I'm Not Riding THAT! A Trip With Character! Piper's Wish Trip 3/2-8 - Upd-4/20

[goofy's_gurl]

Okay, just a quick update..there is NO room at the inn..literally! So much for being all packed and ready to go, though I'll be glad tomorrow! There is a room opening up at KCRC (the rehab center) opening up tomorrow with Piper's name on it..Lauren is going to call me in the am when it opens up. Piper is quite happy with this development..lol. Mommy is relatively happy, but still has that niggling thought that..okay..that means adding another day onto the stay!.. I need to look at a calendar and figure out if the three weeks would have us in over Easter, I'm thinking it will...okay, just checked the calendar, and we will be there for Easter, more than likely. On the upside, hospitals usually do it up over the holidays for the kids who are stuck there..and Charlottesville has a LOT more fun places to shop for an Easter basket! I suspect the family would also come up for the day. On the downside..hmm..can't think of a downside aside from the obvious one of being at the hospital! That works! So you guys are stuck with me for another night..just maybe I'll get the village tour post done since we're packed..hooray!

Aww, Well at least you'll have each other over Easter. Hopefully she'll be feeling much better by then too.

 

[cantwaittoseemickey]

So glad you got a room at the center instead of the hospital. Im so sorry you will be there over Easter though. Sounds like they have some good shopping though!

We are never just "stuck" with you girl! We are "blessed" with you!!

We will be in overnight this Thursday night. I hope your sleeping quarters are better then ours!!

 

[jenb1023]

Doesn't sound too shabby the way you put it! Can we come too? I bet you get pretty decent food brought right toyou too, don'tcha? Lucky.... Anyway... at least its not the reg hospital. And can we still send cards to that address thing? Good thing I didn't already send one! They'd think I was crazy- and they can't know the truth!!!

I already sent a card! That is what I get for trying to be on the ball! So, Amanda, will cards sent get to you or will they think I am crazy and that she is not there?

 

[maroo]

whoops! I sent a card, too!

They are going to think we are ALL crazy!

And is she breaking some sort of record for cards over there?!?!

 

[DISNEYaddict4evr]

Sending happy thoughts to Piper

 

[xanphylus]

I already sent a card! That is what I get for trying to be on the ball! So, Amanda, will cards sent get to you or will they think I am crazy and that she is not there?

whoops! I sent a card, too!

They are going to think we are ALL crazy!

And is she breaking some sort of record for cards over there?!?!

That's great!!! lol At least everyone here is a good kind of crazy!

 

[DisMomAmy]

I sent a card already too!

I was so late last time, I didn't want to get sidetracked again!

 

[pipersmom]

Doesn't sound too shabby the way you put it! Can we come too? I bet you get pretty decent food brought right toyou too, don'tcha? Lucky.... Anyway... at least its not the reg hospital. And can we still send cards to that address thing? Good thing I didn't already send one! They'd think I was crazy- and they can't know the truth!!!

Aww, Well at least you'll have each other over Easter. Hopefully she'll be feeling much better by then too.

So glad you got a room at the center instead of the hospital. Im so sorry you will be there over Easter though. Sounds like they have some good shopping though!

We are never just "stuck" with you girl! We are "blessed" with you!!

We will be in overnight this Thursday night. I hope your sleeping quarters are better then ours!!

I already sent a card! That is what I get for trying to be on the ball! So, Amanda, will cards sent get to you or will they think I am crazy and that she is not there?

whoops! I sent a card, too!

They are going to think we are ALL crazy!

And is she breaking some sort of record for cards over there?!?!

Sending happy thoughts to Piper

That's great!!! lol At least everyone here is a good kind of crazy!

I sent a card already too!

I was so late last time, I didn't want to get sidetracked again!

Okay..I just replied individually to everyone, then it ate my post! So..first..if anything they're probably going to think THEY'RE crazy with Piper having all these wonderful cards coming in and not being able to find her in the computer! And I completely agree with Jenn (Xanphylus) we need more "crazy" people in the world like you guys! I suspect you probably have set a record for the number of cards in acute care peds! Our room was wall-papered with them last time..it was awesome! Second..thank you all so much for taking the time to send the cards..Piper truly does love them, and spends a lot of time poring over them and re-reading them while she's there. We also appreciate all the continued prayers and positive thoughts, it means a lot to us to have all of you in our dis-family!

 

[cajunfan]

Maybe we can get you to pm me the rhehab center addy for some Easter goodies for Piper?

Lynn

 

[aboveH20]

There are no dormitories at the village. You would have to stay locally. 192 is one of the areas of "cheaper" motels. Also time of year makes a big difference. Prices are best in May and September. Volunteer shifts vary from a couple of hours to 4 or 6 and you can certainly due back to back and work all day. There is no minimum number of hours. All volunteer hours are greatly appreciated.

Katie

Thank for the info. Sounds like a church work camp in that respect. I haven't figure out a time, but I'll persue the opportunity. (I have a credit on Southwest, seems like this might be a good use for it!)

~Cheryl

 

[kdzbear]

I fell behind in reading again. I hope that you and Piper are not away from home too long again! I sent her a get well card. Take care of both of you!

 

[TinkerbelleMom]

OOPS! Another card sender who jumped the gun here too. Oh well, maybe they're realize she's not there before printing all our cards. I would like the address too...whoever gets it can PM me.

So, if the hospital is Club Med, what can you name this place? It has to be something fun sounding, Club Med sure sounds better than "hospital"

 

[Mtopher4]

Tell Piper we are all thinking about her

 

[Disneylover79]

for both you and Piper, I know you are worried about your little girl but the best thing I can tell you or anyone with a sick loved one is to be sure to TAKE care of YOURSELF...

 

[jordanyosh]

so she'll be in for 3 weeks? really? is something like what we did when she was at the regular hospital where can send e-cards? or can you PM the address of the rehab...

 

[pipersmom]

Maybe we can get you to pm me the rhehab center addy for some Easter goodies for Piper?

Lynn

I've pm'ed you, Lynn..thank you so much!

Thank for the info. Sounds like a church work camp in that respect. I haven't figure out a time, but I'll persue the opportunity. (I have a credit on Southwest, seems like this might be a good use for it!)

~Cheryl

Cheryl..and thank you so much for wanting to volunteer at the village. It truly is an absolutely awesome place for the families, and I'm sure the volunteering is very fun as well!

I fell behind in reading again. I hope that you and Piper are not away from home too long again! I sent her a get well card. Take care of both of you!

Thank you!

OOPS! Another card sender who jumped the gun here too. Oh well, maybe they're realize she's not there before printing all our cards. I would like the address too...whoever gets it can PM me.

So, if the hospital is Club Med, what can you name this place? It has to be something fun sounding, Club Med sure sounds better than "hospital"

LOL Nanci..I will pm you and Jordan the addy. On the site it says they just delete cards for patients who aren't patients.

Hmmm...if the hospital is Club Med.. for me, this would be the Spa! lol..will have to give that some thought and see if I can't come up with another one!

Tell Piper we are all thinking about her

Thank you!

for both you and Piper, I know you are worried about your little girl but the best thing I can tell you or anyone with a sick loved one is to be sure to TAKE care of YOURSELF...

And thank you so much! I do my best, but I think after this admission it's going to be time for Piper to spend the night with her cousin, lol..we've been together 24/7 since Thanksgiving, and as much as I love her, I think we're both ready for a break!

so she'll be in for 3 weeks? really? is something like what we did when she was at the regular hospital where can send e-cards? or can you PM the address of the rehab...

Jordan, I'm hypothesizing three weeks based on the fact that if they put her on the same IVs they did last time, one is a med that has to be monitored in the hospital because of the amount of kidney damage it can cause. Three weeks is the usual amount of time they put her on IVs when she's having an exacerbation. I could happily be wrong, but I'm 95% sure that will be the case. You can send e-cards through the same site, just put KCRC under the room number spot..I think they forward them and print them out from there. I'll pm you the addy when I fwd it to Nanci.

 

[mrsksomeday]

You and Piper are always in my thoughts and prayers.

 

[pipersmom]

You and Piper are always in my thoughts and prayers.

Thank you, Tracy!

 

[Moosemomma]

whoops! I sent a card, too!

They are going to think we are ALL crazy!

And is she breaking some sort of record for cards over there?!?!

Then I'm crazy too

 

[WDWAtLast]

Oh no, 3 weeks!!! So where should we send the e cards??