how much $$$ needed for MAW trips

barrysprot36,
You have a right to your opinion. You did take my quote out of context, tho. You may not know my personal family situation, how I referred my dd for the MAW/ DW trip. If you read the thread here, on the Disabilities board called, " Officially out of diapers!", it explains on my post how my parents gave false promises to my dd as well as my ds on taking them to DW.
You can read that post for yourself if you want. My family and are are very grateful that we were blessed to go to WDW via MAW.
This is the first time to WDW for my dd and ds( 7yr. old twins and both disabled/special needs). So how can I not be grateful?
I wrote thank you notes to our Wish Coordinator and the private donation couple that donated their yearly money to our local MAW office. I have called and thanked our Wish Granter and other people that made my dd's wish come true. I have sent pictures from our Wish trip to our Wish granter and our local MAW office.
As of my comment about the Olympics and all, it's a lot more money to send Wish kids to the Olympics/Greece from the US than from England/Europe. I'm guessing my local MAW office probably spent about $10,000-$15,000 for each Wish child to go to the Greece Olympics this summer( much more money than sending a Wish kid to WDW!). I am happy the Wish kids that went to the Olympics were able to go via MAW.
So barrysprot36, you can think what you want on what I said.

And I do and did want what is best for my own children, that's why I referred my dd to MAW in the first place. My dh and I cannot afford to go to WDW. I know on these posts and threads on the Disboard, that a lot of families do go very often to WDW or DL in California. They may have the money for all that and if they can afford it, that's fine. I know personally, my dh and I cannot afford these kind of trips. We don't have that kind of money.
It may be different living in England/Britian where most of everyone gets paid the same wages?(except if you are Paul McCartney or Ringo Starr). And you have universal healthcare, etc. You can correct me if I'm wrong, I've never been to England or Europe.

Usually these Disboards are pretty positive, nobody usually attacks each other on these boards. So, I am surprised you were negative in your statements. Maybe you should be more positive next time you write a post!
PS. I do love the Beatles and Paul and Ringo!
:bounce: :bounce:
 
I don't usually have to step in to do this, but here's a reminder:
Please Play Nice....
Also, keep in mind that a big part of communication is missed when you are reading something on a board like this. Things like tone of voice, volume and "body language" (as Ursula sings in The Little Mermaid) are missing and can make a big difference in the interpretation of a message. So sometimes somtehing comes off being harsh when read, but if it had the tone of voice, body language and facial expressions attached to it that the writer was thinking of when they wrote it, it would sound a lot different.
 
I am so sorry that is an issue that I or anyone else would want to make this trip an excellent experience for their child. I really don't think anyone is being greedy. I am not sure how you can say that in regard to MAW kids. Do you have any idea what kids have to go/or have gone thru to qualify for a wish? I can tell you personally my son has been to heck and back.......do you know how many times? You don't know, and unfortunately I feel obligated to tell you or explain myself. I want my child to have what may be the only family vaction we can every take together to be as close to perfect as possible. So I need information. I need to plan. I have to budget so I can get some of the things MAW doesn't cover. I am a single parent of twin boys that recieves no child support. I don't have the luxury of saying whatever we don't see this time, we will see next time. There will be no next time. I could not possibly pay for a nurse to come with us again and that is what is required for his health. So yes I will be asking a lot of questions. I apologize if someone feels they are inapropriate.
That really makes me sad that someone would post that comment
Virginia:(
 
Your child's pin that they will wear from Give Kids The World will serve as your parking pass. You will not have to pay to park. You can just show the pin when you go through the gate.
 

My dd also went thru heck and back the first few months of her life. She was in critical condition her first 4 months. She was born with a complex congenital heart defect. She has had 3 heart surgeries. After her first heart surgery at 5 weeks of age, she ended up having a very serious Staph Aureus infection- systemic infection. She had to stay in the PICU for 2 and a half months and have very high doses of antibiotics. Also the heart surgeon had to go back into her heart and take out an abscess. They couldn't suture her back up, they had to heal her incision by packing it with guaze and sterile saline 2-3 times a day. This procedure was done for 2 months. She almost died from the infection. She has been stable now for awhile. My dd will still need future heart surgery as she grows. My dd's cardiologist who approved her for MAW remembers how my dd's condition was when she was an infant. He had no problem approving her because of all she went thru. So I don't think I or anyone else is greedy, either. All of us that have been approved or will be approved from MAW have children that have gone thru alot and their disability is life-threatening. We all are blessed for qualifying for MAW.

I know the one I thank the most is Jesus, my personal Savior and Friend. He was the One I went to with my prayers and requests of the whole MAW planning, getting approved,etc. God was the ultimate one who really made my family's MAW trip special.

Virginia, I'm sorry to hear you are a single mom dealing with your ds special needs/ disabilities as well as having a twin. I can't imagine what you go thru. I do hope you will be able to get your questions answered on this board. And have a wonderful, beautiful WDW vacation!

:wave: :wave2:
 
NOTE from Moderator: Thread moved; was posted on wrong thread.
cuddlebugz
Welcomed Guest

Registered: Sep 2004
Location: Bremerton Washington
Posts: 10 To Sue M.

Thank-you so much for the wonderful info. I am taking her shoe shopping before we go and making sure the shoes we get are very comfy for her.

I am forever grateful to MAW for granting my dd wish trip. Her Dr. recomended her and that is how I first learned about them. They are such wonderful caring people. To me this up coming trip means no hospital room walls to look at for a week and to see a smile on my DD face from the moment we board the plan to the moment we arrive home well be my biggest joy. I well be forever thankful to MAW for those moments.

I did talk with my wish person and learned that they do pay for parking (well atleast they well be paying for ours not sure if it works that way for everyone??)

Thank-you
Tammi
 
I just found out from our MAW granter that we can get extra days beyond the 3 day GKTW pass for Disney. Our local office is getting the extra days since they understand my little guy can't stay in the park for long periods of time and Disney is his main focus. They are so nice and are willing to make this about what my son wants.

Now if only February would only get here! We did get to go to Disney on Ice last night through MAW as part of his "building up for his trip" I can't say enouch good about MAW.

Lori
 
I hope everyone has GREAT trips!!

Yes it is hard to get one of these trips, my friends daughter was referred twice to MAW and turned down because she could not verbalize her wish. I felt so sorry for my friend she already had enough to deal with as her daughter was not expected to survive another year.

Thanks to a wonderful group I found thanks to WDW I was able to put the two of them together and her wish was granted! They made some awesome memories at WDW!
 












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