~How TWO trips became...who knows? ~ It's a TRIP! and an upgrade.... 4/22

[maroo]

(did anyone notice this smilie pop in on our front page of smilies today?)

Webmaster Corey added that in honor of Noah.

 

[If U Had Wings]

Maroo, I am so sorry to hear about Noah. All my prayers are with his familiy and Rachel.

 

[maroo]

Update on Rachel -

For those of you guys wondering...

I really have no update on Rachel. I have been calling and texting and all I have so far is that she is "the same"... they need a media contact! A press secretary! To keep us all updated.

If I don't have solid information by lunch, I will be going there for lunch.

More as I know!

 

[Sandy321]

continued prayers -

thanks for telling me about Noah's smilie

Get some rest Maroo - you have to make time for rest!!

 

[maroo]

Update Thursday #2

I am still at work and have not seen Rachel for myself, but all reports are that she is much worse today. Not able to recognize the people around her. Now she is just saying the same few words (which were the last ones we were saying to her last night to get her to calm down...)

sshh...
sshh...
and she is counting.

In the words of my pastor..."it is horrible, horrible...heartbreaking"

I am going to stay at work and work through lunch (I have lots I really have to do) and I am going to try to get off the DIS for a little while.

I will update you guys again after I have seen her myself, hopefully around 4 this afternoon central time.

 

[All7OfUs]

Maroo, it must be so incredibly hard to watch a good friend suffer, but be reminded God DOES have a plan :J) He, who is Good and Faithful is watching over her- and you too!

Grief is a hard thing to go through, if you need to talk you know where to find me.

 

[Sandy321]

continued prayers!

 

[maroo]

Update #3 for Thursday, July 30

I am sitting here with Rachel. She is resting and worship music is playing in her room. Very peaceful.

But the past few hours have not been good for them. A bunch of "white coats" - ok, doctors, but today they all looked like blobs in white coats...because it was just so surreal (strange how their faces seem to fade when the words coming out of their mouths are so dizzying) - came around and let Joyce know that indeed they have no idea what is causing this. And that at this point they are only trying to make her comfortable.

No idea what sort of time table we have here...but her lab results are indicative of someone getting much worse, not better. And this has all happened so fast.

Just a week or so ago we were all excitedly talking about our trip to Disney World and now...

Ra has not been awake since I have been here...so I have not seen her disposition for myself.

But for now I am just sick.

Thank you all so much for your posts, PM's, emails, and calls. They mean so very much to me. It has been a difficult few days.

 

[jenb1023]

I am glad to hear Rachel is resting peacefully but my heart aches for all of you. Hang in there and keep us posted.

 

[maroo]

Hey guys.

The Honoring Noah thread just got locked....I am working on getting it unlocked...

 

[Sandy321]

Hey guys.

The Honoring Noah thread just got locked....I am working on getting it unlocked...

oh for heaven's sake - is it because some nerd thinks we're "soliciting funds"? I know that Webmaster Alex, or Pete allowed the Deb's Walk for Cancer to be posted!! I think they fear the "what ifs"

oh its not locked now!!



I've been in a hospital room like that - I've been praying, and remembering my best friend Debbie who died from Cystic Fibrosis way back in the early '80s - and I remember when she finally found rest - sleep - and how the doctor's helped us - back then I had a prayer group - prayer warriors that came and prayed thru the night!! You all are on God's time - we dont know what He has in store for us - but we do Trust in Him!!

 

[maroo]

oh for heaven's sake - is it because some nerd thinks we're "soliciting funds"? I know that Webmaster Alex, or Pete allowed the Deb's Walk for Cancer to be posted!! I think they fear the "what ifs"

oh its not locked now!!



I've been in a hospital room like that - I've been praying, and remembering my best friend Debbie who died from Cystic Fibrosis way back in the early '80s - and I remember when she finally found rest - sleep - and how the doctor's helped us - back then I had a prayer group - prayer warriors that came and prayed thru the night!! You all are on God's time - we dont know what He has in store for us - but we do Trust in Him!!

I guess it was opened pretty quick??? I am so confused.

Anyway...

Rachel is still sleeping.

Sandy- your prayers mean so much to me!! Keep them coming! They are etched in forever when you pray them here...

The Deacons from our church just came and prayed and we have folks now praying around the clock - we know He is here.

 

[VroomVroomLightning]

I just wanted to tell you for the longest time I have been following your trip reports and now today I have went through and probably read more than 10Make a Wish trip reports. You are such an amazing person with the help that you are giving to these families. You are in my prayers along with Noah's family and your dear friend Rachel. It's times like this when so much happens at once that you just take a moment and remind yourself how thankful we are for the little things in life.

Last week I had signed up for the Dis Big Give for Lucas' family. And, until everything that had happened with Noah I had put it to the back of my mind because I have so much other stuff going on as I know we all do. As I started reading the Trip Reports today I couldn't stop crying at how amazing these families are. I went right out and bought the stuff for Lucas' give and will be buying the things for the other give in the next week or so.

Sorry that i hijacked your thread I just wanted to say how amazing of a person you are and that the world needs more people like you.

On another note..again..I willll miss you by one day in September We are arriving in the evening on the 10th!!

Maybe another time we can meet up!

Ok again sorry for hijacking this thread!

 

[TarzansKat]

Maroo, I just want you to know I'm still thinking of you, and praying for you and all the families.

 

[eyor44]

Maroo, just checking to see what has transpired today and how Rachel is. We will keep praying. Take care of yourself.

 

[shannn]

I will be away from the boards for a few days, but I wanted to check in with you and assure you that I have been and will continue praying for Rachel. Please feel the love and support of all the boards surrounding you through everything and know we're with you.

 

[maroo]

Friday Update #1 - ICU

Rachel is now in the ICU. She had trouble breathing last night and they moved her to the Medical ICU. Rachel has a Do Not Resuscitate order, so they will not be intubating her or doing any heroic measures. We have no timetable for this, but it seems like things are continuing to go downhill fast.

Please pray for Joyce. And that the whole situation would work out for God's glory.

Thank you for praying!

 

[All7OfUs]

You know we are!

 

[jenb1023]

I checked first thing this morning to see if you had updated yet. I am so sorry. Prayers are being sent to all of you.

 

[Sandy321]

Maroo -

I know not what His plan is - but I join the circle that knows with all our hearts that He is with us - and we must trust Him. Know Maroo, He is using you - and you are allowed to take comfort in His broad shoulders - lean on Him - know God also cries. It is times like these where I take to heart the poem of Footprints in the sand - There was a song I learned in choir - "For those tears I died" and Jesus said come to the water, stand by my side, I know you are thirsty, you wont be denied . . . for I felt every tear drop when in darkness you cried and I strove to remind you - for those tears I died"

know Maroo and share with Joyce - all over this great land - we are joining in prayer - we are lifting you and Rachel and her family up in prayer!!