Minnesota!
Shoeless in Minnesota
- Joined
- Sep 15, 1999
- Messages
- 14,217
I do not know if you remember me telling you about my 4 year old god daughter Madison. She is the one that at 9 months they found she had a brain tumor at the base of her skull. Called an ependymoma. Well, they said she would not live through the weekend. Miracle child did. And, she survived 4 surgeries to remove, radiation and the subsequent follow ups, poking and prodding. This child has never known life without an MRI every 6 months. A nerve was cut in the surgery, and she has a lazy eye and loss of hearing in her right ear. She is just a miracle, though, because she was told that she would never walk, talk, run, jump, go to school, or even live to age 5.
Well, she went in for her 6 month scan on September 19. Unforuntaly, this one did not come out clean. She has a pea sized tumor on her brain stem - innoperable. Also, she has had her maximum lifetime dosage of radiation, so that is out of the question. They are going to be putting her on chemo pills and some pills to stop the blood flow to the tumor, but they basically said "This is the beginning of the end", and that they should do everything they want with Madison now, because her one year survival rate is 20 - 40%. After that, it just is not any better.
As I am talking to her mom last night (my best friend Brooke ), Madison is in the background learning to swallow skittles so she can take her pills. Maddie says to me "I want to take my pills now because I just want this tumor to go away". She is an incredible little girl - smart as all get out, runs, plays, dances, does gymanastics, is a smart *** like Aunty Andrea and just is a ball of fire - everthing she was never supposed to be. And now this. I just do not know.
Brooke and George are going to be buying a house here soon - they let Maddie pick out a puppy last night. They are taking her and baby sister Mackenzie to Disney World via Make a Wish, It is just heart breaking.
Thank you for listening, and in advance for your prayers and thoughts...
Well, she went in for her 6 month scan on September 19. Unforuntaly, this one did not come out clean. She has a pea sized tumor on her brain stem - innoperable. Also, she has had her maximum lifetime dosage of radiation, so that is out of the question. They are going to be putting her on chemo pills and some pills to stop the blood flow to the tumor, but they basically said "This is the beginning of the end", and that they should do everything they want with Madison now, because her one year survival rate is 20 - 40%. After that, it just is not any better.
As I am talking to her mom last night (my best friend Brooke ), Madison is in the background learning to swallow skittles so she can take her pills. Maddie says to me "I want to take my pills now because I just want this tumor to go away". She is an incredible little girl - smart as all get out, runs, plays, dances, does gymanastics, is a smart *** like Aunty Andrea and just is a ball of fire - everthing she was never supposed to be. And now this. I just do not know.
Brooke and George are going to be buying a house here soon - they let Maddie pick out a puppy last night. They are taking her and baby sister Mackenzie to Disney World via Make a Wish, It is just heart breaking.
Thank you for listening, and in advance for your prayers and thoughts...
