Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[chelleydi77]

New update on Lillianna- mom is very scared. Via mom "Plz be praying. Lillianna has started vomiting and lethargic. Neuro resident on the way. I'm so scared."

She needs all the happy pixie dust/prayers/good thoughts we can throw her way guys. She was doing great last night, and now this. Mom is panicking and unsure.

Many, many prayers for Lillianna!!!

 

[Em'swish]

New update on Lillianna- mom is very scared. Via mom "Plz be praying. Lillianna has started vomiting and lethargic. Neuro resident on the way. I'm so scared."

She needs all the happy pixie dust/prayers/good thoughts we can throw her way guys. She was doing great last night, and now this. Mom is panicking and unsure.

How scary, lots of prayers her way!

Melissa
mom to Emily (wish kiddo) and Abby (best little sister

 

[Synovial]

I just wanted to say I hope everyone has a nice 4th of July and are able to enjoy the fireworks and get some of the medical things and bills of your mind for a little while, like I need to do. Happy 4th! Synovial

 

[Synovial]

hey guys-
I have been mia for a few weeks as I have had to sale my business. My dd health is not up to me continuing with my retail store. It has been a VERY emotional week and we are waiting to hear back from her wish granters. They told us it would take a couple of weeks. I called the wish granter at the 3 week point and she said there were lots of kids waiting on approval right now and it was just taking longer. It has now been almost 5 weeks and still no word. Would you call her back? I don't want to seem like a pest...we could just REALLY use some good news right now. We are planning the trip as if it is already approved as we are at the 6 month point and I am afraid if I don't make dining reserv we might not get them. Anyone else's approval take that long? Thanks!

I'm so sorry you had to sell your business. I had to do the same thing and I know how heartbreaking it is to put so much of yourself into something and have to let it go. I had a flower shop and it took too much of my time away from both my sons. My wish child needed more attention than I could give him at the time, so I ended up selling. I was very lucky though. Lots of flower shops in my area weren't able to sell and just went out of business. I cried for 2 days when I realized I had to sell. I relly do feel for you. Synovial

 

[xanphylus]

I just wanted to say I hope everyone has a nice 4th of July and are able to enjoy the fireworks and get some of the medical things and bills of your mind for a little while, like I need to do. Happy 4th! Synovial

Prob will see you at the parade!! I dunno if John is going yet, but me and Davy are gonna go with mom! We will skip the fireworks though- Davy really isn't into loud noises right now.... although ear plugs did work on the train today.... hmmmmmm

Update on Lillianna: She is being kept over for another night and they did a new CT, which the head neurosurgeon said looks good. The next step may be a shunt tap (testing fluid from the shunt I believe and checking brain pressure? Not really sure....) Hoping the best for both L and her mommy. Thanks all for all the prayers and happy thoughts- mom is very appreciative.

 

[brookerene]

Back with another question....I may be getting ahead of myself, but I have seen all kinds of pictures of the villas at GKTW, but most were for smaller families. It seems they have a kids bedroom with two beds and an adult bedroom? What do they do for larger families? We have 2 adults and 4 children? Thanks!

there is plenty of room.... there are two beds in the kids room, an extra roll out bed and also the counch pulls out for a bed.... so no problem on fitting you all!

 

[brookerene]

New update on Lillianna- mom is very scared. Via mom "Plz be praying. Lillianna has started vomiting and lethargic. Neuro resident on the way. I'm so scared."

She needs all the happy pixie dust/prayers/good thoughts we can throw her way guys. She was doing great last night, and now this. Mom is panicking and unsure.

Will do

 

[Mom2mitokids]

Back with another question....I may be getting ahead of myself, but I have seen all kinds of pictures of the villas at GKTW, but most were for smaller families. It seems they have a kids bedroom with two beds and an adult bedroom? What do they do for larger families? We have 2 adults and 4 children? Thanks![/


We had 7 people in the Villa and fit just fine. If you look on my TR.. I have some pictures with the cot in the kids room.

 

[danut]

hey guys-
I have been mia for a few weeks as I have had to sale my business. My dd health is not up to me continuing with my retail store. It has been a VERY emotional week and we are waiting to hear back from her wish granters. They told us it would take a couple of weeks. I called the wish granter at the 3 week point and she said there were lots of kids waiting on approval right now and it was just taking longer. It has now been almost 5 weeks and still no word. Would you call her back? I don't want to seem like a pest...we could just REALLY use some good news right now. We are planning the trip as if it is already approved as we are at the 6 month point and I am afraid if I don't make dining reserv we might not get them. Anyone else's approval take that long? Thanks!

I am so sorry to hear that you had to sell your business I think I would call back, just to ask for an update..

New update on Lillianna- mom is very scared. Via mom "Plz be praying. Lillianna has started vomiting and lethargic. Neuro resident on the way. I'm so scared."

She needs all the happy pixie dust/prayers/good thoughts we can throw her way guys. She was doing great last night, and now this. Mom is panicking and unsure.

.Sending lots and lots of prayers

I just wanted to say I hope everyone has a nice 4th of July and are able to enjoy the fireworks and get some of the medical things and bills of your mind for a little while, like I need to do. Happy 4th! Synovial

You too!

there is plenty of room.... there are two beds in the kids room, an extra roll out bed and also the counch pulls out for a bed.... so no problem on fitting you all!

Thank you. That is good to know!

Back with another question....I may be getting ahead of myself, but I have seen all kinds of pictures of the villas at GKTW, but most were for smaller families. It seems they have a kids bedroom with two beds and an adult bedroom? What do they do for larger families? We have 2 adults and 4 children? Thanks![/


We had 7 people in the Villa and fit just fine. If you look on my TR.. I have some pictures with the cot in the kids room.

Thank you! I will check it out!

 

[danut]

UGH! What a night! Brendan had his stitches removed Friday and changed from a long leg cast to a short leg cast. Well, last night we were in the ER for almost 5 hours getting the cast cut down because he was casted too high and it was causing swelling and pain. I thought they would just change out the cast for a new one, but instead he is making me go to the surgeon to have done, Praying a nurse will do it since the surgeon I believe is out of the country for a few weeks. Anyhow, we are exhausted. Didn't get home until two am. Luckily no plans today except to clean, so hopefully we can rest. Hope everyone is having a good holiday weekend.

 

[xanphylus]

Final update on Lillianna! She was released this morning! Woot! They think she had a reaction to the artificially sweetened applesauce the dietician sent up.... go figure. She normal eats unsweetened and now they think they found a new allergy. Win some, lose some. But hey! She is doing good now and they are hoping for great improvement on her gross motorskills and such now too!

 

[crashbb]

Final update on Lillianna! She was released this morning! Woot! They think she had a reaction to the artificially sweetened applesauce the dietician sent up.... go figure. She normal eats unsweetened and now they think they found a new allergy. Win some, lose some. But hey! She is doing good now and they are hoping for great improvement on her gross motorskills and such now too!

YAY!!! Such great news.

A new allergy is no fun, but that explanation is much better than other possible explanations.

 

[vegaangel82]

Gabriella just got through a rough few weeks.... her heart went into rejection and after 15 days in the hospital, we got things under control. We are going to be watching her closely! Need to keep her healthy for her September MAW trip!!!

 

[chelleydi77]

Final update on Lillianna! She was released this morning! Woot! They think she had a reaction to the artificially sweetened applesauce the dietician sent up.... go figure. She normal eats unsweetened and now they think they found a new allergy. Win some, lose some. But hey! She is doing good now and they are hoping for great improvement on her gross motorskills and such now too!

Wonderful news!!!

Gabriella just got through a rough few weeks.... her heart went into rejection and after 15 days in the hospital, we got things under control. We are going to be watching her closely! Need to keep her healthy for her September MAW trip!!!

She's in my prayers!

 

[kimmg]

Final update on Lillianna! She was released this morning! Woot! They think she had a reaction to the artificially sweetened applesauce the dietician sent up.... go figure. She normal eats unsweetened and now they think they found a new allergy. Win some, lose some. But hey! She is doing good now and they are hoping for great improvement on her gross motorskills and such now too!

I'm just catching up on the thread. That is such great news! Wow about the applesauce. It's amazing what allergies can do. I will keep her in my prayers that they see continued improvement.

 

[xanphylus]

Thanks all!!!! I know her mommy would be so happy to see all the kind words... and I may have to forward her the thread, just to see!

 

[blessedmom4]

Gabriella just got through a rough few weeks.... her heart went into rejection and after 15 days in the hospital, we got things under control. We are going to be watching her closely! Need to keep her healthy for her September MAW trip!!!

Prayers for all of you!

I'm just catching up on the thread. That is such great news! Wow about the applesauce. It's amazing what allergies can do. I will keep her in my prayers that they see continued improvement.

So happy you are back!

Thanks all!!!! I know her mommy would be so happy to see all the kind words... and I may have to forward her the thread, just to see!

You have to send her ours to then Jenn, so many are praying for her, Thanks to YOU!!!!







I want to wish EVERYONE a very HAPPY and SAFE Fourth of July!


Judy, Pete, Christian, David, Rachel, Lisa and Bandit (now YOU figure out which dwarf each of us are)

 

[blessedmom4]

I just shared a pretty big announcement on our PTR for our oldest daughter. Please join us in celebrating?

 

[katieb4]

UGH! What a night! Brendan had his stitches removed Friday and changed from a long leg cast to a short leg cast. Well, last night we were in the ER for almost 5 hours getting the cast cut down because he was casted too high and it was causing swelling and pain. I thought they would just change out the cast for a new one, but instead he is making me go to the surgeon to have done, Praying a nurse will do it since the surgeon I believe is out of the country for a few weeks. Anyhow, we are exhausted. Didn't get home until two am. Luckily no plans today except to clean, so hopefully we can rest. Hope everyone is having a good holiday weekend.

ER trips are sooooo exhausting! Its a minimum of 4 hours there at least, and for us, 99% of the time it means an admit, so I wish they'd just hurry up and get us where we need to go. There seems to be so much running around and asking questions and wondering what to do there. I hope the nurse can help out!

Final update on Lillianna! She was released this morning! Woot! They think she had a reaction to the artificially sweetened applesauce the dietician sent up.... go figure. She normal eats unsweetened and now they think they found a new allergy. Win some, lose some. But hey! She is doing good now and they are hoping for great improvement on her gross motorskills and such now too!

PTL!! At least this allergy isn't to horribly hard to avoid. So glad she is feeling better!

Gabriella just got through a rough few weeks.... her heart went into rejection and after 15 days in the hospital, we got things under control. We are going to be watching her closely! Need to keep her healthy for her September MAW trip!!!

OH! How very very scary!!!! Prayers for peace and calm and for her body to become friends with her heart!



We are doing OK here, Gabbie's blood transfusion a week ago made this week a pretty good one. Her Chemo was cut down to 50% so that helps too. She is undergoing steroid treatment this week however. She take 10 pills over 5 days, and its pill number 7 (which she took last night) that starts her on the anxiety ick feeling side of things. So we'll see how it goes here for the 4th.

Sure hope everyone has a super day!! No extra issues and just a day to forget the trials.

 

[danut]

Final update on Lillianna! She was released this morning! Woot! They think she had a reaction to the artificially sweetened applesauce the dietician sent up.... go figure. She normal eats unsweetened and now they think they found a new allergy. Win some, lose some. But hey! She is doing good now and they are hoping for great improvement on her gross motorskills and such now too!

Happy to hear that she was released!