if you can spare any, I sure could use any good thoughts.....small update #63

[Briarmom]

V:

You will continue to be in my thoughts.

Remember there are a lot of people out there sending thoughts and prayers, whether or not they are able to say it here on the DIS.

 

[Magic Mom]

It's good to see they aren't dragging their feet with the testing. Please keep us updated. You have lots of support here.

 

[Scurvy]

I'm sorry you didn't get better news today. My husband had a possible MS diagnosis a couple of years ago and I remember how scary it was. I suggest that you don't Google it too much - most of the things we found were "worst case scenerios" and just made everything seem scarier. Then we found out a neighbor has it and we talked to her about it. She has some problems, but her life is much better than we would have expected after reading some of the horror stories online. And maybe this will turn out to be a false alarm and it will actually be something less serious. I'll keep you in my thoughts and prayers!

 

[laurie31]

thanks guys...well, he didn't tell me much, initial diagnosis for today is MS and I have an MRI with IV dye of the brain and C-spine on Sunday. Will take 2 hours.


I am thinking he had to put a dx down for the orders but still worries me. So I do this on Sunday and then go back to him on Friday. He gave me an rx to help me sleep....I have been pretty afraid to go to sleep, not sure I will wake up.

I do have to say, regardless of what this turns out to be, it sure puts my life in perspective. Scared I won't be around for my two girls.

I hope you get a more specific diagnosis from the tests. I'll keep you and your family in my prayers.

 

[minniebeth]

You will continue to be in my thoughts and prayers!

 

[minkydog]

Wow, pretty upsetting news to get on a Friday. HOpe your MRI gives you answers. MS is usually more of a chronic illness, rather than acute. Most people who have it live with it for years, managing the various symptoms.

As bad as that news is for you, sometimes just knowing what your'e dealing with is a relief. My DH has a serious incurable chronic illness, and just knowing what the treatment is gives me comfort. I cannot think so far into the future because I get upset. I cannot let myself get overcome with worry and anxiety--grieveing for what MIGHT happen is a time and energy waster.

Love on your babies this weekend and try to keep a clear head, okay?

 

[mickeyboat]

V. I know you are scared, but if it is MS, there are some wonderful meds that help people live happy, full lives.

Take one day at a time.

PS - are you asking for something to relax you for the MRI?

 

[lillygator]

V. I know you are scared, but if it is MS, there are some wonderful meds that help people live happy, full lives.

Take one day at a time.

PS - are you asking for something to relax you for the MRI?

well, I have no clue what to expect, but since it is 2 hours, I asked for the open scanner...she asked if I wanted to be sedated, but I think with the open scanner I will be ok. I hope!

and thank you all so much for all your thoughts, here and everywhere.... funny, but not funny, the doc took one look at me and he says omg you are so anxious...really? I haven't been able to think of much else. and I look at MS symptoms and really, I am just confused (and not in a nutty way)...but I am in no pain so I am thankful for that.

thanks again all...will post my experience on Sunday...DH will be home with the girls so hopefully I know some of the rad techs and they can keep me occupied!

 

[rie'smom]

My prayers are with you.

 

[nskjerven]

V:

Can you plan a back-up driver for you in case you decide you need a relax drug that day? I wish I was closer, sweetie I'd so be there with you. It's ok for you to lean on your friends/family (maybe sis?) I know you are the one that carries it mostly for everyone else, but honey sometimes we need to let others help us. I bet even a mom of the friend of the girls would do this for you, or better yet, have them watch the girls and have Charming with you. He can offer you wonderful support during times like these. ASK for HELP

p.s. had to add, sorry I'm so bossy but you know it's all with love for you sweetie

 

[Gagirl69]

I'll be praying for you. I was diagnosed with MS 2 years ago and I know it can be quite overwhelming when you are processing all this information. Do not believe you will have every symptom you read online. I googled my symptoms (big mistake) and sat at my computer looking at the long list of symptoms for MS and started crying. I know now that I did not have all the facts about MS. Life is great. My symptoms are minimal. You can PM me if you want to talk more. Like you said, it does put alot of things in perspective. You'll be in my thoughts. Update us when you know more.

 

[lillygator]

thanks all!

well today is the day. Nan, I do have a back up...even though its the open scanner with what they say the noise level is, etc...I think they need to just knock me out!! So I am maxing and relaxing until I head over to the hospital.

Samantha had a great Halloween and bday yesterday, we had a party and TOT'ing, worn out today though.

gagirl - do your symptoms come and go or is it a constant thing?

 

[Disneylover79]

I am glad you decided to go with the sedation...2 hours is a long time to have an MRI and it is noisy...you will do fine though..hopefully they will have some earphones for you to use so that will help distract....goodluck

 

[PrincessKsMom]

Sending more hugs and pixie dust your way! Good luck today and take the drugs!

 

[KiKi Mouse]

I was diagnosed with MS at year ago at age 42. One of the scariest moments of my life was going to the neuro for the results of the MRI. He did not suspect MS and thought it could be a brain tumour. Thankfully it wasn't.
I haven't had any big flare ups since Dec 2007. I am now 43 and 21 weeks pregnant. Life goes on!
If you do get a diagnosis of MS they can't tell what kind it is right away. You'll need to go for regular MRIs and they will look at the changes. Mine have been stable. Hopefully yours will be too.
Stay away from the internet because it will scare the carp out of you.
Take 2000-3000 units of Vitamin D, take B12, and all your other vitamins & supplements. Try and get rest as the chronic fatigue can be crushing. Eat well, exercise if you can and live your life

 

[rie'smom]

thanks all!

well today is the day. Nan, I do have a back up...even though its the open scanner with what they say the noise level is, etc...I think they need to just knock me out!! So I am maxing and relaxing until I head over to the hospital.

Samantha had a great Halloween and bday yesterday, we had a party and TOT'ing, worn out today though.

gagirl - do your symptoms come and go or is it a constant thing?

I just woke up bur wanted to say you made the right choice with the sedation. The noise with the open MRI is louder than it is with the closed. Last time I had an open and I swore if I ever had to have another one, they were going to knock me out- it was horrible.

 

[RitaZ.]

I hope all goes well today.

 

[pigletgirl]

I just wanted to say, my mom was just diagnosed with MS a year ago, this past Oct, and she's doing really well.

The initial diagnosis is really scary, but as it all rolls out, its ok. She's actually part of a study right now, and she's been stable (no changes) for a year.

Hope it all goes well today!

 

[lillygator]

actually I wasn't "out" but more loopy....yes the noises were there but being in the more open machine was a godsend. The tech was very nice but of course could not tell me anything. I will head to med records tomorrow to see if I can pick them up.

as I came out there was a very elderly IP waiting his turn so they turn that machine around pretty quick even on a Sunday! The dye is giving me some sort of weird reaction, but I am dealing....got myself some comfort foods and enjoying a glass of wine.

My next appt with my neurologist is Friday...It seems an eternity to me. I am just gonna pray for the best. Thank to everyone for all your kind thoughts and prayers. In "real life", I have told my FB friends but only a few are here in town, kind of keeping it close until I know for sure.

DH is kind of being a - in not so many words - a jerk. I am not sure if he is dealing with this at all, but if I hear "oh my back is killing me" or some other ailment (of his) I am going to throw something at him with my feeling arm. I guess he doesn't realize that while I can't feel half my body, I am beyond myself with worry and fear. So thanks again you guys....will update as I know anything.

 

[PrincessKsMom]

Sorry your husband isn't meeting your emotional needs right now. I think the wife/mother tends to be the rock of the house, so everyone assumes we will also continue to be that rock. Please take care of yourself and come back to vent and keep us up-to-date.