going to disney&uni again! Sep 2011

[bumbershoot]

Robert's at a followup sleep appointment (not TO sleep, but about it), and he's lost 6 pounds since the last appointment. BP is lower, too. O2 saturation was in the low 90s, and now it's 96.

WOW.

 

[kaoden39]

How wonderful Molly!! What great changes!!

 

[bumbershoot]

They reduced his pressure; agreed that going from 110 "obstructions" per hour without the mask down to, maybe, 10 with a lower pressure on the mask than he has now, is still a Good Thing. And if it can get him to keep the mask on ALL night, that's a good thing too.

 

[kaoden39]

Molly, the good that it has done ins amazing.

 

[bumbershoot]

Most definitely. Even his resting heart rate has gone down.

We were talking about it last night, and I think that since he hasn't gotten *rest* while trying to sleep, and since rest is how we recuperate from our day, I imagine he's been living in adrenaline-land for a few years now. No rest, no relaxation, just constant worry and fear. No wonder his work relationships have suffered, because he can't *let go* of any difficulties during the day.

I remember when he had a 2 hour each way commute by car...he'd get home more stressed out than when he got home! He finally started taking the bus, and it was NO different, even though he was allowed to sleep on the bus (vs in the car LOL), and I think his problems had probably started by then.

It's all gotta be related...there's something in his brain that started all of this, I just know there is.... Let's just hope that having his brain saturated in oxygen, now that he's getting some while sleeping, will heal it up!



Not sure I'll be able to get those "chilly towel" things. My amazon order was too backordered so I had to cancel it, and they aren't very available online.

 

[kaoden39]

It's amazing how much is affected by how much rest we get.


That is too bad about your cooling towels. Maybe you will get lucky and it will be unseasonably cool for you on this trip.

 

[bumbershoot]

Not really fair that the day I finally get to go work out again, I'm feeling like crud!

 

[kaoden39]

Well, at least you are getting it over with before you go on vacation. I hope you feel better.

 

[nancy drew]

Glad to hear R is doing so well with his sleep now! He must feel so much better!

REI has cooling neck wrap thingamajigs. Well, the one in my city does, but I assume others do as well. I don't know whether there is one near you, but perhaps they have them on their website?

 

[bumbershoot]

I finally found the things on REI. I liked it, but I doubt the guys would. And I'd already reordered through someone else (different brand than frogg toggs, oh well) so the decision was made.


I was able to work out, yay! And E's swim class is being taught by one of his original swim teachers who is so nice and great and adores E. While I worked out he got to play with a "perfect storm" group of kids, and I mean that in a good way, LOL. It's always best when he's with slightly younger kids; that way he plays silly fun games instead of being roped into older kid games that tempt him to be naughty.


Today he has his first rock-wall climbing class!

 

[kaoden39]

What a fun class!! Rock climbing sounds like such a great class!!

 

[satorifound]

32 days until we are at Disney! I am excited.

 

[bumbershoot]

What a fun class!! Rock climbing sounds like such a great class!!

It's the first time he's been old enough AND didn't get wait-listed!

32 days until we are at Disney! I am excited.

Yay! So close it's crazy!


I just ordered a bathing suit. Hope I didn't order it too small. Also ordered a coverup. Must have the coverup (since I've never had one before).

I'm an ordering queen right now. Next up are SHOES. Eamon is right up to the edge in his athletic shoes, so it's going to be an expensive trip to RoadRunner Sports (yes we buy the kid fancy shoes that support his feet...we all get the stability plus type of shoes b/c our ankles all do the same thing!).

 

[kaoden39]

Hey Molly I know you are as big of a Harry Potter fan as I am and I came across this and thought it might interest you.

I am going to check it.

 

[kaoden39]

When my kids were little all of their shoes were bought at Stride Rite. Thankfully one of my dear friends was the manager of the local store and she gave me her discount. Scotty didn't have a great salary in those days and thanks to Lorraine my kids always had good shoes.

 

[bumbershoot]

Hey Molly I know you are as big of a Harry Potter fan as I am and I came across this and thought it might interest you.

I am going to check it.

Very cool, thank you!

When my kids were little all of their shoes were bought at Stride Rite. Thankfully one of my dear friends was the manager of the local store and she gave me her discount. Scotty didn't have a great salary in those days and thanks to Lorraine my kids always had good shoes.

Ooh, lucky....

 

[kaoden39]

I was very lucky especially considering that they all had wide feet. On their birthdays she would give them cute little sandals during the summer.


You're welcome. I loaded it on to my Nook but the print size is way too small to read on it. It won't adjust either.

 

[bumbershoot]

On their birthdays she would give them cute little sandals during the summer.

Awwww.

 

[kaoden39]

I often think that if we had not had help like that from friends our kids wouldn't have had a thing. I don't regret having them all so quickly and if I had to do it again I wouldn't have changed a thing.

 

[bumbershoot]

It's always good when a plan comes together. You are very lucky that it did!

*********

We gotta buy tickets for Uni sooooooon.

*********

I did a 7+ mile ride on the "expresso" bike today. They finally (because I complained) got the bikes online, so you can log in and keep track of your bike workouts, and b/c of this they are previewing more of the possible rides. As I was getting sweat towels ready, headphones plugged in, seat set right, etc, I noticed a ride I hadn't seen called Odyssey, with huge Greek gods and whatnot. It looked too cool to NOT do. So I did it. OUCH!

I know I'll be paying for it tomorrow.

And I'm not sure it was the smartest thing to do; my lung problems are flaring up again and I don't know why, I'm having to dose every day the last few days (not something I like to do at all), so it was questionable to work out THAT hard. As we left I was really regretting it, but as I sit here now, they've opened up. I hope hope hope that I did something good, not something bad.

Regardless, if this keeps up, I'm going to have to go in and see someone. Because, frankly, I'm running out of inhaler stuff.

And the tight lungs prompted some upset tears on the drive home, because I've never smoked and I didn't have asthma for decades, and it's just NOT FAIR that I have it now. And I'm so angry with my mom and dad for smoking all over me for 10 (mom) and more (dad) years, and angry with my dad and stepmom for starting to do it again, and at my half-bro for doing it in the first place (the rest of the kids got the memo, why not him?) and for starting it back up SO soon after the respirator.

Bleah! Of course, being upset did NOTHING to ease my silly lungs!

***********

In more fun news, I found MIB2 for $4 at the store, and Robert and I are supposed to watch it tonight.

Also, he doesn't fall asleep on the bus or train anymore (bus to, train from, work). Which is...amazing. Nor does he pass out once he sits on the couch. Even more amazing. (that problem was the first thing that really prompted me to have a big talk with him, back when Eamon was only 2...it was a sign/symptom that scared me very badly)