Not good news about my niece.

JerseyJanice

A Disboards original...
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Aug 20, 1999
Messages
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As some of you nice people may know, my niece had a bone marrow transplant in late April to treat a disease called asplastic anemia.

She was doing rather well up to now, and just when we thought she'd be O.K., now a major setback. :(

The bone marrow is not manufacturing hemoglobin at all. It's making white blood cells and platelets, but no hemoglobin.

Her doctor is dumbfounded; this has never happened to one of his patients or any others at the transplant center where she's a patient. He needs to research it with other major medical centers (Mayo Clinic and Johns Hopkins, for example) to see if this has happened to other bone marrow recipients and how to treat it.

In the short term, she will receive transfusions of the hemoglobin her marrow cannot produce. Long term...it's impossible to say what the prognosis is at this stage.

:(
 
I'm sorry JJ. I'll keep her in my prayers.
 

I'm so so sorry, your family is in my prayers.:hug: :grouphug:
 
Prayers for your niece. Something like that also happened to a friend of mines daughter. They said the dr. could not explain it either. Her transplant was at Fred Hutchinson in Seattle. All the tests came back bad but she is still here with us. They said her body is now in a pre leukemic state again. But its been that way for years after the transplant. Something is wrong with her bone marrow too, they just dont know what. So they are leaving things alone. She had it at 2 and is now 13.
 
/
I'm so very sorry. She'll be in my prayers.:hug: :hug: :hug:
 
Sorry to hear that, JJ. Sad news. Do hope she improves and continues her mending ways. She remains in my prayers. :hug:
 
I'm so sorry. She'll be in my prayers. Keep us informed.
 
She'll be in my prayers, I hope they are able to find some answers and turn it around.
 
I'm so sorry to hear she had a set back. I'll remember her in my prayers.
 
So sorry to hear about your neice. Will be saying many prayers for her.
 
I'm so sorry to hear about your niece. My prayers are with you and your family!!!:hug:
 
Sorry to hear this, Janice. Hoping for the best possible outcome.
 
I am very sorry to hear about your niece. I will keep you all in my prayers. Hopefully they will find the cure for her ailment soon. Perhaps if they do countless others will also be cured, too.

Prayers and PD:wizard: :wizard: :wizard:
 

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