No GF Pirate Cruise For You*! *If you have a nut allergy, that is!

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Thanks for the info about the cruise and also about the new drug - will have to ask our DD's doctor about that one!
Hugs to all those Mums out there who share this concern about their little ones. It's hard sometimes, isn't it? Makes me feel a bit like a Momma Bear - my sister suggested last week that timbits (non-nut friendly Canadian snack) would be okay for DD and I bit her head off - sorry sis!
 
DeeCeeSW said:
Aha! So they did do this in the past! You are right, something probably happened. I agree that there is no need for the lunch. The kids are there for the adventure and I'm sure they don't really care about the PB&J anyway.

My nephew is allergic to dairy and peanuts! So, it could have been someone like him. Maybe they should not serve food period.
 
dizcrazee said:
Is all of this fair? No...but then, no one said life is fair. Does my child miss out on a lot that other children take for granted? Yes, she does...and I grieve when it happens. But that is the lot we have been dealt and we will deal with it. I don't expect the world to conform to our special needs, therefore, she doesn't expect it either. Since she knows this is a fact of life for her, she doesn't even question it when we determine something is unsafe. We simply move on and find a substitute. This is the attitude that we want her to have as she moves through life with this condition. It is our duty to model this attitude for her and help her to develop it as well.

OP, I say to you with utmost sincerity and compassion, because I know how painful it is to have to deny a beloved child something because of their allergies...you are angry and hurt, and I understand. However, you will be doing your DS a disservice if you allow him to see your anger about this. He will have to accept that there are certain things he will be denied in life. It is unavoidable. If he sees that you think that the rest of the world should alter their habits to accomodate his needs, that will be his expectation as well and will make it harder for him to accept his condition.

100% Agreed. I can only sympathize with those who have children with these allergies (one of my best friends' son has this and he is great friends with my daughter - they are 3). I feel bad for both the children and the parents as it does cause some inconviences. But I do agree that every child must come to terms that someday in their lives they will be denied something. Whether this "something" is as small as a toy at the store, an extra piece of chocolate cake, being able to eat whatever they want and watch their environment, such as in your sons case, or even for some children - that they will not be able to go to Disneyworld is something they will have to learn.

If anything - please don't let this ever ruin your trips to Disneyworld with your son. Keep going and enjoying the things you can.....I'm sure your son is the envy to others who can't afford to go, etc. In the grand scheme of things this is "minor". Some people don't even have their children around to take to Disneyworld even if they wanted to (One of my good friends lost his son at the age of 9 a few years ago)
 
DeeCeeSW said:
DS will have PLENTY to do at WDW and will have plenty to eat, as he always has. We keep going back because of the way he is normally accommodated. Again, I must reiterate that my anger and disappointment lies in the inconsistency of the services provided regarding the pirate cruise. When I booked the Albatross last year, I discussed the peanut allergy and HONESTLY did not expect to be accomodated, but amazingly I was.
Okay, while it appears that GF is being inconsistent on this matter compared with the general Disney policy and accommodations of food allergies, it ALSO appears - from other posts here - that they are consistent in the policy regarding food served on the Pirate Cruise. Simply because the Albatross cruise did and does accommodate food allergies does not, to be honest, compel the Pirate cruise to do the same.
DeeCeeSW said:
BTW, the kids eat their lunch OFF of the boat on the Albatross Cruise, so the boat was not an issue as it appears to be at the GF. The chef couldn't even tell me if the kids actually do eat on the boat at GF.
Okay, well, that explains why the Albatross cruise can accommodate peanut (and other) allergies while the Pirate cruise can't. BIG difference.
DeeCeeSW said:
For those of you who seem to think I am willing to jeopardize my son's health and well-being for a 2-hour cruise, shame on you. That's all I'll say about that. I'm not an idiot.
I don't believe anybody said that.
 

dizcrazee said:
Selket, I'm sorry, I don't know the name of the peanut allergy drug. I would check into it with an allergy doctor if I were you. You may be able to get it since your son also has diabetes.

Thanks Dizcrazee - I will ask his allergist on our next appointment what she knows about it. I do realize the drug allows one to mistakenly digest some peanut (or touch it too I guess) without such a severe reaction - but doesn't mean they can eat peanuts!

I have read that Disney did a good job of accomodating allergic kids at the Princess Tea Party at the GF (not sure I have the name right). Of course that appeals more to girls than boys! I don't know if the OP's son likes fishing but at POR in the morning until 3 pm or so (I think) you can rent poles and bait and fish in a stocked lake. That might be a fun alternative activity. My kids loved the arcade at CR as well.

Have a great trip despite the pirate: :thumbsup2
 
kaytieeldr said:
Okay, while it appears that GF is being inconsistent on this matter compared with the general Disney policy and accommodations of food allergies, it ALSO appears - from other posts here - that they are consistent in the policy regarding food served on the Pirate Cruise. Simply because the Albatross cruise did and does accommodate food allergies does not, to be honest, compel the Pirate cruise to do the same.

Okay, well, that explains why the Albatross cruise can accommodate peanut (and other) allergies while the Pirate cruise can't. BIG difference.

I don't believe anybody said that.

All the posts here are so nice and positive--do I really need to read yours? All of the things you have decided to pull out and comment on have validity, but there will always be someone like you who wants to add some fuel to a thread.

It is not unfair to expect consistency when you are dealing with one company who is offering an identical service where you were once accomodated and are now being told you cannot be. As I said earlier, the chef did NOT know if the kids eat on or off the boat and could not tell me for sure if the cruise is identical to the Albatross cruise. I think Disney and the respective recreation departments at the GF and BC should discuss their policy regarding what food they are willing to serve and who they are able to accomondate.

The idiot comment was made for a specific poster who apparently believes that I am willing to put my son's health at risk just so he can take a 2-hour cruise.

Why don't you comment on threads that actually apply to you.

Thanks to everyone for your understanding and support, I really do appreciate reading your responses and I'm glad that this thread has been helpful.
 
Selket said:
Thanks Dizcrazee - I will ask his allergist on our next appointment what she knows about it. I do realize the drug allows one to mistakenly digest some peanut (or touch it too I guess) without such a severe reaction - but doesn't mean they can eat peanuts!

I have read that Disney did a good job of accomodating allergic kids at the Princess Tea Party at the GF (not sure I have the name right). Of course that appeals more to girls than boys! I don't know if the OP's son likes fishing but at POR in the morning until 3 pm or so (I think) you can rent poles and bait and fish in a stocked lake. That might be a fun alternative activity. My kids loved the arcade at CR as well.

Have a great trip despite the pirate: :thumbsup2

Thanks for the suggestion. I will definitely look into it. I am anxiously awaiting to hear more about when we can book the Toy Story breakfast at MGM. Doing this will thrill DS 100 times more than the cruise.
 
I know this is going to sound rude, sorry. I do feel sorry for those with peanut allergies. DD and I suffer from environmental allergies, I know they are not the same. Disney can not change the menu. Someone mentioned that they once changed to cheese sandwhiches, what about lactose intolerant children? With so manyallergies and things there is no way to please everyone. Every cruise they will have to make some kind of menu chnage for everyone. DD went on that cruise a few years ago and there are a lot of children on it.

Someone mentioned that they don't need to eat on it. I would be very upset if they removed the lunch. No they don't have to have lunch, but that is part of the fun. DD thought it was cool to eat with the pirates and it would not be the same. What else could they serve that would please the majority of the children? Peanut butter is the closet to a universal children's meal that you will find.

I know as a parent that it hurts and is upsetting when your child can't do something. All children have something they can't do that is not fair, some are worse than others. However companies can't change for every child. I am sure with the exceptional customer service that Disney usually provides that if it is was possible they would do it.

BTW sorry for any errors, I am up way too early on a Saturday morning! :crazy:
 
Just a word on encouragement for all of you dealing with this allergy. You CAN outgrow it. Now, unfortunatly, it does not happen often, but my son was severly allergic, 4++ on a scale from 1-4 and outgrew it at age 5 and has eaten it ever since. So I know how you feel and what you are dealing with. I hope and pray your children will be one of the lucky ones also.

Best of Luck!
Alicia
 
ajwomic - was your son allergic to peanuts? My child's allergist told us that it's very rare to outgrow a peanut allergy and they are usually life-long. We keep hoping, though. There's more hope that she will grow out of the tree nut allergies, but there's no way to know!
 
I have a feeling that some of the unwillingness to make accomidations on the Pirate Cruise comes from the recent death of the peanut-allergic girl who died after kissing her boyfriend who had eaten peanuts hours before. Given that, just substituting something else for peanut butter uncrustables and the normal cleaning the boat gets might not be enough, even if the food is served off of the boat. And, they apparently do allow food on the Fireworks Cruises (or at least are not willing to guarantee that no one brought on any peanut-containing food). So, at least (as others have said), they were honest about their inability to guarantee a safe environment and gave you the information you needed to decide the cruise was not safe for your child.

The same situation would apply to the Albatross Cruise. Even though the kids eat off the boat there, it would be pretty easy to bring peanut residue onto the boat on their hands (or some kids may have eaten peanut buter before getting on, since it is pretty common "kid food"). I'm also pretty sure that boat is used for Illuminations Cruises. So, I'm not sure that they would be able to guarantee a safe environment either, if they really thought it totally through.

I think some of the apparent increase peanut allergies is an increase in people being aware of it.
When I was a school nurse in the mid-late 1980s, there were 2 children I was aware of who had peanut allergies in the elementary school I worked in. Most staff in the school were aware of the one boy, who always had someone who could administer the epipen around because he had needed it once in the past. Most people were not aware of the other other child, who had had much smaller reactions, was older and would not eat anything at school that had been not been brought from home. I'd be surprised if the incidence is that much higher now, but people are much more aware of it because of it being in the news. When the only news you had was the 1/2 national news program and a local 1/2 hour program, a girl who died after kissing her boyfriend who had eaten peanuts would maybe have made the local news, but would not have made the national news. It certainly would not have been broadcast once each hour or half hour, as it was with 24 hour a day news stations.
In the past, if she was in a small town, it would have been one of those sad things that everyone in the town knew about, but probably not outside. To the rest of us, it would be one of those "Is this an urban legend, or did it really happen somewhere" type things.
And, because of the internet, it's much easier to get in contact with other people who have the same situation as you do (whatever the situation is)

There are lots of things we haven't been able to do over the years because they were not accessible for my DD, so I can understand your disappointment. Hope you can find something just as enjoyable for your DS to do.
 
I just wanted to add that my DS did the Albatross cruise in early August and they ate lunch ON the boat. I don't know if that is typical now or if it was just that day, I didn't ask.
 
DeeCeeSW said:
It is not unfair to expect consistency when you are dealing with one company who is offering an identical service where you were once accomodated and are now being told you cannot be.

Reading all the other responses, the food policy on the Pirate Cruise is consistent with the food policy on the Pirate cruise.
Guests with peanut/tree nut allergies ARE accommodated everywhere else onsite; it's apparently this ONE experience where, for valid reasons stated by the chef, that such Guests cannot safely be accommodated.
As for "having" to read my responses? No, of course you don't - skip over anything with my name on it. But I don't get your "but there will always be someone like you who wants to add some fuel to a thread." Did you read something in my response that I didn't say? Because I didn't say anything fuelish. I responded to certain points in one or more of your posts.
 
I wonder if SueM is on to something? Could it be that some of the other WDW activities, which were more accomodating in the past, have now changed their policies? In light of that horrible accident involving the young girl kissing her boyfriend.

I think sometimes we forget that Disney is first and foremost a business. In this cost benefit anaylsis they've chosen to upset a few people, to protect the company from possible liability. That being said, I'm sorry your son can't experience the cruise.
 
kaytieeldr said:
Reading all the other responses, the food policy on the Pirate Cruise is consistent with the food policy on the Pirate cruise.
Guests with peanut/tree nut allergies ARE accommodated everywhere else onsite; it's apparently this ONE experience where, for valid reasons stated by the chef, that such Guests cannot safely be accommodated.
As for "having" to read my responses? No, of course you don't - skip over anything with my name on it. But I don't get your "but there will always be someone like you who wants to add some fuel to a thread." Did you read something in my response that I didn't say? Because I didn't say anything fuelish. I responded to certain points in one or more of your posts.

I guess you are still not getting the point that exceptions were made on BOTH cruises, where they substituted the PB & J for something else. There needs to be CONSISTENCY--if there IS a policy, then stick to it. Don't randomly giveth then taketh away.

And regarding future posts, thanks, I will skip over them. :wave:
 
For those of you who might be wondering what an Epi-pen is, it is a shot of epinephrine. It used to be referred to as "the bee-sting kit," when that was the big life-threatening allergy.

Also, this nut allergy isn't like being allergic to pollen or cats, where your eyes tear and you sneeze. Or like lactose intolerance, for heaven's sake. These kids have major hypersensitivity reactions, go into anaphylaxis, and die. A mother who takes it seriously isn't overreacting, overprotective, or crazy. She is just making sure her kid doesn't die.

Disney waitresses and chefs are really great. I think sending the chef out to the table isn't necessary. It just singles us out. I'd much rather have a pamphlet or something (the chef could sign it), but it is very nice of them.

Where Disney falls down, IMHO, is when I called to ask if there were ambulances at the parks, ready-to-go. They wouldn't tell me Yes or No. I'm assuming they do, for allergic kids, heart attacks, etc., but I don't KNOW, and can't risk my kid's life on it.

There ARE more kids with nut allergies, it isn't just that you hear about it more. And they research it like crazy. There are lots of schools of thought on why there is so much more autism, asthma, and this ridiculous nut allergy. What has changed?, that kind of thing. The bottom line is that they just don't know (yet). Personally, I'm on the side of the researchers who think it is connected to immunizations (the "baby shots.") It could very well be something else, I dunno, but that makes the most sense to me.
 
Just because it USED to be done doesn't mean it is now though. As others have said, perhaps with recent well publicised incidents the Disney policy on such things has changed and now they are no longer willing to accept children with severe allergies onto any of the unaccompanied boats? If you and your son are eating in one of the restaraunts it's probably easier to offer speacial treatment - also YOU are with your son and are therefore able to monitor what he's eating, who he's talking to, etc etc. Even if they changed the sandwiches - as others have said - there may be another child who's lactose intollerant or wheat inollerant or whatever. Also the other children may have had peanut butter for breakfast, the boat is probably used for other things and is unlikely to be disinfected sufficiently between uses to ensure no traces of peanuts are around.

I feel sorry for your son that he has to miss out but I think you have to be somewhat realistic - Disney are NOT going to risk you or another parent suing in these circumstances.
 
I know that peanut allergies are not like being lactose intolerant or other allergies. My point is that someone said that for their trip they substituted a cheese sandwhich. Well some kids can't eat cheese, my niece can't. If they go with a cheese sandwhich then when she goes do they need to make a substitution? What about all the other food allergies? It is sad but it can't be helped in a realistic manor.

What else could they serve that most children would eat?
 
Tiggernut_jadie said:
Just because it USED to be done doesn't mean it is now though. As others have said, perhaps with recent well publicised incidents the Disney policy on such things has changed and now they are no longer willing to accept children with severe allergies onto any of the unaccompanied boats? If you and your son are eating in one of the restaraunts it's probably easier to offer speacial treatment - also YOU are with your son and are therefore able to monitor what he's eating, who he's talking to, etc etc. Even if they changed the sandwiches - as others have said - there may be another child who's lactose intollerant or wheat inollerant or whatever. Also the other children may have had peanut butter for breakfast, the boat is probably used for other things and is unlikely to be disinfected sufficiently between uses to ensure no traces of peanuts are around.

I feel sorry for your son that he has to miss out but I think you have to be somewhat realistic - Disney are NOT going to risk you or another parent suing in these circumstances.

Have you read all the way through this thread? "Used to be done" was about 3 months ago. My son took the Albatross cruise last October. Nothing was mentioned regarding a change in policy when I tried to book the GF cruise or when I spoke to the chef. She did not even seem fazed that I was accomodated at the BC. Again (for the umpteenth time), Disney needs to be CONSISTENT. Be clear about no exceptions and substitutions being made from the get go. That's all!!!!
 
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