Good park snacks for new Type 1 Diabetic child

We're back from our 2 week Florida stay. Glad to report we had no trouble at all. My daughter ran high for the most part due to the stress of travel I guess. We took our nurse's advice and did the best we could and now we're home and back on track. Counting carbs for restaurant meals is sooo different from the way we eat at home. Holiday was fun, but relieved to be back at home and in regular routine. Hopefully within a day or two her readings will be back to her normally great numbers.
Thanks to all for the advice.
 
We're back from our 2 week Florida stay. Glad to report we had no trouble at all. My daughter ran high for the most part due to the stress of travel I guess. We took our nurse's advice and did the best we could and now we're home and back on track. Counting carbs for restaurant meals is sooo different from the way we eat at home. Holiday was fun, but relieved to be back at home and in regular routine. Hopefully within a day or two her readings will be back to her normally great numbers.
Thanks to all for the advice.

Glad you had a good time!!
 
I wonder if anyone can share their expertise. As I said, on our trip, especially the last part, my daughter ran high. There could be lots of reasons for that - 1. I didn't give her enough to cover her carbs at some meals (very likely) 2. her insulin has lost some strength due to warmer weather and travel (I used a frio bag, but still - it was very warm weather) 3. She is exiting her honeymoon phase 4. Just the excitement of travel
I know that diabetes is a constant learning curve, but I am thinking of throwing out her vials and starting new ones that never left home to see if it brings her down. We have been home now for a day and she is still running high (in the mid to high teens). How long does it take after a period of higher readings do things take to get back to normal readings? I know it's like asking how many marbles can you fit in a jar, but just wondered if anyone has some thoughts.
 
I wonder if anyone can share their expertise. As I said, on our trip, especially the last part, my daughter ran high. There could be lots of reasons for that - 1. I didn't give her enough to cover her carbs at some meals (very likely) 2. her insulin has lost some strength due to warmer weather and travel (I used a frio bag, but still - it was very warm weather) 3. She is exiting her honeymoon phase 4. Just the excitement of travel
I know that diabetes is a constant learning curve, but I am thinking of throwing out her vials and starting new ones that never left home to see if it brings her down. We have been home now for a day and she is still running high (in the mid to high teens). How long does it take after a period of higher readings do things take to get back to normal readings? I know it's like asking how many marbles can you fit in a jar, but just wondered if anyone has some thoughts.

Idk...I wouldn't throw away her insulin....I would doubt it would affect it that much. I don't keep my insulin in an insulated bag at WDW and our last trip was in the mid 80's. It really depends, I'd say after 24 hours, to look for it to start to go down. Maybe anywhere between 24-48 hours?
Also, I don't know what mid to high teens is as in the USA we have a different scale...
 

Idk...I wouldn't throw away her insulin....I would doubt it would affect it that much. I don't keep my insulin in an insulated bag at WDW and our last trip was in the mid 80's. It really depends, I'd say after 24 hours, to look for it to start to go down. Maybe anywhere between 24-48 hours?
Also, I don't know what mid to high teens is as in the USA we have a different scale...

Yes, our scale is different. She was running in the 250-360 range for the U.S. (I think I converted that right)
 
Yes, our scale is different. She was running in the 250-360 range for the U.S. (I think I converted that right)

Eek. That's very high....if it doesn't go down, I'd call her doctor, or if you feel comfortable adjusting her insulin yourself maybe try that...
 
I wonder if anyone can share their expertise. As I said, on our trip, especially the last part, my daughter ran high. There could be lots of reasons for that - 1. I didn't give her enough to cover her carbs at some meals (very likely) 2. her insulin has lost some strength due to warmer weather and travel (I used a frio bag, but still - it was very warm weather) 3. She is exiting her honeymoon phase 4. Just the excitement of travel
I know that diabetes is a constant learning curve, but I am thinking of throwing out her vials and starting new ones that never left home to see if it brings her down. We have been home now for a day and she is still running high (in the mid to high teens). How long does it take after a period of higher readings do things take to get back to normal readings? I know it's like asking how many marbles can you fit in a jar, but just wondered if anyone has some thoughts.
My best guess would be that it was restaurant food. Most food cooked in restaurants is loaded with fat. It's why it tastes so good. The problem is that even if you dose appropriately for carbs, that fat eventually converts to glucose, hours and hours later. So you probably gave her enough to cover the carbs, but you got hit with fat spikes. It's one of those things that you learn how to manage better, the more you do it. Just trial and error.

I wouldn't worry about the insulin unless it was really stored in the heat (like in a car). If it was simply in your bag, in the frio, it's fine. Insulin is far more stable than you'd believe. In just under 9 years, we've really only had one vial ever go completely bad.

I know those numbers sound high, but I assume you're correcting them, but I imagine they're just bouncing back, right? Sometimes stress (even good stress from travel) and the highs that come with it, can cause an increase in total insulin needs that never really go back down to what they were, especially in a honeymooning child. It's normal. You see the same thing often when kids get sick early on. Their insulin needs go up during the cold but never quite come back down again. So you could just need an overall increase across the board. I'd give it another day to level out and then maybe put a call into your doctor to have them adjust, unless you're comfortable doing it.
 
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My best guess would be that it was restaurant food. Most food cooked in restaurants is loaded with fat. It's why it tastes so good. The problem is that even if you dose appropriately for carbs, that fat eventually converts to glucose, hours and hours later. So you probably gave her enough to cover the carbs, but you got hit with fat spikes. It's one of those things that you learn how to manage better, the more you do it. Just trial and error.

I wouldn't worry about the insulin unless it was really stored in the heat (like in a car). If it was simply in your bag, in the frio, it's fine. Insulin is far more stable than you'd believe. In just under 9 years, we've really only had one vial ever go completely bad.

I know those numbers sound high, but I assume you're correcting them, but I imagine they're just bouncing back, right? Sometimes stress (even good stress from travel) and the highs that come with it, can cause an increase in total insulin needs that never really go back down to what they were, especially in a honeymooning child. It's normal. You see the same thing often when kids get sick early on. Their insulin needs go up during the cold but never quite come back down again. So you could just need an overall increase across the board. I'd give it another day to level out and then maybe put a call into your doctor to have them adjust, unless you're comfortable doing it.

I am sure you're right about the restaurant food and unpredictable fat highs. Being a newbie, I frankly was sometimes afraid to give her as high a dose as she may have needed - didn't want to give her double or triple the insulin I normally would for an "at home" meal (for example, we ate at Wendy's one night- total carbs - 150 - there was no way I was going to give her 15 units of rapid based on her 1:10 ratio) Also with snacking, off regular meal schedule etc. didn't help her highs.
Actually, today she came down - like breaking a fever. It took 24 hours to clear out, but she went from 17 after school to 7 (in range) before supper without any added insulin at that time. I am comfortable adjusting her long acting and rapid and ratios, so if I find it needs tweaking, I will increase it. I will email our diabetic team if it's still a mystery. Thank you for the advice. Much appreciated. I guess in hindsight, I should have increased her NPH by several units while on vacation to cover more of those long lasting highs. Like you said - trial and error. Thanks again.
 
I am sure you're right about the restaurant food and unpredictable fat highs. Being a newbie, I frankly was sometimes afraid to give her as high a dose as she may have needed - didn't want to give her double or triple the insulin I normally would for an "at home" meal (for example, we ate at Wendy's one night- total carbs - 150 - there was no way I was going to give her 15 units of rapid based on her 1:10 ratio) Also with snacking, off regular meal schedule etc. didn't help her highs.
Actually, today she came down - like breaking a fever. It took 24 hours to clear out, but she went from 17 after school to 7 (in range) before supper without any added insulin at that time. I am comfortable adjusting her long acting and rapid and ratios, so if I find it needs tweaking, I will increase it. I will email our diabetic team if it's still a mystery. Thank you for the advice. Much appreciated. I guess in hindsight, I should have increased her NPH by several units while on vacation to cover more of those long lasting highs. Like you said - trial and error. Thanks again.
It's definitely a live and learn thing. And I completely understand about giving giant doses so early on, especially when you're unsure of the actual carb count, and you're in unfamiliar surroundings, expecting a low to hit at any time.

If it makes you feel better, when my son was little I remember one breakfast buffet where he got..wait for it...2 whole units. LOL. I thought that was a lot at the time. LOL. His ratios were up around 1:50. LOL.
 
I know those numbers sound high, but I assume you're correcting them, but I imagine they're just bouncing back, right? Sometimes stress (even good stress from travel) and the highs that come with it, can cause an increase in total insulin needs that never really go back down to what they were, especially in a honeymooning child. It's normal. You see the same thing often when kids get sick early on. Their insulin needs go up during the cold but never quite come back down again. So you could just need an overall increase across the board. I'd give it another day to level out and then maybe put a call into your doctor to have them adjust, unless you're comfortable doing it.

This is what happened with DD. She ran high all week at Disney and we had to change her ratios. When we came home she never did go back to her pretrip ratios but here numbers did finally level back out.

What sucks is that they really don't prepare you at all before you leave the hospital for how much of this is really just trial and error. You leave thinking that if you count the carbs and cover them with insulin you'll be good to go. The only thing they really gave us a headstart on was knowing that pizza and cereal were hard to cover. But I didn't really learn how to deal with those until I started reading on the CWD forums.
 
This is what happened with DD. She ran high all week at Disney and we had to change her ratios. When we came home she never did go back to her pretrip ratios but here numbers did finally level back out.

What sucks is that they really don't prepare you at all before you leave the hospital for how much of this is really just trial and error. You leave thinking that if you count the carbs and cover them with insulin you'll be good to go. The only thing they really gave us a headstart on was knowing that pizza and cereal were hard to cover. But I didn't really learn how to deal with those until I started reading on the CWD forums.

Nope, they really don't. You start out thinking that you'll be able to do A and always get B as a result. LOL. Not quite so easy. Thank god for CWD. Only other parents really know what it's like, day to day, hour to hour.
 
Nope, they really don't. You start out thinking that you'll be able to do A and always get B as a result. LOL. Not quite so easy. Thank god for CWD. Only other parents really know what it's like, day to day, hour to hour.
I will check CWD forums out. Any information and tips I can gain to help my daughter is worth it's weight in gold.
 
I will check CWD forums out. Any information and tips I can gain to help my daughter is worth it's weight in gold.


Sprockie there is a good Canadian parents group on FB if you are interested PM me and I will send you the link (you have to get approved).

A huge portion of what we do is trial and error but my son is also 2, he was dx at 14 months so our team (which is out of a Children's hospital) was flying blind a lot of the time just as we were. They only had a handful of toddlers under their care and the rules that seem to work for older kids just don't fit for our DS. :(
 
Sprockie there is a good Canadian parents group on FB if you are interested PM me and I will send you the link (you have to get approved).

A huge portion of what we do is trial and error but my son is also 2, he was dx at 14 months so our team (which is out of a Children's hospital) was flying blind a lot of the time just as we were. They only had a handful of toddlers under their care and the rules that seem to work for older kids just don't fit for our DS. :(

Thank you for the offer for FB. I am not on facebook, but if I do eventually sign up, I will take you up on that.
 

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