I have Raynauds Syndrome

[slo]

I was diagnosed with Raynauds Syndrome yesterday, and my doctor is having me go to a Neurogologist to see what is causing this. I'm trying to be strong, but I'm really nervous.

If you have Raynauds Syndrome, did you have to go to a Neurologist? If so, what did they test for?

Thanks!!!!


Edited to add: If anyone is interested on what Raynauds Syndrome is, here is an informative link: http://www.midwestarthritis.com/html/raynauds.htm

 

[Christine]

I don't know why you would go to a neurologist. I thought Raynaud's was an autoimmune disorder.

 

[mommytotwo]

Sending hugs and pixie dust your way.

 

[The Mystery Machine]

I just wanted to give you {{{{HUGS}}}}}....

 

[makinorlando]

and

 

[slo]

I don't know why you would go to a neurologist. I thought Raynaud's was an autoimmune disorder.

The reason is because my doctor told me that Raynaud's is caused my a nervous system/circulatory problem. I guess the Neurologist needs to find out what exactly is causing this

 

[Disney1fan2002]

Raynuad's is usually associated with an autoimmune disorder. Something as simple as a thryoid problem. I have raynauds, plus 2 of my sister's have it. It is not a pleasant disease. Not too sure why a nuerologist would be needed.

Stock up on gloves, and hand warmers. My sister is actually considering moving to a southern state for the warmth, because of how bad her raynaud is. To me, it is uncomfortable and annoying, but I can live with it.

 

[Kristi1357]

I have been diagnosed with this also. I was never sent to a neurologist either. I am also hypothyroid and have always had very poor circulation.

Try not to worry too much!

 

[LBAK]

I have Raynauds but I was diagnose thorugh a rheumatologist not a neurologist. It usually goes hand in hand with autoimmune diseases. Get used to wearing gloves. I have tons of them in all colors.

 

[slo]

Thank you for all your responses.

 

[Dan Murphy]

's Sandy. I saw you on the Chicago thread this AM.

 

[CrazedDisFan]

My mom has Reynaud's also. She does see both a rheumatologist and a neurologist. Her Reynauds is far mor prevelant in the feet. Best Wishes. My mom has had this for years and she is doing extremly well.

 

[popeyeohoh]

My husband's aunt had the disease. She also had scleraderma (sp) She lived with it for a long time. I know she had some bad episode with it. She had some type of surgery back in the late 80's by a dr. in Chicago. That helped alot. He was supposed to have been a pioneer in this type of surgery. He was killed in a car accident and she never found another dr that did this surgery. I don't know what it was called I just remember that it was involved her shoulder area.

 

[LuvN~Travel]

I can relate to the arthritis thing, but when I injured my back in December, my doctor actually sent me to a neurologist. It is an herniated disk with a pinched nerve. I definitely would've thought the doctor would have sent me to an orthopedist. Go figure! Docs can be so strange sometimes.
Good luck with any treatments.
Kim

 

[slo]

I am bumping this to see if anyone tonight has some advice

 

[Laurajean1014]

Sorry to hear about your pain (I read your link, thank you). Would you consider moving south to help you with your condition/pain. I'm sure it gets quite cold in your area. Maybe some place were the temp doesn't go too much below 40 would be best?

 

[tarheelmjfan]

I have the disease also. It can affect my fingers & toes. One other thing it causes for me is a runny nose. Not because I have a cold, but only because my nose is cold. I have 2 nieces with it, which makes sense, since my dr. said it's hereditary. Moving to Florida has make a huge difference for me. I still get the symptoms occasionally, but nowhere near as often as I did in NC & VA. Sorry, I don't have more advice.

 

[momrek06]

OMG, I suffer terrible from this both feet and fingers but I have never thought about going to an MD. I generally have my index finger that loses complete color (my sons say GROSS, MOM) and my hand is freezing and then my TOES....it comes and goes and almost always in the winter only. Something I just DEAL with. I recently had blood work done and my thyroid was perfect. MD actually said, no need to have it done again for 5 years...hhmmm....so IF my thyroid is fine, why exactly is this happening....hhmmm....some people say that it is generally smokers...but I have never smoked in my life....sooo!!! I guess I will just deal with that along with the recent horrible pains I am getting in my left wrist which I am thinking is now carpal tunnels syndrome!! Oh I am just a complete MESS!!!

 

[Bashful2]

I was diagnosed with Reynaud's about 30 years ago. I never went to a neurologist for it. I was diagnosed at age 19, around the same time I was diagnosed with arthritis. Unlike the arthritis, I've never had huge problems with the Reynaud's. Since I've lived in the south for the past 25 years, I usually don't even notice it.

 

[Nite0wl71]

Sandy, I haven't been on the Chicago board for a few days I am going to go look at the link you posted.