Just need support...

AshtonsMom99

Stitch's Intergalactic Wife.......
Joined
Jan 20, 2009
Messages
332
Hi I just found out last week that i am sufffering from heart failure....I have had heart disease my entire life but recently was told that at 33 I a have heart failure...the outlook with someone with heart failure is not good at all, I just need to vent because there are not many people my age that have heart failure, I am doing the best I can but do not really know who to talk to. I have a fiance and a ten year old son. I am getting married in July.....I don't know where else to turn or who else to talk to. I remain as positive as I possibly can and plan to spend as much of my time left in Disney...Hey it makes me happy.....Disney and baseball.....and the love of God , friends and family.....Hey it makes me happy....:)

I just needed to vent and talk about it to random net people because sometimes its easier take the advice of strangers than it is people you actually know.

Disney World was my honeymoon, but now its my familymoon....:)
 
That is what some of us are here for, to listen to others and hold their hand and help them through the rough times. I have had lots of lows and the kind people here have gotten me through them. Faith is a victory and I do believe in miracles. All I can do is hug you and pray for you and let you know that any time you need help on your trip plans feel free to ask as there is a ton of stuff you can do to make your familymoon easy on you and your family and the best possible.

Lots of dole whips and hugs and snugs and hugs
Laurie
:surfweb: :hug: :hug: :hug: :hug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :cheer2:
 
. All I can do is hug you and pray for you and let you know that any time you need help on your trip plans feel free to ask as there is a ton of stuff you can do to make your familymoon easy on you and your family and the best possible.

Thanks I would love to know what is available for families like ours...
 

. All I can do is hug you and pray for you and let you know that any time you need help on your trip plans feel free to ask as there is a ton of stuff you can do to make your familymoon easy on you and your family and the best possible.

Thanks I would love to know what is available for families like ours...


Oh crud~! I did that wrong...at any rate yes I would love to know what is available...seeing as how I will be in a wheelchair this time out...
 
First and foremost is the FAQs which are stickied.
http://www.disboards.com/showthread.php?t=595713

Next is your hotel room
http://disneyworld.disney.go.com/plain-text/hotels/
You decide which you need.
1. Normal room but with special stuff like a handheld shower.
2. Accessible room which makes space for a wheelchair and has a seat at the back for setting and rails.
3. The less available roll in shower which has no barriers, a shower seat and other features.
http://www.disboards.com/showthread.php?t=595713
Post 7 has pictures to help you decide what is best for you. Think about what your bad days are like. Right now I am chipper but later in the day I will barely be able to move.

You will not need a GAC unless you have limitations like hearing, vision or sun. Wheelchair users do not need a GAC unless they have other limitations or are like me part time users who waddle onto some rides.

Parades have special viewing areas but it is often better to camp out on the curb near food, bathrooms or in the shade or at a favourite viewing area.

http://pages.prodigy.net/stevesoares/
He lists events like street performances and meet and greets. Something a person can enjoy without exerting themselves and even a nice time out when daddy does the meet and greet while mom chills with a cool drink and snack.

http://www.ourlaughingplace.com/asp/twiz.aspx
This is not THE laughing place site but another site.
That shows how to get around the parks. To get from the Contemporary to the Studios gets this result but with icons that did not come with the copy and paste.
Disney's Contemporary Resort bus --> Disney Hollywood Studios : 19 mins.
Disney's Contemporary Resort monorail --> Transportation & Ticket Center bus ---> Disney Hollywood Studios : 36 mins.
Disney's Contemporary Resort boat ---> Disney's Wilderness Lodge Disney bus ---> Hollywood Studios : 45 mins.

You will be allowed for free to bring any medical needs like your wheelchair, special bedding, medicines, monitors, diabetes stuff, and nebulizers. Call the airline to ask for disabled services. You can take your chair to the boarding gate and they will board you using an aisle chair. Check FAQs for pictures and more info on disabled travel laws as well as how you will be able to easily do things. Check www.seatguru to see where your seat will be. Check the airports so that when you get off and when you board you will know where restrooms and food is located.

hugs and chocolates
Laurie

Do not want to overload you yet.
Oh and many rides you can stay in the chair until boarding and some rides like Small World will let you stay in the chair. Nurse's station as a napping cot and OTC stuff like tylenol and bandaids as well as nice people who just make your day not so dark and gloomy. Very nice people on both coasts.
 
Thanks so much...things have been actually not bad lately......I put myself on a cardiac diet, and I am going to have a blast as much as I can....Life is to short to take so seriously....Live, Laugh, Love!
 
I would say if your looking for someone to talk to, network with your friends and family. They may have a relative who has heart disease or heart failure like yourself.

Network with people to make sure you have the best care, best doctors, ask on-line like you are, and to people you know and meet.
Make sure you have been seen by doctors at major medical centers to make sure you have heard all your options, get several opinions from different specialists even if you have to travel.

Lots of hugs during this rough time
.
 














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