Just back from 2 weeks CBR, my experience

goofieslonglostsis

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Nov 23, 2007
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Back home, back to the cold. :scared:

My trip over to the World was near to as imperfect as it can become. They actually unloaded my manual wheelchair from the plane (who knows what were they thinking), which would end up taking 3 days and the chair seeing cities I haven't ever been before. The airline and/or airport also managed to damage my powerchair and while knowing about at least one damaged part (they had security and airport stickers all over the thing trying to keep it from totalllyt falling apart), didn't have the luminious idea of informing me about it. It was actually so damaged it ended up having electronical problems during the whole trip and actually dying on me after getting on the DME to go back home. Fun, freewheel pushing a powerchair out of the DME and through 2 airports. :sad2: If it weren't enough they revoked the seats assigned to me, never mind me taking care of it in time and needing one of those 15 available seats to not get into a more difficult pickle. Turned out later they found frequent flyers and two people travelling individually from each other with both dogs of the size of a large mans hand. (gave them 2 seats per person :eek: ). The latter was thankfully dealt with by a great flight crew, but the additude at the airport was beyond believe. One major complaint coming up, thank god for the fact that Europe finally has some legislation about travelling with a disability.

OK, so we get to the world, yes! :yay: By then it's about 10.30 pm, spent a long time at MCO dealing with the above. So check in, have a drink and of to bed we want! Small problem; the CM at check in tells me we still need to pay $2900,- on our reservation. No, we don't! Thankfully I had the reservation printed out, with it stating it was paid in full. He went to the back to talk to a manager and after about 10 minutes it was sorted out. Had to do with me needing the roll in shower, there being 3 adults and me staying at a moderate. Ok, so that was sorted out, let's get to the room. Like last year, we were in a great location; 2619 and 2620 in Martinique. Well, you couldn't be any closer to Old Port Royale if you asked for it. Great!! We paid for standard, so were expecting that.

Now here comes the thing that has me wondering for a long time now. Last time I also paid for standard, and got a room in buildiong 31, also a preffered one and closest to OPR from the other side. OK, can be luck. But. My neighbours were rather obvious. Of all of the rooms at ground level the same building we were in, there were A LOT of them in either a wheelchair or their own ECV. I'm not talking about 3 or 4, but as much as 9 at a time, not counting myself. With us being there for 14 days, we've seen people check out and others with a mobility disability check in to the same building. I actually didn't see any wheelchair or ECV at any other busstop than the one for OPR, which was closest to the building. The only one I did see was a rented one, with a guy staying at Trinidad South. Don't get me wrong; I loved being so close to OPR and appreciated it very much for such a long trip. But it sure makes me wonder if CBR even has accessible rooms at the non preffered building.

OK, on to the fun! Or so I thought. We had fun and slowly it began to sank into my mom and her friend that they didn't have a clue about WDW, despite me warning them and trying to prep them. They were overwhelmed by the great things :woohoo: and all of the walking. Both actually ended up loosing weight, never mind the chocolate from Goofy's, the fried and all of the chips. :lmao: I wasn't feeling too great, but put that down to the flight, worrying about things and my body having more of it's acting ups. I soon found out it was probably due to a UTI. No problem, I had back up antibiotics with me. I didn't get out much, about an hour or 3 a day, but was sure the AB would help out and I'ld have a full 2nd week.

Well, don't think so quickly. The AB didn't work, so after calling my own urologist and making up a list of possible causes and connected best treatments for me, called in one of those 'house call' making docs. Not too cheap ($215,- for the first visit, $156 for the following ones), but a great convenience over going to any (even more expensive) ER and waiting longer. Sure enough; a bad UTI, probably gotten to the kidneys by than. So new AB and stay out of the sun. Oh swell, out of the sun in Florida when one is a sunlover and it's freezing at home? :rotfl2:

Ended up those AB's not seeming to look and me getting worse. Soon ended up having days of perhaps one hour a day away from the resort. When checking up again we did found out the bacterial UTI was gone, but something wrong for sure was still going one. Have to have that checked out now that I'm home.

Don't get me wrong; in between I had a great time. Loved the decorations, the Castle, Soarin' is as lovely as always and WOW!! those Osborne Lights. But I never want to do a trip like that again. By the end I was actually anxious to go home, get out of there. :scared1:

And CBR? Lovely as always! We had a great room in a great locations and a great mousekeeper for the first 10 days. She even showed us to make towel animals, dropped by to make small talk and suprised us several times with great mickey beauty/wash stuff besides the things we all know will be in the room.

The CM's; big big :thumbsup2 If you happen to read up on this M. ; you too. :) They offered to help out with the chairs where need be and a surprising lot of them remembered me from last year. Which gave me the oppertunity of finding out that my kudo's email about some CM's last year (they so went above and beyond) actually did arrive and was discussed with them. :) They worked a last peace of small miracles by letting me stay in the room until the DME would take us to the airport. Our bus wouldn't leave until 4.30 pm, and normally I would've loved to spent those hours at the park, but now? Yeiks. :sick: They checked, found out the room wasn't needed until the next day, so arranged for me to be able to stay in there until the DME, free of charge! :hug:

The flight back was thankfully a lit less of a struggle. After numorous calls to all involved supervisors and managers, they started to realise what happened was totally uncalled for and unacceptable. So they had a manager waiting for me at the airport. By then I was pretty peed off, after just finding out the powerchair now totally does nothing what so ever and me fighting them for a proper seat and getting nothing else but 'sorry, they are all taken, looks like frequent flyers, hopefully check in can do something'. Somehow he didn't notice the manual chair and the steam coming out of my ears right away, so was asking abled people in the long check in line if they were me and/or were in my party. Well, he actually asked if they were my mother. :lmao: Sorted that out, look wheelchair beneath my but, my name as the lead on the reservation, only one wheeler, I'm the one with problems. :rotfl:

He made the biggest mistake of using the not too smart; "I understand how you feel". :lmao: Sure. :rotfl2: By then he understood his not too smart move, so started to check our bags and labelled them priority. Long talk, a lot of promises, we all know the drill. I told him I appreciate what he was doing, it's nothing personal, but the experience so far has shown me I'ld better see things with my eyes first before resting asure things are actually OK. He got us our seats, but again; we had them on the flight over also. ;) He gave us his name and to have people call him if any problems, but also had that on the flight in for a special care supervisor. :rotfl2:

They gave us access to the lounge and after about an hour I was taken to the gate. They first did the 'we'll start boarding in about 5 minutes'-announcement, so of course by now the entrance to the gate was crowded with all of those wanting to board. I was escorded right through for the preboarding, which sure resulted in a lot of angry looks. :rolleyes: Turns out at the gate they upgraded us to business class. Nice, but the trip still stressed about returning to the 2 airports with the 'great service'. THANK GOD nothing was further damaged and both flight crews were very protective to make sure there were no more screw ups after hearing the story. They did safe me from multiple. :thumbsup2 What was saying the most to me was the large amount of both airport and flight crew people asking me to please file a complaint, because they are tired of having to deal with problems that shouldn't have occured. Off course I'll be filing and having the airline pay all the expensive I will have to make and have made, but I deeply hope they have learned at least a little bit since these two weeks already.

On to the next count down! :woohoo: Only 9 more months until I'll be back to the world and go on a DCL. :cool1: Looking forward to it very much, but at the moment are a bit worried about the flight there. My last 2 flights both ended up with both the chairs damaged and/or 'lost'. Don't think I'm too confident I'll ever fly again if it would happen for a third time. Hopefully it's mainly the jetlag and stress of the last two weeks talking and the worries will soon reduce. And if not, oh well, you would say it wouldn't be too difficult to get at least one chair undamaged and without delay to MCO and back home once every 3 trips.:rotfl2:
 
What a great trip report though sad that they messed up big time. I can believe them damaging stuff as my suitcase has solid steel framing that is dented, lost the pull thing and the triangular metal holder for the pull thing. Yep been through the airport hassle before. I hope you get recompensed for the damage. Yep on airport staff not being able you because I feel the are inable to find a water bufalo wearing a pink tutu.

Glad you did get an hour or two of fun and wished I could have raced you around WDW. Get well soon and big hugs.
 
Wow- definitely NOT the trip you must've been looking forward to! Did you bring your SD this time? I was thinking about flying with a friend to Barcelona but have felt like it would be cruel and inhumane to bring Skye on such a long flight. I'm not sure how long your flight must've been but I'm trying to find someone with a SD who made out okay. Thank goodness you had other adults there to help you and you own wits about you dealing with so much stress. Hope you feel better soon and your wheels get a 'movin again.---Kathy
 
Kathy, no I didn't bring the SD with me. During our couple training we found out my health has gone down hill since the last testing for an SD to such an extend an SD is out of reach. Turns out that my body can no longer deal with the basic level of schedule/routine any dog deserves, let alone an SD. I could've made it with a lot of adjustment of the training, but that would leave me with another problem. Just barely making it and as soon as any other downfall hits me, having to say goodbye then. It was a very painfull decision, but it is for the best not to proceed with that chapter. :(

I know there are a couple of people that used the same dogschool as I did that fly on long trips, heard about asia, australia and africa. Especially the first would vary anywhere from 10-24+ hours. The longer with stops, but the dogs seem to make the trip perfectly well. Guess it would depend on the caractre and bread of the dog also. I could see how a golden could deal with it a lot easier than a lab, they tend to want to be more active. Are there any direct flights? From MCO to northern Europe without transfer is about 8.5 hours, so I guess Barcelona would be around the same. That would be like a night when it comes to the duration, only question than would be if Skye deals well with being in that confined place for that amount of time. From Europe to the US the times are longer though, for us (Frankfurt- MCO) it was about 10 hours for the 2nd leg in and about 8.5 hours for the 1st part back.

Wits, lol something like that. I mean, it's a new day now. I'll deal with the complaint and getting things paid, but otherwise there is no reason to keep dwelling over it. That would only make it worse. We'ld better laugh about it and just trust everything will go OK on the next trip. Heck, there are 2 of us in wheelchairs on that trip, which would mean double the chance of something going smoothly. Didn't have my wits at the airport though. ;-) It was more being scared, feeling belittled, angry, little desperation and some crying.

Got a call about an hour ago, they already have my powerchair up and running again. We just brought it in a couple of hours ago. Woohoo! They can't pinpoint the cause, but probably the damaged wires which they replaced. They only need to look at the wheel (probably a broken part) and order me a new part for my airpressure controle, but for now that can be dealt with by glueing it together. Hopefully the wheel doesn't need a part that takes some time to deliver, in which case I would have it back again tomorrow! :)
 

Sounds like you had an adventure. Glad to hear some thing went well, but the things that did not were scary.
 
Whew! I'm glad the chair is fixed at least. I've never had my chair break down at WDW but did have my van brakes go totally out last year when we were all staying at OKW the week before Christmas. It was the most frightening experience I've ever had. I can't even imagine having such an adventure as yours so far away from home and not being familiar with equipment vendors or even a physician who could help with the UTI. If anything like this ever happens to you again, please feel free to get in touch with me. I live in Orlando and could at least help you find someone to repair your chair who will come out to the resort to help you. If you send me a PM I'll be glad to give you my phone #.

Meanwhile I'm really sorry to hear that you weren't able to have a partnership with Xippe. My lab was picked for me to be really laid back and fairly low energy as I don't have the strength or energy that would be required for a more active dog either. I can't imagine trying to get around without her though and feel so lucky to have her. It sounds like you made a really brave decision although I know it must've been really hard.

As to the air travel, Skye and I flew to Nevada this past fall to see my Mom after my Dad passed away. The flight was delayed on the way back so we sat in the airport for four hours before takeoff and then had the long flight. Skye did fine being in a confined space but I was worried about her needing to relieve herself. Being in such a dry climate she was drinking lots more water than she does at home. I know she normally can hold it for over 12 hours but it's not good for her. The airport personnel offered to take her down to the tarmac since we couldn't go back through security to find some grass but I knew she wouldn't go if she were separated from me nor would she want to go on concrete. I'm just thinking that with the airport check in time and the 10-12 hour flight she'd be miserable. At least those flights are red-eye though so it would be the same as her sleeping through the night. We would definitely have to change planes as there are no direct flights from Orlando to BCN so depending on layover time we might or might not have time to take her for a potty break. I doubt I'll go as it sounds like a pretty stressful trip anyway despite my wish to see some of the places we'd get to visit. I know that probably most of the things I'd want to see in Barcelona would be a challenge in a power wheelchair and despite offers of assistance from friends I wouldn't want to hold them back from touring. I'm always amazed at your spirit of adventure and love of travel-I don't think I'd be so self-assured heading to the Netherlands as you are heading to the US and elsewhere!---Kathy
 
My chair was fixed up for the last parts, so I got my dad to go get it for me. Finally, it's working properly again. :) I'm fastly working on writing the complaint, allthough for now it's waiting until I get a copy of the bill so I can add that and have somebody re-edit it. Wouldn't be too surprised if my tone is too emotional for it's own good (which also doesn't help my english ;) ), and 5 pages does look a bit long. :scared1:

Kathy, thanks for the offer! Thankfully I'm used to sorting out some 'what if something happens to the chairs or my health'-emergency plans. Plus is that my manual chair is one built in Anaheim, so if something were to happen that would need on-the-spot care (and I don't have the back up stuff for), that sure does help out quite a bit. Can have anything I need there within no time and they have all my measurements etc. It sure doesn't hurt to have a back up person who knows the area though, so I'ld gladly take you up on the offer and put you on my 'what if'-list for next september.

Medical stuff sure was a bit of searching. One of the first things a couple of CM's adviced me was to 'simply call 911'. What?! :confused3 911? For a suspected UTI? Dang, there should be something like a GP or at least just simply take a taxi to an ER? "Oh yeah.... that also might be an option", ligthbulb-moment for the CM's. Maybe it's just due to our system, but we only call 112 (our 911) if it's life-threatening and/or crime in action right than and there. I hate hanging out at our ER, so wouldn't happily do the waittimes in an USA ER unless I knew it would be no other way. So came up with the 'house call'- medical company options. Pretty fast and proper option for the basic stuff. Was starting to worry a bit about hospitals though. Did look into that last year, but completely forgot to look into it this year. Dumb, because by the time I need a specialist for a UTI, I would need one familiar with my type of urinestomy and they definately are not at each hospital.


Have you discussed Skye in Spain with your friends yet? I'm not familiar enough about this subject in Spain, but be ware that there is more lack of knowledge and law to this subject in certain European countries. For instance, we have got no, zero, nothing when it comes to regulation of being allowed to bring an SD along anywhere. Some healthcare insurance companies will demand their contracted careproviders to allow entrance to an SD, it tends not to be a problem in public life, but each company can make their own set of rules. They can't refuse Skye on any flight (and to accompany you!) departing from, landing in and/or transferring within the European Union, though.

If you do go to Spain, have your suspension adjusted. We just love all of those old, good looking and horribly bumping cobble-stones. AK is as flat as can be for us. :lmao: I hanve't travelled within the EU too much since getting my Permobil. It was doable by manual chair, but with help from others and a good sence of humor. The more southern you go in Europe, the more challenging it tends to get. Positive; the more southern, the more helpfull the people. The real big toeristic stuff tend to be doable and if I remember correctly you've also got a Permobil? If so; those sure do help out a lot when dealing with 'getting creative'.

To be honest, I think it is an other league to compair travelling US-EU versus EU-US. We are used to our level of accessibility and the States sure beats that hands down! So for us, it's like going to a beautifull quite tropical island would be for those abledbodies who love to lay on the beach all day. When being used to the level of public acces the US has, it is a lot more difficult to have to do with less. I can manage doing Southern Europe, but even that relatively smaller difference is challenging for me also. It is one of the important reasons that I tend to travel to places like the US, Australia etc. Accessibility!

The funny thing is, I'm the one that is amazed by your spirit and constant trips to WDW. Sure, you are closer by, but need to drag around way more stuff than I do. Look out for Skye (and all of those visualy impared folks at WDW :rolleyes1 ) and the medical equipment. I've read previous experiences you've had that really made me go :thumbsup2 when I found out it didn't stop me.


For me personally, travelling gives my life the ultimate meaning. Travel gives me the same feeling as WDW does; ultimate freedom, happiness, hope and so on. I mean, how can one give that up out of free will? I more or less gladly deal with the physical pain it causes, it gives so much back! I do fear next year though. Not something going wrong per se. I know how to deal, by now. :lmao: But if there would be a 3rd time in a row...... pfffffff. Don't know if I'ld ever dare to fly with the powerchair any day soon again. No hesitation about the manual chair, but that's way to limited if I'm really honest. Oh well. Continental will just have to get me, friend and all of our chairs in perfect condition to MCO and back again next year. They need to. Too many resorts left I want to try out and I actually want to make it into Florida beyond Orlando one day. :rotfl2:
 














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