Noah's Wish Trip (Wings ~ July 29, 2009)

[tinytreasures]

I am so glad you are home
wonderful news about sleeping at the airport

 

[dmbfan]

So happy that Noah is home...praying everything is smooth from here on out until the big day...

 

[ndloewen]

i am so glad to hear that noah is home. i truly feel like i know you guys and i think about you quite often. my mom and my husband both ask about noah all the time. i am so glad to be reporting that he is home hooray. its almost time for the single digit dance . woohoo

IT'S TIME!!!!!!!!!!!!!!!
SINGLE DIGIT DANCE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

​

Ok, I promise my next post will contain big give pictures!!

 

[VroomVroomLightning]

YAY for single digit dance!! So excited for you guys!!! Woohoo!!

 

[maroo]

Sister!! I am dancing with you!!!!

I can't even tell you how excited I am to see you guys heading to the World! Answered prayers all over the place!

And I am STILL PRAYING for you guys!!! Won't stop till you are home safe and sound. And won't stop then, really! Persistent prayers from Maroo!

 

[ndloewen]

Finally, the long awaited big give hospital pictures. Brad and the kids brought 2 packages to the hospital and we had such a blast opening them!!

The first package was from Alison (visitingapril09)...

Inside were games, wall stickers for the kids rooms, a book for Noah and beautiful water bottle holders for Kailyn & Joshua...

And, the most adorable outfit for Noah!!! I waited until home to put it on him and take pictures. It fits him perfectly...

And my favorite part...

Alison, thank you so much!!! Kailyn & Joshua love the goodies...they were such a blessing to receive at the hospital. And we are all in love with the precious outfit for Noah!! Can't wait for him to were it at Disney!!

The second package to come...

 

[ndloewen]

Our second big give package in hospital...Joshua was so excited he could barely look in the box...

Inside were so many goodies...I wish I had gotten more pictures! Disney PJs for all the kids, a Minnie Mouse for Kailyn, Wall-E for Joshua, and Tigger for Noah, plus lots of other treats...

Noah was thrilled with his new Tigger and gives him constant hugs!!

Joshua was so excited with his batman pj's and the removable cape!! And Wall-E was the biggest hit!! He absolutely loves it and has been trying to figure out how to fit him in his carry-on. I'm sure he will find a way!!

Kailyn also loves her princess pj's and her Minnie Mouse that she has been wanting so much!!

I will have to try and get a better picture of Noah in his cute Mickey Mouse pj's and Joshua's cape we are at GKTW. Kailyn & Joshua refused to take off their new pj's and wore them home from the hospital!

Thank you Nathan for the Mickey Mouse drawing...we had to show it off! The kids thought it was very neat that you had just been on a wish trip and they loved the drawing!!

Carol and family, thank you so, so much for your generosity!! It was so much fun to see the kids excitement. You brightened up our hospital stay and once again, we are completely overwhelmed!

 

[3princesses+aprince]

That is so great that Noah is home. The big give gifts are great! WOW 8 days to go!!!!

I think it was wise of you also to cancel the trip before you leave. Keep him away from all germs!

 

[ndloewen]

We had 2 packages arrive yesterday!!

The first package was from Linnette...

First there were tattoos, a coloring book and the most adorable Donald Duck outfit for Noah...

Wall-E and Indiana Mickey for Joshua, along with pants (love the mickey buttons on the pants!!). Joshua WAS more excited than he looks on the pictures ...

Mickey Mouse and Princessess for Kailyn. I especially LOVE this first outfit...

Buzz and Cars outfits for Noah. The t-shirts have a little pocket that talks when you press it. So cute!! Noah was quite confused by it at first, but wanted us to press it over and over...

And the Donald Duck outfit. How CUTE is this?????

Wow, so much stuff!! Thank you SO much for everything!! It will be so fun showing them off in the parks! I cannot believe you say that you are not "excellent" at sewing. You did an amazing job and we love ALL the outfits!!! All you big givers are SO talented!!

The second package is from Denise...

"Oh, I have a good feeling about this one!!" she says as she sees the material.

Yep, she LOVES it!! And so do I!!!

Thank you so much Denise and family!! The outfit fits her perfectly and I love all the buttons!! OH, and we will be sure to eat lots of Disney popcorn for you!!

 

[autumnpalm]

This picture just melted my heart. What a gorgeous little boy.

 

[iu97alum]

HOW ADORABLE!!! I can't belive that you're into SINGLE DIGITS!!!! The kiddos look soooo Happy and they're not yet at the world! I can only imagine wha ttheir faces will be once you actually GET there!!!!!!

 

[macntosh]

Well I know how to find y'all at GKTW, just look for two of the best dressed kids in the place. Wow what amazing Big Give designers there are!

 

[HeatherSue]

I'm so happy to see pictures of Noah at home!! He looks absolutely adorable in his new outfits. I just love them!! All of the kids look so cute!

 

[macntosh]

Check your pm's, I need some info quick from you.

 

[twob4him]

How great is it to see Noah at home! The outfits and goodies are so wonderful....I just love seeing how excited they all are over them. Many prayers and well wished for your trip!!!

 

[3princesses+aprince]

Aww, They all look so nice in their new outfits. I bet they cannot wait to be in Disney world! Everyday I check in and am so Happy to see that Noah is doing good

 

[ndloewen]

Spent the morning at respiratory clinic and then bloodwork. Clinic was good...everyone is happy with the way Noah looks. His chest still has some junk, but it has improved and we have been able to decrease our Ventolin use. We did a throat swab, and depending on what the culture grows (he is usually colonized with something, even when he is not sick), we will get some antibiotics on Monday to take along with us "just in case he doesn't look right". Nice to have a bit of insurance! Bloodwork was rough, but they were Noah's LAST POKES before Disney!! One more clinic appointment tomorrow with the plastic surgeon regarding Noah's cleft palate, and then we are not setting foot in a hospital again until we come home!! I think I have our airline issues worked out, and we should be able to run our oxygen concentrator on the flight. Our home oxygen company should be delivering it here tomorrow or friday. Our TPN order should arrive tomorrow too, so we should have all our supplies in order by the weekend.

Only 6 more days until GKTW!!!!!!!!!!!!!!!!

5 more days until we leave home!!!!!!!!!!!​

We did a Dollorama yesterday evening and bought some snacks for the plane, glowsticks and ponchos. We also picked up a much needed swimsuit for Kailyn. I'm still searching for a cooler to carry on the plane with Noah's TPN. Someone at the hospital today suggested a cooler bag inside a suitcase with ice packs. I've never seen these cooler bags before, but I will be hunting for them this weekend!

Someone from the local church here is bring us a hot meal tonight . We are blessed!!

 

[tinytreasures]

Noah is so cute
the big give kids are going to be so cute together

 

[jennipooh]

I must say your kids are so cute in their new outfits!

I pray that your Noah has continued health as you prepare for this wonderful trip on Tuesday. We will be thinking of you then (on my Noah's 10th birthday!)

Anyway, my Noah had only the second round of antibiotics of his entire life right before we left for Disney World back in December. (he picked up strep throat, and to think I was whining about it - sometimes we forget how blessed we are with our healthy children!) It ended up being no problem at all to get his refrigerated medicine down there. I used a small, lunch box sized, collapsible cooler (which I picked up at the local CVS a few summers ago for next to nothing) and 2 Finding Nemo freezer packs (which I picked up in the dollar aisle at Target). I think the cooler bags you are looking for are what I call a collapsible cooler - basically just a soft sided cooler.

I would begin the search at someplace like Wal-Mart as they get their summer stuff out so early!! Anyway it worked great - no problem with security and no problem with medicine getting warm. The only bummer is that we left the cute Nemo ice packs in the freezer when we checked out! He had finished up his medicine and we just weren't thinking of them. They were so cute.

Have fun

 

[ndloewen]

I must say your kids are so cute in their new outfits!

I pray that your Noah has continued health as you prepare for this wonderful trip on Tuesday. We will be thinking of you then (on my Noah's 10th birthday!)

Anyway, my Noah had only the second round of antibiotics of his entire life right before we left for Disney World back in December. (he picked up strep throat, and to think I was whining about it - sometimes we forget how blessed we are with our healthy children!) It ended up being no problem at all to get his refrigerated medicine down there. I used a small, lunch box sized, collapsible cooler (which I picked up at the local CVS a few summers ago for next to nothing) and 2 Finding Nemo freezer packs (which I picked up in the dollar aisle at Target). I think the cooler bags you are looking for are what I call a collapsible cooler - basically just a soft sided cooler.

I would begin the search at someplace like Wal-Mart as they get their summer stuff out so early!! Anyway it worked great - no problem with security and no problem with medicine getting warm. The only bummer is that we left the cute Nemo ice packs in the freezer when we checked out! He had finished up his medicine and we just weren't thinking of them. They were so cute.

Have fun

I did check out Walmart, but no luck I've been told to try Canadian Tire. That will be my mission this Saturday! I need something fairly large, as we have 16 Litres of fluid to keep cold as well as some meds.