Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FOUR!

[maroo]

Hi folks, just a quick question for anyone that's gone on a wish trip from the UK or anyone who knows, we are due to go on Owens wish trip in four weeks, I've read lots of reports from people who have gone and make a wish have given them spending money for the trip, I know this happens with you guys in America but do MAW do it for us in England? To be honest it would come in handy as it's very tight right now and although I'll have enough money for us it would be nice not to worry about it! I haven't asked MAW as they might think I'm being cheeky!

I have never known a MAW family, international or otherwise, that did NOT get some sort of a spending check.

Generally MAW sends any family, including those that can not really afford to pay any part...so they generally pay for the entire trip.

It is Make a Wish, right, the official MAW organization, right?

 

[luvmygrlz3]

Things have been sooo CRAZY busy around here...I want to let everyone know that we are praying for you all. Every single one of you...

I am in school for Nursing right now (well, taking pre-req's for Nursing school) and I have had test after test and quiz after quiz. Not to mention the girl's crazy schedule as well w/ Dance and now softball getting ready to start up! PLUS trying to mentally prepare for this trip!! **faint** Whew...Just thinking about this trip makes me get butterflies in my stomach...the packing part and making sure I have everything is going to drive me nuts!

Anyhoo, just wanted to let everyone know that I may not be responding much but I do lurk A LOT and I am praying for each of you...

(PS-- LOADS of Big Give pics on our PTR! Come on over and check 'em out!)

 

[Mom2mitokids]

We are home and while I am a bit sad the trip is over we all can't get the smiles off our faces we had such a great time. I don't think I have words yet to express what a great, amazing, wonderful, surprise filled and magical 15 days we had. Chelsea was a princess and Fuller was a knight...both of them tried so many things they had never done before and rides I never thought they would ride. I was brought to tears many times with the amazing dream that was coming true. For all of you that have been on your trip I am sure you know what I mean and for those of you still to experience it I can't wait for you. We are a happy but exhausted family! I had a chance to edit our pictures from the first day on the flight home so I will try to get a TR started as well as finish off our PTR with some amazing things we received before we left and once we arrived at GKTW. Now to get all caught up on the Dis! Give me a few days to catch my breath but fun stuff coming soon!

Welcome home Erika!!!!! You had me worried. Awesome you got to stay 8 days extra. Wishing we did 5 days extra instead of the 4. I can't wait to hear all about the TR and see pictures.

 

[Mom2mitokids]

I know this has been answered many times, but what notes from doctor do you need for the airline? Kylee has a feeding back(pump) she will have to wear on the plane, We all have meds that are over the counter, and meds that are prescription. Plus I will be carrying on...formula, Pedialyte, feeding bags, non needle syringes, ferral bags, extensions, and an extra mic-key kit. I'm sure I'm missing some stuff here.

 

[luvmygrlz3]

I know this has been answered many times, but what notes from doctor do you need for the airline? Kylee has a feeding back(pump) she will have to wear on the plane, We all have meds that are over the counter, and meds that are prescription. Plus I will be carrying on...formula, Pedialyte, feeding bags, non needle syringes, ferral bags, extensions, and an extra mic-key kit. I'm sure I'm missing some stuff here.

Good post! Khelsey is only on 3 prescription drugs, so I wasn't sure if we had to still have a note or not? They will be in the original bottle with the label as well...Can't wait to see the responses to this...

 

[Mom2mitokids]

Good post! Khelsey is only on 3 prescription drugs, so I wasn't sure if we had to still have a note or not? They will be in the original bottle with the label as well...Can't wait to see the responses to this...

Most of our meds are vitamins, as this is what we call Mito cocktail , so not sure what I need to have. We have CoQ10, B2, Alpha lipoic Acid, creatine, lactaid pills, and carnitine. Plus meds that are prescription.

 

[owensdad]

I have never known a MAW family, international or otherwise, that did NOT get some sort of a spending check.

Generally MAW sends any family, including those that can not really afford to pay any part...so they generally pay for the entire trip.

It is Make a Wish, right, the official MAW organization, right?

It is the official MAW organisation, we should get our wish pack in the next week or two so hopefully that will have some information about it.

 

[Corrine 1973]

I know this has been answered many times, but what notes from doctor do you need for the airline? Kylee has a feeding back(pump) she will have to wear on the plane, We all have meds that are over the counter, and meds that are prescription. Plus I will be carrying on...formula, Pedialyte, feeding bags, non needle syringes, ferral bags, extensions, and an extra mic-key kit. I'm sure I'm missing some stuff here.

When we went in Sep 2009 we brought a nebulizer, two neb medicines, 2 perscription Medicines, 1 special CF vitamin, and his lung therapy unit. We didn't need any doctors note for any of it and the only problem we seemed to have was with the nebulizer. After I explained what it was, they plugged it in to make sure I wasn't hiding anything in there and we were good to go. I don't know if things have changed, but if you don't get the answers you are looking for here I would call the airline and ask them. Hope this helps!!!!

 

[newdrama12]

We are home and while I am a bit sad the trip is over we all can't get the smiles off our faces we had such a great time. I don't think I have words yet to express what a great, amazing, wonderful, surprise filled and magical 15 days we had. Chelsea was a princess and Fuller was a knight...both of them tried so many things they had never done before and rides I never thought they would ride. I was brought to tears many times with the amazing dream that was coming true. For all of you that have been on your trip I am sure you know what I mean and for those of you still to experience it I can't wait for you. We are a happy but exhausted family! I had a chance to edit our pictures from the first day on the flight home so I will try to get a TR started as well as finish off our PTR with some amazing things we received before we left and once we arrived at GKTW. Now to get all caught up on the Dis! Give me a few days to catch my breath but fun stuff coming soon!

Glad to hear that y'all are home. It was awesome to meet you and the family at GKTW. Can't wait to see pics and to hear about everything that happened!

 

[kellyw8863]

We are home and while I am a bit sad the trip is over we all can't get the smiles off our faces we had such a great time. I don't think I have words yet to express what a great, amazing, wonderful, surprise filled and magical 15 days we had. Chelsea was a princess and Fuller was a knight...both of them tried so many things they had never done before and rides I never thought they would ride. I was brought to tears many times with the amazing dream that was coming true. For all of you that have been on your trip I am sure you know what I mean and for those of you still to experience it I can't wait for you. We are a happy but exhausted family! I had a chance to edit our pictures from the first day on the flight home so I will try to get a TR started as well as finish off our PTR with some amazing things we received before we left and once we arrived at GKTW. Now to get all caught up on the Dis! Give me a few days to catch my breath but fun stuff coming soon!

Welcome home!!!!! I can't wait to read all about it (says she who took almost a year to write her own TR).

I know this has been answered many times, but what notes from doctor do you need for the airline? Kylee has a feeding back(pump) she will have to wear on the plane, We all have meds that are over the counter, and meds that are prescription. Plus I will be carrying on...formula, Pedialyte, feeding bags, non needle syringes, ferral bags, extensions, and an extra mic-key kit. I'm sure I'm missing some stuff here.

I typed up a list of everything that we would be bringing carry-on (all her medical stuff) and faxed it to her ped. He copied it onto letterhead and then signed that it was all necessary for her to have access to at all times. I don't think I ever even had to show the letter.

 

[jj0plin]

I just posted all about our First BIG GIVE!! Please come check it out!

 

[tinytreasures]

Welcome home fulseasmama I am so glad you had a wonderful time

 

[Loodlow]

Does anyone know if you can request a hospital bed at GKTW?

 

[blessedmom4]

Does anyone know if you can request a hospital bed at GKTW?

We were told that any medical supplies that we needed could be provided by a local Durable Medical Equipment Company or Home Health Agency (whichever would be appropriate) through our Make a Wish Chapter and they would pay for it. This included Hospital Beds, Oxygen, Wheelchairs, IV poles, etc. I hope this helps.

 

[Glo's wish]

Does anyone know if you can request a hospital bed at GKTW?

Yes you can. At least we were asked if we needed one!

 

[Corrine 1973]

Let me start by saying sorry for being sentimental.

I was up last night, having trouble sleeping when I put this song on. It brought me back to last year to one of the most difficult times of my life. As some of you know last March 5 I gave birth to a baby boy almost 14 weeks early. He entered this world weighing just over 2 lbs and just over a foot long (Liam called him a 5 dollar foot Long.) He spent 14 long weeks in the hospital fighting for his life. At times I cried myself to sleep and asked God why he would do this to me. I already had a son with Cystic Fibrosis and a daughter with asthma, I didn't know how I could deal with another child with medical conditions. It was during this time that I found this song. It was my theme song, and as I listened to it last night I relized that it is all of our theme song. I hope you will all like it as much as I do.

http://www.youtube.com/watch?v=0CSPvgXLHgE

I also included some pics of baby Rylan.
The first one was when he was about a week old, and the second was in December.

 

[Mom2mitokids]

We got 4 HUGE Big Gives yesterday.
One made Korissa's wish come true. Please go to her PTR and see.

 

[brookerene]

Let me start by saying sorry for being sentimental.

I was up last night, having trouble sleeping when I put this song on. It brought me back to last year to one of the most difficult times of my life. As some of you know last March 5 I gave birth to a baby boy almost 14 weeks early. He entered this world weighing just over 2 lbs and just over a foot long (Liam called him a 5 dollar foot Long.) He spent 14 long weeks in the hospital fighting for his life. At times I cried myself to sleep and asked God why he would do this to me. I already had a son with Cystic Fibrosis and a daughter with asthma, I didn't know how I could deal with another child with medical conditions. It was during this time that I found this song. It was my theme song, and as I listened to it last night I relized that it is all of our theme song. I hope you will all like it as much as I do.

http://www.youtube.com/watch?v=0CSPvgXLHgE

I also included some pics of baby Rylan.
The first one was when he was about a week old, and the second was in December.

What precious photos.....
I think there is a song for each of us....one that gives us hope and strength when we need it. For me it was NeedtoBreathe's Lay Em' Down.... I am glad you found yours......

 

[tinytreasures]

Corrine 1973 thanks for sharing a little of Rylan's story. Preemies hold a special place in my heart. I don't think people understand how hard they fight for every breath

 

[casper_jj11]

Rylan is adorable. Thank you so much for posting his pictures. I have to ask though, what song is it? I tried to listen but youtube has it blocked. It says that its a song by EMI that has blocked our country for copyright reasons