Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[Owensheart]

Congratulations to all who have received dates or who have otherwise received wonderful news. On the contrary, praying for anyone in need of pixie dust. As for my family and me, my local laboratory called my mom and told us to call our doctor because it was an emergency. It was the test results. The CA 125 results( a tumor marker). They elevated a total of 89 points since last time. It was under normal range last time at 19 but now it's 108.4, well above the upper range limit. We're going to see the gynecologist on Thursday.

We will keep her in our prayers. That is scary!

 

[Happy Dreams1]

We will keep her in our prayers. That is scary!

Thank you. In case you didn't know, I'm the girl.

 

[Owensheart]

I've been quiet on here because we have no new news. Owen met his wish granters in march and we haven't heard a peep since. I know he's approved for his wish in December...just waiting on dates.

We will travel to Stanford in a couple weeks for Owen's cardiac cath and MRI to determine if he's a good candidate for his 4th open heart surgery (the 3rd palliative surgery for single ventricles.) if Dr Hanley decides to do surgery, we will return to Stanford the end of August for surgery.

I am hoping for dates soon so that I can focus on planning and ADRs to take my mind off of all the medical garb. I need to figure out how to subscribe to threads. So far, I think we are the only early December family on here, but hopefully more will pop up as time passes.

I love reading all your PTRs and amazing TRs.

 

[Happy Dreams1]

I've been quiet on here because we have no new news. Owen met his wish granters in march and we haven't heard a peep since. I know he's approved for his wish in December...just waiting on dates.

We will travel to Stanford in a couple weeks for Owen's cardiac cath and MRI to determine if he's a good candidate for his 4th open heart surgery (the 3rd palliative surgery for single ventricles.) if Dr Hanley decides to do surgery, we will return to Stanford the end of August for surgery.

I am hoping for dates soon so that I can focus on planning and ADRs to take my mind off of all the medical garb. I need to figure out how to subscribe to threads. So far, I think we are the only early December family on here, but hopefully more will pop up as time passes.

I love reading all your PTRs and amazing TRs.

Maybe you should try call, just once to see if it's they're really or busy or had emergency wished which in turn has delayed Owen's wish granting process. Because my mom calls, everything is going along quickly. But before she called, we waited like 8 months JUST to meet the wish granters!

 

[xanphylus]

No No No! We have figured out that the reason critters (and for some reason it it usually owls) are sewn upside down is so the wearer can see them while wearing the item.

So the moral of the story? You are in good company as SEVERAL others have sew items upside down.

I must say, my son was very happy when he noticed the "who-who's" as he calls them, looking up at him! Next try, they WILL be the right way! I am determined to do this..... Although, the dress I am attempting.... may or may not work in the long run- but hey, I am trying!

 

[danut]

Congratulations to all who have received dates or who have otherwise received wonderful news. On the contrary, praying for anyone in need of pixie dust. As for my family and me, my local laboratory called my mom and told us to call our doctor because it was an emergency. It was the test results. The CA 125 results( a tumor marker). They elevated a total of 89 points since last time. It was under normal range last time at 19 but now it's 108.4, well above the upper range limit. We're going to see the gynecologist on Thursday.

Prayers being sent from us too.

 

[disneymommy78]

I'm glad to hear all the good news about Wishes being granted/approved.

We got the call yesterday that Leann's wish to cruise on the Disney Dream has been approved! We do not have dates yet, but requested February, May, or June of next year.

We hope to have dates soon! Keeping the secret from her until the Big Reveal is going to be tough.

 

[katieb4]

I'm one of the ones who is learning to sew, but hasn't quite gotten the hang of it yet... I mean, really, I tried to make my DS2 a pair of shorts the other day, and the owls were all upside down when I finished! So much for my sewing skills and pride of wanting to finally have something to show on the disboutique thread.... But seriously, I do pixie dust when I can and it is a blast to see the kiddos faces in pictures when they get your gift, no matter what it is!



Sooooo....maybe your NOT the one to ask for help in regard to this pile of "I need a button sewn on Mom's" I've got here? I need to tackle that soon...needles and I get along only slightly better then irons!

Congratulations to all who have received dates or who have otherwise received wonderful news. On the contrary, praying for anyone in need of pixie dust. As for my family and me, my local laboratory called my mom and told us to call our doctor because it was an emergency. It was the test results. The CA 125 results( a tumor marker). They elevated a total of 89 points since last time. It was under normal range last time at 19 but now it's 108.4, well above the upper range limit. We're going to see the gynecologist on Thursday.

Prayers!

 

[maroo]

Originally Posted by livndisney


I know we have a lot of new families. I want to say WELCOME! I know your child's Wish trip will be magical!


I would also like to remind everyone that the Big Gives are not something you can "sign up" for.

Please don't message members asking for your child to be included. Asking puts us in a postion of having to say no. We really don't want to do that. Posting on other threads does not increase your child's chances. The way the Big Give works is we find you. There is not anything for you to do to make it happen. The planners of the Big Give are in contact with each other and planning Gives months in advance. The Gives are a gift, it's not something to ask for or strongly hint at. If you are chosen for a Give, you will be notified. We are fairly persistent if we don't get an answer the first time we PM too!


We are volunteers who sew for Wish kids as time and money allow. We are not part of MAW and don't get funding. We are Moms and Grandmas, who work, manage our families, attend school, homeschool and sew when we have spare time.

Even without a Big Give, EVERY child will have a special and magical trip!

To all of those getting ready for your trip Have Fun and enjoy a magical week with your child. For those still waiting for dates, hang in there-magic is around the corner!


I am posting this here so that I can link it on the 2nd post...

This is info, re: The Big Give that we want to put on the FAQ page.

 

[maroo]

I have a lot of catching up to do!

First, I have updated all of the pre-trippie dates I could find...so if I missed yours, please let me know! I cleaned out my PM box, so hopefully it won't fill back up! lol

Now...I am going back to read up on posts...

Hope everyone is doing well!!!

 

[maroo]

You walk around with candy corn and never told my DD? You will soooooo be her best friend when she finds out..............

lol

I just shared a pretty big announcement on our PTR for our oldest daughter. Please join us in celebrating?

This was amazing!! Still is!!

 

[maroo]

So I stared making my reservations for character meals. Em has a g-tube and is 99% fed through that. She can eat grapes, rice and bananas. Will they charge me full price for her even though she really can't eat?

Also Em really wants to go to bibbty for her birthday. I made the reservations for her and her sister, but does MAW do that for us? I could always cancel if that's the case, but we are less then 3 months out and I really wanted to make sure I got it.

Thanks!!
Melissa
Mom to Emily (wish kiddo) and Abby (best little sister)

This can vary depending on the restaurant and such...but normally, if your child doesn't eat they will at least reduce the charge. And this happens even more often if they see the magic button and realize you are on a wish trip.

Feel free to ask the CM, too or even ask for a manager if they still think they have to charge you. Managers at Disney can make miracles happen sometimes!

Hi everyone!!

I have been so busy I haven't had a chance to do much of anything lately, let alone update our trip report!! YIKES!! I am waaaay behind on that!!

Got a call from Dream Factory Tuesday, telling me that we were in danger of losing our reservation at GTKTW, because they had forgotten to have me fill out the GTKTW forms!! YIKES!!! We are less than 3 months out & you are just telling me this?!?!?! So I had to hurry & rush the forms to one of our doctors to be filled out in hopes that we don't lose our time!! So I am hoping the doc gets that form to me ASAP!!! I know one disappointed little girl if our trip gets pushed back!!

But in happy news...we are only 85 DAYS out!!!

Time to get back to some serious trip planning!! I will update our trippy ASAP!!! Glad to be back in the swing of things...not to get caught up on everyone else's TR's!!!

Hope this worked out!!!!!

How was that for speed?!?!? The trippy has officially been updated!!

he he....

OK MAW said in the expenses of this meal would be covered by them, im not sure how much food allowence we have otherwise but im hoping to snack alot at parks and then eat at GKTW

Snacking a lot at the parks can be almost as expensive as eating a meal....

On thing we did was buy snacks before we left and at Walmart and ate those. We also took full advantage of the free water that you can get at any counter service restaurant at Disney - drinks are expensive!

And eating at GKTW will be yummy and free! Enjoy, enjoy!!

I updated your dates!

You may want to find out if that meal is prepaid or if you are too include the cost from your dd's expense check. Expense checks vary greatly and most Wish Families do not find out the amount until right before the trip.

very true!

Hi there! I am new to the board.. I posted a new thread the other day and was told to check out this one!! I read a few pages and am going to go back and read some more!! There is so much great information on this site!!

Last Monday I was called and was told that my Daughter is being granted a wish from the Children's Wish Foundation!! We are just waiting for the welcome package! I was a bit concerned about how soon Disney would happen because besides my daughter and I my Mom would come with us (I am a single Mom w/ no Dad in the picture) My Mom was recently diagnosed with Breast Cancer and will be having Surgery in mid Sept but it could be moved up! And we were hoping to maybe go before her surgery so she would be able to come and I don't really have any other support here!

My daughter has Neurofibromatosis with 5 brain tumors (we are going for her 24th MRI July 28th to check her whole body we normally just do her head) And she also has Sensory Integration Dysfunction.

She has always wanted to go to Disney and is going to be so excited to tell her that her dream will be coming true!!

to the DISboards!! And to the wish trippers thread! We are so glad to have you!

Make sure the wish organization understands the extenuating circumstances...I think many of the organizations can put together a pretty quick trip!

Maroo, please could maybe this could be posted on the front page? I've had some inquiries too...

yes! livndisney PM'd it to me and I added it to the FAQ page.

Congratulations to all who have received dates or who have otherwise received wonderful news. On the contrary, praying for anyone in need of pixie dust. As for my family and me, my local laboratory called my mom and told us to call our doctor because it was an emergency. It was the test results. The CA 125 results( a tumor marker). They elevated a total of 89 points since last time. It was under normal range last time at 19 but now it's 108.4, well above the upper range limit. We're going to see the gynecologist on Thursday.

Was this your CA125 results? Or your Mom's? I work in this field - feel free to PM me if you have any questions. Let us know what they figure out on this.

 

[IrishIz]

I hope I'm doing this right.

My daughter is being granted a wish from MAW. She had wished for a Disney Dream Cruise but that's not going to happen. They said it would be over a year IF they could do it and they aren't sure they could actually do it. She was bummed but life goes on.

Her next request was to stay at GKTW and do the parks. So that's what is being worked on and should be happening.

They give you tickets for everyday you are there. I want her to have time to enjoy GKTW. So they said we can extend the trip on our own dime which is fine. This will give her at least a day to have fun at GKTW. We are wondering if anyone has had luck adding on days to their WDW tickets. If we can't it's not a big deal but if we can...we may do that too.

It's a bummer she couldn't get her first wish but apparently it would have been easier to go to the moon LOL. We are just excited that she's getting a wish, that she's going to feel as special as she is. She's such a joy and I can't wait to see her smiling!

 

[thesaurinis]

I hope I'm doing this right.

My daughter is being granted a wish from MAW. She had wished for a Disney Dream Cruise but that's not going to happen. They said it would be over a year IF they could do it and they aren't sure they could actually do it. She was bummed but life goes on.

Her next request was to stay at GKTW and do the parks. So that's what is being worked on and should be happening.

They give you tickets for everyday you are there. I want her to have time to enjoy GKTW. So they said we can extend the trip on our own dime which is fine. This will give her at least a day to have fun at GKTW. We are wondering if anyone has had luck adding on days to their WDW tickets. If we can't it's not a big deal but if we can...we may do that too.


It's a bummer she couldn't get her first wish but apparently it would have been easier to go to the moon LOL. We are just excited that she's getting a wish, that she's going to feel as special as she is. She's such a joy and I can't wait to see her smiling!

So Sorry she didn't her first wish/dream. Our son was just granted a dream trip and he asked to go on the Disney Dream. We are traveling in September as that was the first date they could get for him. He is beyond excited and can't wait to go on the aqua duck. Honestly I dont know if he will make it on that because he has terrible anxiety and being enclosed might be a issue once he really sees it in person. I hope not so he can experience the whole thing, but if so its ok. He will still have fun with all the other activities on board. But I must say your daughter will have fun even at Disney. Good luck with your planning.

 

[mysevendwarfs]

I hope I'm doing this right.

My daughter is being granted a wish from MAW. She had wished for a Disney Dream Cruise but that's not going to happen. They said it would be over a year IF they could do it and they aren't sure they could actually do it. She was bummed but life goes on.

Her next request was to stay at GKTW and do the parks. So that's what is being worked on and should be happening.

They give you tickets for everyday you are there. I want her to have time to enjoy GKTW. So they said we can extend the trip on our own dime which is fine. This will give her at least a day to have fun at GKTW. We are wondering if anyone has had luck adding on days to their WDW tickets. If we can't it's not a big deal but if we can...we may do that too.

It's a bummer she couldn't get her first wish but apparently it would have been easier to go to the moon LOL. We are just excited that she's getting a wish, that she's going to feel as special as she is. She's such a joy and I can't wait to see her smiling!

They won't add days on to complimentary tickets. I checked as we chose to do the same thing and add on days. We shopped around and unfortunately I missed out on any deals as Disney was in the process of raising their ticket prices. I purchased direct from Disney before the price went up. There are some reputable discount ticket places, just do your research and make sure you are not buying from a "Ricky" the 7-11 ticket guy that we ran into trying to buy our used tix. . FYI, you don't have to use all your Disney, Universal or Sea World days while you are at GKTW. In my opinion, it is actually difficult to use all the park days you are given while you are there without missing a lot of what is going on in the village, especially with the first day as orientation and check in. I called GKTW before our trip and they told me the tickets were good for 14 days from first entry to the parks. Just remember that the button "officially" is only good during your GKTW stay. This would probably be most noticeable at Sea World where they give you free trays of fish to feed dolphins, sting rays, sea lions and sharks, as well as free parking with your button. We had a guest assistance card our dd's medical issues dated for our full stay at Disney and she was still treated royally. Congratulations on her wish. Our entire family loved GKTW!

 

[IrishIz]

So Sorry she didn't her first wish/dream. Our son was just granted a dream trip and he asked to go on the Disney Dream. We are traveling in September as that was the first date they could get for him. He is beyond excited and can't wait to go on the aqua duck. Honestly I dont know if he will make it on that because he has terrible anxiety and being enclosed might be a issue once he really sees it in person. I hope not so he can experience the whole thing, but if so its ok. He will still have fun with all the other activities on board. But I must say your daughter will have fun even at Disney. Good luck with your planning.

I don't think my daughter would like the cruise as much as she thinks she would. She would NEVER do the aquaduck...NEVER. I don't know what else she would really do on there. Our other kids are such different ages I think I was also concerned we wouldn't be doing much as a family as they were talking about the clubs and they each had a different club.

 

[maroo]

I hope I'm doing this right.

My daughter is being granted a wish from MAW. She had wished for a Disney Dream Cruise but that's not going to happen. They said it would be over a year IF they could do it and they aren't sure they could actually do it. She was bummed but life goes on.

Her next request was to stay at GKTW and do the parks. So that's what is being worked on and should be happening.

They give you tickets for everyday you are there. I want her to have time to enjoy GKTW. So they said we can extend the trip on our own dime which is fine. This will give her at least a day to have fun at GKTW. We are wondering if anyone has had luck adding on days to their WDW tickets. If we can't it's not a big deal but if we can...we may do that too.

It's a bummer she couldn't get her first wish but apparently it would have been easier to go to the moon LOL. We are just excited that she's getting a wish, that she's going to feel as special as she is. She's such a joy and I can't wait to see her smiling!

to the wish trippers thread!!

I, honestly, think she is going to be so happy with her Disney Wish!

Cruise wishes are great - and it is a great "value" as those cruises are quite pricey! - but you get a lot of perks on the Disney Park trip that are only available to wish families.

I see someone already answered the ticket question... they are correct, you can't "add" days to complimentary tickets...

You can use them for 14 days, though. If we could do the trip over again, we would have added some days for resting and spending time at GKTW - so I am glad you are going to be able to do that!

The Disney tickets do cost quite a bit to purchase because those first few days on the ticket are pricey! Adding days doesn't cost much.

IF you are going during a time that MNSSHP or MVMCP (the Halloween or Christmas parties) are going on, then that is a fantastic way to get a high value "ticket"... the tickets are closer to $60-70 and you can arrive at the MK at 4:00 pm and stay till midnight...which basically gets you an extra "day"...

IF you are traveling during that time of year, then I would totally do at least one of those parties, maybe even two parties, instead of buying extra Disney tickets...

Otherwise, I think I would go ahead and do Sea World for sure during your official week and maybe one day each at Disney and Universal to do the biggest things - like Harry Potter world at Universal and do her favorite Disney park with the magic button. The button officially stops "working" after the last day on the button...so you will want to try to do as many character lines as possible (because that is the biggest thing the button helps with that a typical GAC can't help you with, for the most part). I would also consider doing MNSSHP or MVMCP within the official button time, too.

Many families have said the button still "works" after the official trip is over - it won't work for months after, obviously, but as long as you are still on your magical trip, most CM's will recognize it and allow it to help while you are on the trip - but don't count on all CM's doing this.

Generally using a GAC card after the last date is something that can get a little bit trickier...so you will want to get a new one re-issued. Depending on who you talk to, families have reported that GKTW gave them an extended one and families have reported that Disney extended theirs, too - just depends on who you talk to...

I don't think my daughter would like the cruise as much as she thinks she would. She would NEVER do the aquaduck...NEVER. I don't know what else she would really do on there. Our other kids are such different ages I think I was also concerned we wouldn't be doing much as a family as they were talking about the clubs and they each had a different club.

It sounds like things are working out great with this! I am sad she didn't get her first wish - but I think she will love GKTW and the trip will be magical!

How old is your daughter?

 

[IrishIz]

uch.

IF you are going during a time that MNSSHP or MVMCP (the Halloween or Christmas parties) are going on, then that is a fantastic way to get a high value "ticket"... the tickets are closer to $60-70 and you can arrive at the MK at 4:00 pm and stay till midnight...which basically gets you an extra "day"...

I would also consider doing MNSSHP or MVMCP within the official button time, too.

It sounds like things are working out great with this! I am sad she didn't get her first wish - but I think she will love GKTW and the trip will be magical!

How old is your daughter?

It's funny because she has been to Disney a lot so a lot of people were shocked she wanted this. They are missing that she wants to go to GKTW and that's why I extended the trip. She wants to do GKTW yet there really isn't time for it. So this will be nice.

Now it might be because I'm tired but I can't figure out what MNSSHP or MVMCP means. We will be going in August. We are trying to avoid pulling them out of school since Audrey may be needing surgery as well as one of my older children. We are okay with pulling them out but knowing there could be another time to pull them out we want to limit it if we can.

My daughter is 7 (8 in October). She has cerebral palsy (though honestly looks good and I hear she doesn't look disabled) and Ehler Danlos. These 2 things mixed together is kind of messy. She's tube fed and has a hard time tolerating the feedings because of the volume so she hasn't grown in over a year though with a formula change it looks like she might start growing. She has issue with eating and choking. She can't eat without an adult around because you never know when she's going to choke and what she's going to choke on. She thankfully is rarely sick but when she does get sick it doesn't go well at all.

This will be a nice break because after she gets home she may having surgery on her foot and her brother might be getting a feeding tube.

I really think she will like this better than a cruise.

 

[livndisney]

It's funny because she has been to Disney a lot so a lot of people were shocked she wanted this. They are missing that she wants to go to GKTW and that's why I extended the trip. She wants to do GKTW yet there really isn't time for it. So this will be nice.

Now it might be because I'm tired but I can't figure out what MNSSHP or MVMCP means. We will be going in August. We are trying to avoid pulling them out of school since Audrey may be needing surgery as well as one of my older children. We are okay with pulling them out but knowing there could be another time to pull them out we want to limit it if we can.

My daughter is 7 (8 in October). She has cerebral palsy (though honestly looks good and I hear she doesn't look disabled) and Ehler Danlos. These 2 things mixed together is kind of messy. She's tube fed and has a hard time tolerating the feedings because of the volume so she hasn't grown in over a year though with a formula change it looks like she might start growing. She has issue with eating and choking. She can't eat without an adult around because you never know when she's going to choke and what she's going to choke on. She thankfully is rarely sick but when she does get sick it doesn't go well at all.

This will be a nice break because after she gets home she may having surgery on her foot and her brother might be getting a feeding tube.

I really think she will like this better than a cruise.

MNSSHP or MVMCP

Mickey's Not So Scary Halloween Party and Mickey's Very Merry Christmas Party. If you are going in August neither of these parties are held then.

 

[katieb4]

Does GKTW give complimentary tickets to the not so scary party???