just venting!

[emmy]

We have had a tough week with our DS- a lot of behaviors that we had under control are resurfacing. I had several meetings with his TEAM trying to hammer out more details and find out why his IEP is not being followed! Also getting him into a new neurologist has proven quite an obstacle , seems they just do not enough pedi neuro people to go around! Also found out that his main teacher will be out the rest of the school year starting in Feb. due to a high risk pregnancy, and one of his saving graces was the stability at school- so we will have to go through that whole adjustment again!
It has been one of those really tough emotional weeks and I just needed to share with people I know will understand!Thanks!

 

[Wheelsie]

*hugs* and PD for you....keep us posted on how things are going

 

[teri]

{{{{hugs}}}}} I know how it goes.

 

[Michelle NY]

Sending you some pixie Dust and i just wanted you to know that you are not alone. It is
so frustrating.Let us know how it goes.

 

[SueM in MN]

{{{{{{hugs}}}}}} from me too.
We have a great team this year, but there have been some years when I wonder if anyone even read the IEP. Sometimes I think the letters should stand for "I Explain Periodically".

P.S. I love your Thing 1 and Thing 2. Really cute!

 

[janette]

{{{{HUGS}}}} Emmy - you've had to fight way too hard to get what should be provided. I hope everything works out and he starts improving again.

 

[emmy]

Thanks guys! I am so glad it is friday and that this week is behind me! It really is ashame how hard you have to fight just to make sure your child gets the help they need. It is nice to come someplace where others understand what we are going through, I can vent to friends but they have no idea how difficult it really can get. So thanks again for the hugs and support!

Thanks Sue- thing 1 and thing 2 are my two oldest mischief makers!

 

[momejay]

We have been there. I had a teacher tell me she doesn't know any thing about my autistic non-verbal ds. As I stand there with my chin hitting the floor thinking... It's January haven't you had a chance to read his IEP? Not to mention 3 conferences, a behavioralist conference, & home visit by his 1:1 aide...
Pixie Dust for us all!!!

 

[s&k'smom]

Hi Emmy just found this post. I'm a sped mom from here in Mass too! And we too are seeing some behaviors, my DS (who is diagnosed with PDD) always has spikes of behaivors with any change so needless to say with the holidays and new year starting we are seeing "stuff". I just wanted to say I so identified with what you said. S is going to be starting a new school next year so I'm sure I'll be posting lots of times. Please keep us updated, I really get alot from you guys. PS just to throw this out but I know at times I don't react real well when there are behaviors, frankly I don't know whose worse me or my DS.

 

[nancycels]

My daughter had one when she was enrolled in technical school.
When we went to back to school night i stopped to let the teacher
know if there was any way i cd be of assistance in getting my daughters
IEP needs followed to be sure and give me call. Imagine my surprise
when i was informed that " I dont believe in IEP's so I never read them!"
I was furious! Here i had a kid who was having a tough time in her class
and she refused to see reason!! We ended up having to TRANSFER MY
DAUGHTER! but not before half a school year had passed! TICKED ME OFF!
It got worse before it got better! hate to tell u!

 

[suzysezso]

Hugs to you & Thanks again for the reminder I am not alone-
Just last week finished my semi-annual exercise in frustration (aka my son's IEP)- It really pains me to sit there for 3 hours watching them disregard my comments and debate just the right PC language they need to cover their...well you know LOL.
Example...
since my son is autistic, one of his issues is sensory things like not wanting to wear long pants or appropriate outerwear. I asked them to write into the IEP that I want him to wear long pants for l5 minutes and then for longer intervals each day when the weather is cool- they then spent the next 45 minutes coming up with some general statement of "will tolerate sensory stimulation with regards to blah blah blah..." after about 30 minutes I asked why they just could not write it the way I asked for it and was told"that is not the language we prefer to use".... To me that means they don't want to use any terms I can strictly hold them accountable for. Vague descriptions are easier to dance around.
Another of his issues is a very limited diet- he only wants dry salty carbo type foods like chips, toast, dry cereal, etc. Since he is entitled to free school lunch I insisted that his IEP state that I wanted a school lunch presented to him each day before being given his packed lunch from home, with a goal of him at least looking at, possibly touching or even tasting at least one item each day. Last year his teacher was wonderful with this and even had him requesting pizza and fries on the days those were served. This year I visited twice during lunch hours to find no school lunch tray in sight- of course they claimed these days were exceptions...uh huh
Of course I could go on and on, the war never ends but we can pick our battles and sometimes actually win a few-
hang in there, Love conquers all

 

[nancycels]

to the wars!! its not easy, but i know in the long run, its worth it... but wow was it tough
when i was going thru it!