Oakleys MAW Trip 10/4-10/10

kidneymom

Earning My Ears
Joined
Apr 14, 2014
Messages
4
My son's name is Oakley and he was born with a rare syndrome called Prune Belly Syndrome. He is the youngest of five children. Oakley also has kidney disease and will require a life saving kidney transplant in his future.

We have received our conformation of travel dates which are 10/4-10/10. We will be staying at Give Kids The World.

We will be going to Mickey's Not So Scary Halloween Party! We will also be visiting one of the water parks as one of the main highlights for him will be swimming since he has been unable to do so for most of the summer.

I look forward to meeting some of you!
 

Found you!!!

First, let me say :welcome:
Fall is such a great time to go!!! Low crowds, slightly cooler temps, did I mention low crowds? Lol. You all are gonna have the time of your lives!!!! I can imagine the excitement w/ 5 kids!!!!! I'll be subbing!!

 
Oakley sounds like an amazing kid! My son was born with Renal Agenesis (only one Kidney) and he too will soon need to start dialysis and eventually need a Kidney Transplant. He made his wish to go to Disney also. We leave in 3 weeks! Hope you guys have a great trip :cool1:
 












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