Markiesgirl
Go Colts!
- Joined
- Mar 21, 2000
- Messages
- 109
My 14yr old daughter also has extensive Morphea on her face, neck, belly and back. I freaked at the Scleroderma diagnosis and like you ran to the internet. She sees a pediatric rheumatologist as well as a dermatologist. They initially did a ton of bloodwork to confirm as well as rule out things like lupus. She is on very aggresive treatment right now and is on prednisone as well as a drug called methotrexate and topical creams and she is tanning 3 times a week. The nearest light therapy bed is 2 hours away so we're trying this route first. The dermatologist said he spends 99% of his time telling people to stay out of the sun but for morphea it's a way to slow it down.
She has routine bloodwork to monitor her organs because of the meds but the sad thing is there is no cure only control. The drs told me it's very very rare for this to turn into the bad kind of scheroderma.
One site I like is http://sclero.org/medical/about-sd/types/localized/morphea/rare-types/a-to-z.html#artefacta It helps explain the different types of morphea. Hang in there and try not to worry! It can be treated and is not life threatening and looks like you caught it pretty early with only one spot. Hugs!!
She has routine bloodwork to monitor her organs because of the meds but the sad thing is there is no cure only control. The drs told me it's very very rare for this to turn into the bad kind of scheroderma.
One site I like is http://sclero.org/medical/about-sd/types/localized/morphea/rare-types/a-to-z.html#artefacta It helps explain the different types of morphea. Hang in there and try not to worry! It can be treated and is not life threatening and looks like you caught it pretty early with only one spot. Hugs!!
Of course you're freaking out, this is your baby! I remember your post too about her little dimple. It seriously could be absolutley nothing to worry about. We had a health scare at my DD6's annual check-up when our pediatrician heard a 'weird' heart sound. I totally freaked, looked it up online and scared the living daylights out of myself. It turned out to be benign thank God! But until all her testing was done, I was convinced it was going to be something awful. Moms worry, it comes with the territory doesn't it? Please don't read about signs and symptoms online. If you look hard enough, you'd be able to diagnose yourself with something awful! Let the specialist examine her, do whatever tests they need and go from there. Like my DH says, don't put the cart before the horse. Which of course means don't start worrying about something that may not be. I'll be thinking about your little girl, she's adorable!
