Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[Glo's wish]

I just posted more Big Give pics!!! Only 6 more days to go!!!!

 

[Bill_Lin]

We aren't going to do AK this time. We went for my youngest wish trip in 08..so we kind of know the ropes. The last time we didn't go to Epcot, so this time that is a must. Disney World is differently a whole day and so is Epcot. Since we have been to DHS and even though it's one of our favorites..If we don't see everything...that's ok..as long as we ride TSM 5 times...lol. With all of Kylee's medical stuff and SN chair..it's just too hard to park hop.

Oh...we are going March 13th...right in the heart of Spring break. If we get the Pixie Dust...great...if not..that's ok too.

I assume you know about the boat from Epcot to DHS.

Have you considered Islands of Adventure with Harry Potter etc.

 

[kailatilear]

Are you going to try and take a tour of Daytona? Also, Tink and her friends are doing meet and greets near Mouse Gears at Epcot.

Yes we are going to try and take the tour of Daytona. Abby loves Nascar and when she found out it was close she asked if we could go, so we looked it up online and saw they do a tour. Thanks for the Tink info.

Why not run down to Daytona the first day so you can save another day for a theme park?

The reason we are doing Daytona on Monday is because it is more of a down day 1/2 way through the trip.

We are going to try and fit Universal in on one of our open am/pm days.

All of these are not set in stone either, this is just a guideline. We are a very spontaneous family, so things can change by the minute with us. LOL

We are still also waiting to see what GKTW offers as far as things that you learn at orientation.

 

[HeatherSP]

I just posted the story of how Lhea got her unique name on my thread if you are interested you can click on her PTR to read it.

 

[twinmum]

I want to thank everyone for all your help regarding the EMH.

Here are our plans so far.

Thurs 2/24
Arrive in Orlando at 9:20 am
Spend the day at GKTW

Fri 2/25
SeaWorld
Afternoon or evening is open

Sat 2/26
Chef Mickeys @ 7:25 am
AK in the am
DHS in the afternoon

Sun 2/27 Epcot

Mon 2/28
Driving to Daytona
Abby really wants to see Daytona speedway

Tues 3/1
MK

Wed 3/2
Day open
Have to be at the airport at 6pm for our 9pm flight

Any suggestions are appreciated. Also, where are the fairies located now that Toontown is closed. Kaila really wants to see Tinkerbell.

Hello! We're planning another WDW trip (4 weeks!) and I'm following updates from our TA. She posted this on Facebook a while back:

"Futureworld Fairies? Mickey's Toontown Fair has it's final day of operation on February 11 2011...the new Pixie Hollow Fairy Garden will open at Epcot on February 12 2011. Meet and greet with Tinkerbell and the other fairies, in Pixie Hollow, near Mouse Gear in Epcot's Future World daily from 9:30am to 5:45pm."

Also, FYI:

"With the closing of Toontown Mickey and Minnie will be greeting guests in Tomorrowland near Space Mountain & the Princesses will be visiting with guests at the Adventureland Veranda"

(Mickey's Toontown closed Feb 12)

From the WDW website:
Mickey's Toontown Fair Closed

The Magic Kingdom is beginning an expansion that will nearly double the size of Fantasyland. To make way for this transformation, Mickey's Toontown Fair will close February 12, 2011. Fantasyland construction will be completed in phases with most new attractions open by 2013.

Attraction Changes

In the meantime, you can meet Mickey, Minnie and the Disney princesses throughout Magic Kingdom. Starting Spring 2011, they will greet Guests at the Town Square Exposition Hall.

Tinker Bell and her fairy friends will be joining the cast of Epcot, where they bring magic to the International Flower and Garden Festival in the spring.

The Walt Disney World Railroad will stay open, but the Toontown station will be closed during construction.


Alison

 

[Mom2Miracles]

I posted this on my PTR, but I wanted a few more views. Does anyone know what to expect at an initial Immunologists appt? Peanut is meeting with one for the first time tomorrow, and i'm not sure what to expect. They mentioned blood work, otherwise I have no clue. Do they just go over her history and why she was sent there? I know her GI Specialist mentioned she might be a candidate for IVIG therapy, so i'm guessing that will be discussed as well?

 

[The Lurker]

Just found out the the space shuttle launches the same day we arrive. It launches at 4:50pm. Does anyone know if you can see it from GKTW? Just curious, it would be an amazing highlight to the trip, but not a huge deal if not.

I am sorry for the late response but I am have not been able to keep up. As to the Shuttle Launch. Depending on the cloud cover (according to the weather reports it should not be a problem on Thursday), The launch will be visible from anywhere in the Orlando area - just look directly east. It is best to have access to a radio or tv as the launch is frequently delayed and it helps to know when it actually takes off. It will take a minute or two from the actual launch to see it (you know the time for light to travel stuff - it is 45 miles away). If you want to see it, just go to some place without many trees (like a parking lot) and look east for the bright light and vapor trail. It is an amazing sight and well worth stopping and looking at. Also if you are in a public area you will probably see the locals come out and look east. Many of us never tire of the sight.

 

[kellyw8863]

I posted this on my PTR, but I wanted a few more views. Does anyone know what to expect at an initial Immunologists appt? Peanut is meeting with one for the first time tomorrow, and i'm not sure what to expect. They mentioned blood work, otherwise I have no clue. Do they just go over her history and why she was sent there? I know her GI Specialist mentioned she might be a candidate for IVIG therapy, so i'm guessing that will be discussed as well?

My daughter Ali sees immunology regularly. For the first appointment, they ran tons of blood work. We also went through her infection history with a fine toothed comb. While it was determined that she doesn't have a specific IgG deficiency, she does not respond well to immunizations and because of multiple antibiotic allergies, she is not a good candidate for prophylaxis. She will be starting SCIG therapy on March 15th.

 

[MonkeyManMichael]

Hello.

I just signed up today my son received a make a wish trip and we are going in March 2011. I'm so lost and have no idea what to do first on the website. Would you be able to help me.

What should I do first.

How do I go about signing up for The Big Give.

Do you know if anyone donates disney clothes, camera, video camera or luggage to go on the trip?

Thanks.
Roxanne
MonkeyManMichael

 

[brookerene]

Hello.

I just signed up today my son received a make a wish trip and we are going in March 2011. I'm so lost and have no idea what to do first on the website. Would you be able to help me.

What should I do first.

How do I go about signing up for The Big Give.

Do you know if anyone donates disney clothes, camera, video camera or luggage to go on the trip?

Thanks.
Roxanne
MonkeyManMichael

Hi Roxanne, first, you have come here so that is good! the Big Give is a group of people who give... there is not a sign up....I think one of them will respond here to give you more info... they choose MAW families and shower them for their trip...it's neat to watch....
In regards to a camera or video...GKTW does have them for families to borrow...but if you can get a good one for your trip, I would recommend that. In regards to Luggage, our MAW chapter asked if we had some. I don't know if they'll give us some but you might want to check with them. A friend of mine sent my kids some carry-ons so maybe you know someone you can borrow some from.
In regards to the clothes...the Big Givers might know that better. You can buy some on Etsty.com...
What dates are you going?

 

[brookerene]

Also if you can go to post #2 it'll show you how to start a pre trip report (PTR) there y ou can share your story and post questions as well....

 

[Mom2Miracles]

My daughter Ali sees immunology regularly. For the first appointment, they ran tons of blood work. We also went through her infection history with a fine toothed comb. While it was determined that she doesn't have a specific IgG deficiency, she does not respond well to immunizations and because of multiple antibiotic allergies, she is not a good candidate for prophylaxis. She will be starting SCIG therapy on March 15th.

My daughter is IgA deficient, and has a tough time fighing off infections once she gets one. Shes had A LOT of them in the last year, being hospitalized for every one, lasting weeks on end along with a myriad of IV meds. Its been really hard, and this is on top of her other health issues. Her GI Specialist thought that IVIG therapy might be beneficial to help build her immune system and strengthen her body while we are working to put some weight on her. Anytime she gets any kind of bug,her weight drops (she can't afford any weight loss), and just takes a long time to come around. She is weak all around, so he really thinks her body just needs a boost all around. Again, he isn't an Immunologist (but a fabulous GI doc, lol) so I guess we'll find out more tomorrow. Good luck with the SCIG Therapy, I hope it does wonders for your daughter.

 

[tinytreasures]

My daughter Ali sees immunology regularly. For the first appointment, they ran tons of blood work. We also went through her infection history with a fine toothed comb. While it was determined that she doesn't have a specific IgG deficiency, she does not respond well to immunizations and because of multiple antibiotic allergies, she is not a good candidate for prophylaxis. She will be starting SCIG therapy on March 15th.

good luck on SCIG we did did IVIG for 7 yrs if you have any question pm me

 

[Glo's wish]

I posted this on my PTR, but I wanted a few more views. Does anyone know what to expect at an initial Immunologists appt? Peanut is meeting with one for the first time tomorrow, and i'm not sure what to expect. They mentioned blood work, otherwise I have no clue. Do they just go over her history and why she was sent there? I know her GI Specialist mentioned she might be a candidate for IVIG therapy, so i'm guessing that will be discussed as well?

Kristy- Our intial consult with Immunologist was basically blood work and an indepth history. I have to tell you IVIG (and now weekly Hizentra subq infusions) have changed our lives! We used to live more than half the time in the hospital until Glo started IVIG. Now she has only had 2 unplanned admits in the last year!!! Good luck!

 

[Glo's wish]

I posted picks of more Big Gives on our PTR earlier. Stop on by!

 

[Bill_Lin]

Hello.

I just signed up today my son received a make a wish trip and we are going in March 2011. I'm so lost and have no idea what to do first on the website. Would you be able to help me.

What should I do first.

How do I go about signing up for The Big Give.

Do you know if anyone donates disney clothes, camera, video camera or luggage to go on the trip?

Thanks.
Roxanne
MonkeyManMichael

Roxanne,
Helping folks plan and walk through their Wish Trips to Disney is what this tread is all about. You will meet a lot of veteran Wish Trippers here from GKTW Village. Feel free to ask any questions you may have. Check out the links in my signature for trip planning tips and a link to the evening schedule at the Village. You might also want to check out the Give Kids the World sites on Facebook if you are a member. Their actual website is gktw.org. Chose "families" then "click here" near the bottom of the article to find out more.

Bill

 

[Bill_Lin]

Yes we are going to try and take the tour of Daytona. Abby loves Nascar and when she found out it was close she asked if we could go, so we looked it up online and saw they do a tour. Thanks for the Tink info.



The reason we are doing Daytona on Monday is because it is more of a down day 1/2 way through the trip.

We are going to try and fit Universal in on one of our open am/pm days.

All of these are not set in stone either, this is just a guideline. We are a very spontaneous family, so things can change by the minute with us. LOL

We are still also waiting to see what GKTW offers as far as things that you learn at orientation.

When we went we received a three day park hopper pass for Disney parks and a two day park hopper pass for Universal/ and I.O.A. plus one day at Sea World. Does anyone know if that is still the case?

 

[that's nice]

When we went we received a three day park hopper pass for Disney parks and a two day park hopper pass for Universal/ and I.O.A. plus one day at Sea World. Does anyone know if that is still the case?

That is what we received in December.

 

[kailatilear]

When we went we received a three day park hopper pass for Disney parks and a two day park hopper pass for Universal/ and I.O.A. plus one day at Sea World. Does anyone know if that is still the case?

That is what they said we will be getting!

 

[Mom2Miracles]

Kristy- Our intial consult with Immunologist was basically blood work and an indepth history. I have to tell you IVIG (and now weekly Hizentra subq infusions) have changed our lives! We used to live more than half the time in the hospital until Glo started IVIG. Now she has only had 2 unplanned admits in the last year!!! Good luck!

Thanks Jeanie. I'm gad to hear that Glo did so well with IVIG and that it had such a positive impact on her life.