Make a Wish (and other organizations) - Wish Trippers UNITE! Volume THREE! :)

[myasma]

URGENT Prayer Request....

This was just posted on myasma's CaringBridge for Mya...

Unfortunately today I recieved the news I was dreading. Mya's AFP has in fact risen to over 5000 and marks a definite relapse. There is not really anymore treatment options left so I can do nothing but let her live out the rest of her life. This is so cruel and we need everyone's prayers right now. Thank you.

Please, please, please - First of all pray for them.

And then, if you are inclined, please go send her a message on her blog.

http://www.caringbridge.org/visit/myaroseharris

Thank you Maroo for posting this for me. Its been a really rough day and still a little surreal for me. Needless to say we will not be going to Disney this summer. Just yesterday, Mya was doing and feeling great, I just don't want to believe this.

 

[Wee Annie]

Shardai,

I posted on your CB site, but just wanted to say how heartbreaking this news is. I can't even imagine what you are going through right now, and just want to send you hugs and prayers. Praying for a miracle, and for strength for you and your absolutely beautiful daughter.

I hate this disease.

If there is anything we can do for her (and you), please let us know.

 

[cantwaittoseemickey]

I am also praying for you and Mya. I just posted on your CB page as well

 

[xanphylus]

Just wanted to let Mya know that our family will be praying for her miracle. She is such a beautiful little girl and deserves her very own miracle!

 

[myasma]

Shardai,

I posted on your CB site, but just wanted to say how heartbreaking this news is. I can't even imagine what you are going through right now, and just want to send you hugs and prayers. Praying for a miracle, and for strength for you and your absolutely beautiful daughter.

I hate this disease.

If there is anything we can do for her (and you), please let us know.

I am also praying for you and Mya. I just posted on your CB page as well

Thank you for your thoughts and prayers, I am thinking of surgery but want to weigh the risks versus the benefits first.

 

[maroo]

I know you will make a great decision for Mya.

I am so concerned about you - I hope that you have people that are surrounding you right now with the love and support that you need.

I hope you feel supported here.

We love you guys.

 

[noahsketomom]

We are praying for beautiful Mya!

Thank you Maroo for posting this for me. Its been a really rough day and still a little surreal for me. Needless to say we will not be going to Disney this summer. Just yesterday, Mya was doing and feeling great, I just don't want to believe this.

 

[myasma]

I know you will make a great decision for Mya.

I am so concerned about you - I hope that you have people that are surrounding you right now with the love and support that you need.

I hope you feel supported here.

We love you guys.

I feel very supported on the disboards. Unfortunately, I do not have much support family wise but have great church and hosital support. I hope I make the right decision for Mya too. Right now I think that any life preserving treatment will be more me being selfish and not wanting to let Mya go. I don't know whether it be more for me or her.

 

[that's nice]

Shardai-
We will be praying for you & Mya.. and that God gives you strength.

 

[Thumper321]

I feel very supported on the disboards. Unfortunately, I do not have much support family wise but have great church and hosital support. I hope I make the right decision for Mya too. Right now I think that any life preserving treatment will be more me being selfish and not wanting to let Mya go. I don't know whether it be more for me or her.

I am so sorry to hear about Mya's labs. I hope that you are able to make the decision that is best for you and your daughter. You are the only person who knows Mya like you do. You'll be in our thoughts.

 

[kellyw8863]

Shardai,

I am so, so sorry to read this update. You all are in my thoughts and prayers as you travel such a difficult road.

Kelly

 

[pipersmom]

I'm so sorry to hear this news. We're keeping you in our thoughts and prayers, Shardai

 

[kellyw8863]

A couple of questions for you all. We have decided that we are going to forgo US/IOA and possibly add on a fourth Disney day. There just enough there for our two girls to really enjoy. They're not huge Seuss fans, they don't know who the Simpson's are, and many of the rides are too "old" for them. So in lieu of going there, we will either hang at GKTW for the day, or if the girls are doing okay energy-wise, we will add on a fourth Disney day. Does anyone know if a fourth day can be added to the tickets that GKTW gives you? I know it will be at our expense, but I'm wondering if it's like a typical park-hopper pass where you can add days after purchase. Or, will we have to just buy a separate one day pass?

And then my second question has to do with Mayor Clayton's Birthday Party. IF we add on a fourth Disney day, we are looking at taking the girls to see Fantasmic. But, it will conflict with the birthday party at GKTW. What do you guys think? Is it something that can be missed without really being "missed," or is it one of the better evening funcitons at GKTW? The girls like fireworks, but if the party is particularly good, I'm thinking it won't be worth the aggravation to be out in the parks late, especially since they will be seeing Wishes earlier in the week. But then again, it will be our last night there and it seems like it might be a good way to end our trip. Thoughts?

Thanks so much!

Kelly

 

[pacrosby]

HI Kelly..........

No, you can't add on to the park hopper..........so it will cost you close to 400 hundred dollars for one extra day at Disney (that's just frightening isn't it LOL)

As far as Fantasmic vs. the Bunny Bash..................I'm probably going to be in the minority but I wasn't the hugest fan of Fantasmic. It was soooooo crowded, felt like a herd of cattle getting out of there, and I understand if you want good seats you really need to get there quite early which means spending a good hour just sitting and waiting. But of course, that's me. I know many people consider it a must-do. Having not gone to Mayor Clayton's Birthday Party though I can't tell you what you would or wouldn't be missing if you chose Fantasmic. Next time we go in the Spring we'll be heading for a quick spin on Toy Story Mania while the rest of the world's population is at Fantasmic

 

[pouty_tink]

Thank you Maroo for posting this for me. Its been a really rough day and still a little surreal for me. Needless to say we will not be going to Disney this summer. Just yesterday, Mya was doing and feeling great, I just don't want to believe this.

I am so sorry to hear this news. I am praying for you and your daughter. You are both in my thoughts & prayers

 

[maroo]

A couple of questions for you all. We have decided that we are going to forgo US/IOA and possibly add on a fourth Disney day. There just enough there for our two girls to really enjoy. They're not huge Seuss fans, they don't know who the Simpson's are, and many of the rides are too "old" for them. So in lieu of going there, we will either hang at GKTW for the day, or if the girls are doing okay energy-wise, we will add on a fourth Disney day. Does anyone know if a fourth day can be added to the tickets that GKTW gives you? I know it will be at our expense, but I'm wondering if it's like a typical park-hopper pass where you can add days after purchase. Or, will we have to just buy a separate one day pass?

And then my second question has to do with Mayor Clayton's Birthday Party. IF we add on a fourth Disney day, we are looking at taking the girls to see Fantasmic. But, it will conflict with the birthday party at GKTW. What do you guys think? Is it something that can be missed without really being "missed," or is it one of the better evening funcitons at GKTW? The girls like fireworks, but if the party is particularly good, I'm thinking it won't be worth the aggravation to be out in the parks late, especially since they will be seeing Wishes earlier in the week. But then again, it will be our last night there and it seems like it might be a good way to end our trip. Thoughts?

Thanks so much!

Kelly

As far as the tickets - you can't add days...so it would be $79 per adult and and extra $52 if you want to hop.

BUT...have you checked into Give a Day, Get a Day?? You could use those tickets!

Birthday Party...We thought it was fun. I think I would rank them....

Christmas Party - do not miss
Candyland Party - do not miss (for younger kids)
Birthday Party - try not to miss
and I am forgetting the rest at this moment. But maybe that would help you.

We, honestly, did NOT like Fantasmic. I was not prepared for how "dark" it was. But many, many people love it. William was scared by it (and he is 10) and the rest of us were just in the mood for "happy" Disney things, I guess.

Either way, you can't go wrong...

HI Kelly..........

No, you can't add on to the park hopper..........so it will cost you close to 400 hundred dollars for one extra day at Disney (that's just frightening isn't it LOL)

As far as Fantasmic vs. the Bunny Bash..................I'm probably going to be in the minority but I wasn't the hugest fan of Fantasmic. It was soooooo crowded, felt like a herd of cattle getting out of there, and I understand if you want good seats you really need to get there quite early which means spending a good hour just sitting and waiting. But of course, that's me. I know many people consider it a must-do. Having not gone to Mayor Clayton's Birthday Party though I can't tell you what you would or wouldn't be missing if you chose Fantasmic. Next time we go in the Spring we'll be heading for a quick spin on Toy Story Mania while the rest of the world's population is at Fantasmic

That is so funny! We didn't like it either.

Toy Story is MUCH better, IMO.

 

[maroo]

I feel very supported on the disboards. Unfortunately, I do not have much support family wise but have great church and hosital support. I hope I make the right decision for Mya too. Right now I think that any life preserving treatment will be more me being selfish and not wanting to let Mya go. I don't know whether it be more for me or her.

I am so glad you feel supported here.

Keep on posting with updates and how things are going and I think you will find these boards to be very supportive.

What a horrible decision to have to make.

The fact that your church is being supportive is the best news I have heard all day - that support will get you through lots of junk in life.

 

[cantwaittoseemickey]

I am so glad you feel supported here. We do not have alot of family support either. I am glad you have church support as well. I know you will make the right decision hun.

 

[cantwaittoseemickey]

For right now I doubt we will be doing fantasmic as well. I understand it is very loud and dark and those are things Ty does not tolerate. Unless he feels he would be ok with his headphones. But I looked it up on Youtube and to me it looks like it would be too much for him.

 

[pnutallergymom]

I feel kind of odd asking this question, but I know many if not all of the Wish children stay at GKTW. We were told that we may stay on property as part of Kaylins wish.. Both my hubby and I have some reservations about staying there (GKTW) for a few reasons. But Im wondering since it will be the only time she would ever experience that should we just stay there. Can someone enlighten me a little more about GKTW?

We are actually staying at AKL for Brigitte's wish trip. We are thrilled with it. We feel like we are getting the best of both worlds. We have full access to GKTW whenever we want...but staying on property for us is great.

We have had the opportunity to stay onsite at POR for a family vacation and also offsite at Bonnet Creek. I think it is totally individual, but our vacation offsite was less than desired.

MAW is putting us in a 2bdr Villa at Kidani Village for Brigitte's trip. NEVER in a million years, would we be able to do this. A night or two, maybe, but never a week. We will be hitting US/IOA...but probably only for a day or so...the rest we will be at Disney World. We hate having to deal with driving all over the place etc. Not that its complicated, its just not our thing. We are all about being immersed in the Disney magic 24/7.

I can't say anything about GKTW...since we have never stayed there. I just think it is great that we get the best of both worlds. We do plan on doing Mayor Claytons Birthday Party on our check in day since we have orientation at the same time and are hoping to hit the Christmas Party.

For us, it is just the right thing to do. Feel free to ask me any questions. I am in the minority here....but happily so!!!

Congrats on the wish!!!