study team meet with him weekly to reinforce "unwritten rules." It's possible that the school psycologist might be a better person to work with him on that.

3. That's more difficult if he's in a mainstream room. The way that should be written is he is to have a "quiet place" to retreat to as needed by him or as instructed by any teacher or adult. The nurses office is often used for this.

4. This can be written in, but keep in mind that sometimes changes happen that are unavoidable, such as an unannounced fire drill--and for safety's sake they can't announce it to him in advance.

5. I can't believe they ahven't done that already. That's a no-brainer.

6. Again, they might not have a teacher who understands ASD. That said, under IDEA they MUST provide the least restrictive environment, and it sounds like he CAN function in a manstream room with minor modification, so it is their responsibility to mnake sure that his assigned teacher "gets it." This COULD mean a classroom change.

You might ask for a p/t aide, it sounds like he could greatly benefit from someone to keep him on task and work on social skills.

Anne
 
Taratink, the things you have requested are commonly found in IEPs in Massachusetts. I agree with almost 100% of ducklite's advice. The only thing I balk at is the suggestion of getting a 'peer mentor', if that means having another student be responsible for a child's behavior, modeling in any way. I've just seen it backfire this past Monday at school, big time!

ducklite, thanks for the insightful responses to my winding post. My comments about classes being cut/large class sizes were made to show how the people in my town see these cuts being caused from the increased costs of the SPED program. I should have made those two paragraphs into one. Sorry!

BTW, the federal goverenment pays for 4-12% of the SPED budget, according to the many SPED websites I've checked out. And does anyone know what the Heartland website is about? It came up on a SPED search on MSN, and I couldn't figure out if it was a pro or anti SPED site...

Taratink, stay strong and make sure your son gets what he needs to succeed now - and I bet the school system will thank you later when he is a more well-adjusted student, instead of having a larger problem...
 
I got an email yesterday from DS teacher. She told me that when DS can focus he does great work. She just has to constantly get him on task. He is not disrupting the class. He is really smart but usually on a different planet. The teacher said that she has dealt with AS kids in the past but they were never in her classroom all day. DS is high functioning. Some days he seems like a typical student. Other days he is enforcing all the rules in the class and is obsessed with stapling scrapes together. It is so strange. He gets a different look in his eyes when he is going through a tough patch. The teacher said that he looks different to her too. That makes me think that something else must be triggering his tough times. I have an appt. with an allergist.
Can anyone share the websites that you are getting your info. from? All the info. that you have shared is very helpful.
Thank you,
Tara
 














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