Mila is going to meet MICKEY! MAW

CeraMomof3

Earning My Ears
Joined
Feb 8, 2011
Messages
30
My name is Sarah, and I am mom to 3 beautiful kids. Robby is 6.5, Mila is nearly 4, and Shayla turns 2 in May .

Mila was born " healthy " but was anything of the kind. Just before her first birthday, she was diagnosed with a rare and deadly heart defect, and spent 5 weeks in the hospital. A year later, she was diagnosed with a brain defect and had two surgeries ( eight months apart ). She was granted a wish in August and is just now healthy enough to take it! We're going to disney!

Our dates are March 3-11, and we are staying at Give Kids the World.

This is Mila :
180131_10150124983686031_705446030_8098666_6906102_n.jpg


I am very clueless about Disney in general! HELP ME! The only thing we have " scheduled " is BBB on March 4 at 10:30.
 
You started your PTR!!! :woohoo: I can't believe Lisa and Mila have something in common (esp. since it IS so rare), thanks for the PM.:goodvibes Praying tomorrow goes well!
 
So glad you started a trip report. I am subbing, which means that I will get emails when you update.
 
Keeping Mila in my thoughts and prayers tomorrow. Boy...I can't believe how big she is getting.:scared1:Wasn't she only like 1 when you joined P2P
 

I made it over to your PTR!!!!!!!!! Mila is beautiful. I am praying for you all today and hoping that everything turns out with good news:hug::hug::hug: Lots of hugs for her and you today!!!!!!!!!!
 
Welcome, I am new to this Disney thing too! :laughing: But let me say everyone on here has soooo much information and alot of ideas and will help you plan the perfect trip! Your Mila is absolutely BEAUITFUL!! Her smile just lights up the room! Wishing you all the very best!
 
Hi! I just wanted to let you know that I'm subbing, and keeping your beautiful family in my prayers today. :hug:
 
I'm feeling the love!!!:banana::banana::banana:

And yes... Mila wasn't even 1 when I joined p2p... I joined just after she was 6 months. I wasn't very active on the medical boards until she was diagnosed with ALCAPA... Doesn't she look healthy? That grin will be the death of me - If you are sick, LOOK sick!

Talk to me about strollers... buy one there? Bring one from home? Rent one? Mila will need one for sure ( she is not good with long distances ) and Shayla will need one because she'sn ot even 2 ). I am bringing a good babycarrier ( or three or four ...:rotfl: ) But we will need to do SOMETHING other than mom carries Shayla the almost 2 year old on her back the whole time!

IN an hour, Mila leaves my house with Daddy to see the surgeon. AGH. :scared1::scared1: I don't think I can do this. I'm almost glad I can't go this time because even thinking about CALLING the neurosurgeon makes me nauseous!

Anyway, thanks everyone!
 
Talk to me about strollers... buy one there? Bring one from home? Rent one? Mila will need one for sure ( she is not good with long distances ) and Shayla will need one because she'sn ot even 2 ). I am bringing a good babycarrier ( or three or four ...:rotfl: ) But we will need to do SOMETHING other than mom carries Shayla the almost 2 year old on her back the whole time!

Our MAW coordinator asked if we'd need a double stroller and told me that GKTW would arrange for us to have one. You also have the option of getting ones from the park for free, but they may not be the most comfortable... especially for napping.
 
Did I mention you are leaving on Lisa's Birthday? :goodvibes AND, it will be CHRISTMAS :santa: at GKTW that night, you will NOT want to miss it from what I have read...it will be AMAZING!!!

Praying for EXCELLENT news for Mila today, then you can REALLY start to feel excited! :yay: It is only three weeks away (we have a countdown to that date as well)
 
Joining in as well. Praying for good news today. Mila is adorable.... her smile is contagious. If you have a stroller they prefer it may be worth taking. The ones at the park are hard. I agree that they might not be to comfortable for napping. I know gktw has some to use there (but not to take to parks)
 
About Christmas....

We don't celebrate Christmas ( We are Jewish ). I worry that my kids will spoil it for someone else by telling them that Santa is not real. Should we plan on skipping it?
 
AWESOME!!! That is wonderful news! I am so happy for you and your family! Your trip will be even more special!! All the very best!
:cool1::banana::banana::banana::cool1:
 














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