Land Of Sensible Enjoyable Reality-based Sweethearts.-AKA The "LOSERS" come on in!

[Lintasare]

Morning everyone!! I say that all nice and chipper like since I popped my two tylenol at 5:30 this morning, when I felt that familiar thumping in my head starting.

Gotta love tylenol!

I heard on another thread that Pedialyte is good for hangovers.

 

[It's A Happy Day]

I heard on another thread that Pedialyte is good for hangovers.

That would make sense as usually with a hangover you are severely dehydrated and that would replenish your system.

 

[RVGal]

Those of you who watch the races, I think it's great that you enjoy it..I hope I didn't come off as snarky.

I was raised in a football household...pro ball. DH is a college ball fan.

I like going to games, we try to catch at least a couple of Navy games a year.

Nope. Not snarky.

I've always joked that people who don't get racing must think we are crazy for sitting there and watching cars drive in a circle for 3 hours.

There is a lot going on, but like with any sport, until you know all the stuff it just looks stupid.

Take hockey, for example. If you don't know hockey, it just looks like a bunch of guys skating around and the only excitment is when somebody fights. That's like racing. If you don't know racing, it just looks like a bunch of guys driving around and the only excitement is if somebody wrecks.

Basketball is the one I don't get. I've tried. Really. When I watch, all I see is: group of guys run to one end of the court and (probably) score a basket... group of guys run to the other end of the court and (probably) score a baset... repeat for 3 hours...

 

[Mkrop]

Morning all, just got back from the grocery store where they had no help whatsoever, fun times let me tell ya. Maybe Pudding Girl called out sick

Now I am trying to get an eye Dr appt for DS10 but thye keep telling em to leave a message but since I have to leav to pick up DS5 that will be whent hey call so I guess I will wait or keep trying for a human.

 

[RVGal]

Ugh. I don't want to think about drs appointments. DS6 has his MRI under sedation tomorrow morning, which means nothing to eat or drink until after the test.

There will be much whining until lunch tomorrow.

 

[DorkyDisneyMom]

Ugh. I don't want to think about drs appointments. DS6 has his MRI under sedation tomorrow morning, which means nothing to eat or drink until after the test.

There will be much whining until lunch tomorrow.

Are they doing that for the siezures?

 

[RVGal]

Are they doing that for the siezures?

Yeah. Trying to map his brain activity and see if they can find a pattern. Hopefully, we'll have some idea of his seizure triggers when they've done all their testing.

 

[LaraK]

Ugh...hate making kids NPO. My son is obsessed with drinking (just juice for now). When he had his first endoscopy that's what woke him up, he heard us say "cup" (his first word). He opened his eyes, said "cup" and punched me in the face.

 

[DorkyDisneyMom]

Yeah. Trying to map his brain activity and see if they can find a pattern. Hopefully, we'll have some idea of his seizure triggers when they've done all their testing.

How many has he had? Poor Mom, are you doing ok?

 

[1Prince2Princesses]

Ugh. I don't want to think about drs appointments. DS6 has his MRI under sedation tomorrow morning, which means nothing to eat or drink until after the test.

There will be much whining until lunch tomorrow.

Yuck. Give the little guy an extra hug from me. Here's one for you, too (you're going to need it).

He opened his eyes, said "cup" and punched me in the face.

Sorry for laughing, Lara.

 

[RVGal]

How many has he had? Poor Mom, are you doing ok?

He had a few febrile (fever) seizures when he was younger, but they assured me that was no big deal and he'd outgrow them.

He started having "time out" seizures around September/October of last year. He'd just fall to the ground for a few seconds for no reason.

He had full on convulsive seizures in January. A series of 6 of them on January 10th put him in the hospital for 2 days while they gave him anti-convulsive meds by IV.

He has been seizure-free since then. We're about to start the process of switching his daily meds, however, so I am VERY nervous about that.

 

[DorkyDisneyMom]

Poor guy. Why are they switching his meds? You know, because I am nosey.

What can happen if they switch them? Again, see above.

 

[RVGal]

Poor guy. Why are they switching his meds? You know, because I am nosey.

What can happen if they switch them? Again, see above.

They put him on Dilantin when he was in the hospital. We finally got in to see a Pediatric Neurologist last week. She doesn't like Dilantin as a "first step for general seizures". According to her, Dilantin is a "step up to it" drug if other stuff doesn't work. There are side effects to long term Dilantin use, mostly dental. The gums can grow and expand and require trimming (which doesn't sound like fun).

We are switching him, slowly, to Topamax. The only common side effect of long term Topamax use is loss of appetite. I have to give him both Topamax and Dilantin for a couple of months. Slowly increasing the Topamax dose and decreasing the Dilantin. These are the kind of drugs that have to "build up" in the system to be effective.

I am just worried that because were are, in essence, stepping down from a more powerful anti-convulsive that we are opening the window for him to have seizures again.

Full body convulsive seizures are scary as hell. I don't ever want to see my baby like that again.

 

[Thats_for_Shore]

Full body convulsive seizures are scary as hell. I don't ever want to see my baby like that again.

Aw,

I can't imagine how freaked out you must have been.

 

[DorkyDisneyMom]

Full body convulsive seizures are scary as hell. I don't ever want to see my baby like that again.

I can only imagine. Mr. No Fear used to hold his breath so long he would pass out. That used to freak me out and it was only a few seconds. I think a seizure would push me over the edge. Here's hoping the medicine works and the transition goes well.



On a much lighter note, Reese's peanut butter eggs count as breakfast right?

 

[Mkrop]

RV Gal

Good luck tomorrow

See somedays you need something to put in all into perspetive. I guess my waiting on hold doesnt seem like as big a deal now.

 

[LaraK]

They put him on Dilantin when he was in the hospital. We finally got in to see a Pediatric Neurologist last week. She doesn't like Dilantin as a "first step for general seizures". According to her, Dilantin is a "step up to it" drug if other stuff doesn't work. There are side effects to long term Dilantin use, mostly dental. The gums can grow and expand and require trimming (which doesn't sound like fun).

We are switching him, slowly, to Topamax. The only common side effect of long term Topamax use is loss of appetite. I have to give him both Topamax and Dilantin for a couple of months. Slowly increasing the Topamax dose and decreasing the Dilantin. These are the kind of drugs that have to "build up" in the system to be effective.

I am just worried that because were are, in essence, stepping down from a more powerful anti-convulsive that we are opening the window for him to have seizures again.

Full body convulsive seizures are scary as hell. I don't ever want to see my baby like that again.

It is terrible to watch I'm going to be thinking of you!

 

[RVGal]

Aw,

I can't imagine how freaked out you must have been.

How's that?

Actually, I was perfectly calm and controlled for the whole time he was having the seizures and while we were at the hospital.

I fell apart on DH about 3 days AFTER we were home.

 

[RVGal]

On a much lighter note, Reese's peanut butter eggs count as breakfast right?

It says "egg" in the name. It must be breakfast!

 

[DorkyDisneyMom]

How's that?

Actually, I was perfectly calm and controlled for the whole time he was having the seizures and while we were at the hospital.

I fell apart on DH about 3 days AFTER we were home.

I am like that too. I am great during the crisis. It's after that can get pretty ugly.