JerseyJanice
A Disboards original...
- Joined
- Aug 20, 1999
- Messages
- 10,764
As some of you nice people may know, my niece had a bone marrow transplant in late April to treat a disease called asplastic anemia.
She was doing rather well up to now, and just when we thought she'd be O.K., now a major setback.
The bone marrow is not manufacturing hemoglobin at all. It's making white blood cells and platelets, but no hemoglobin.
Her doctor is dumbfounded; this has never happened to one of his patients or any others at the transplant center where she's a patient. He needs to research it with other major medical centers (Mayo Clinic and Johns Hopkins, for example) to see if this has happened to other bone marrow recipients and how to treat it.
In the short term, she will receive transfusions of the hemoglobin her marrow cannot produce. Long term...it's impossible to say what the prognosis is at this stage.

She was doing rather well up to now, and just when we thought she'd be O.K., now a major setback.

The bone marrow is not manufacturing hemoglobin at all. It's making white blood cells and platelets, but no hemoglobin.
Her doctor is dumbfounded; this has never happened to one of his patients or any others at the transplant center where she's a patient. He needs to research it with other major medical centers (Mayo Clinic and Johns Hopkins, for example) to see if this has happened to other bone marrow recipients and how to treat it.
In the short term, she will receive transfusions of the hemoglobin her marrow cannot produce. Long term...it's impossible to say what the prognosis is at this stage.
