Food allergy nightmare at Neverland Club

Sweetpeasmum

Earning My Ears
Joined
Oct 21, 2006
Messages
18
We just returned from a very nice trip in the world. On the whole my daughter's dairy allergy was addressed appropritely. There were two exceptions. We were in the Patasserie (SP) in France. I asked if the strawberry smoothie contained milk or dairy. They checked and said it was fine. Well, it wasn't. A dose of benedryl, and DD was fine. I did tell the manager, and he said it must have been a cross contamination issue. He would look into it.

Where we really ran into trouble was the Neverland Club. We had left Katie there in the past without issue. They put the allergy wristband on her. I explained her allergy. It is only an ingestion allergy. The gentleman reassured me that they deal with allergies all the time, and she would be fine. He gave me my beeper, and DMother and I head off to Spoodles. Just as our entrees are served, my pager goes off. I call, and they ask if I am Barb's mother. No I am Katie's mother. He backtracks a bit and says that Katie took a sip out of someone elses glass, and drank some chocolate milk. I said I was on the way and to give her 25mg of benedryl. You can get it from the gift shop. He said ok. Spoodles gets our meals packaged and bill paid within 3 minutes. DD ask the valet at the Boardwalk to get a cab asap. He says he would drive us to the Poly himself. We were there withing 15 minutes. I get there, and again they called her Barbara. The woman ws also talking about how she was so good with her little sister. Katie is an only child. They then said that when they had placed their orders for dinner that Katie had ordered lemonade. The drinks come out in the park cups, ad only 1/2 filled, so you can't see what is inside them. Katie knows better than to eat or drink anyone else's food. She is very careful, but thought her drink was lemonade I was told they couldn't administer the benedryl, but Katie was only complaining of an uppet stomach. Katie then comes out. I give her the benedryl immediately. I tell them that we are checking out, and they said there would be no charge. I take Katie over to a bench to find out what happened from her. Within a few minutes she starts coughing. I had my epipen with me, but not her inhaler. She hadn't needed it in over a year, and I had become complacent. I head into the lobby carrying Katie saying I needed to get to ASM immediately. He told me to hail a cab, and As would reimburse me. We waited 5 minutes for the cab. He got lost. I was too focused on Katie to notice that he had missed the turn off. We ended up off property. I had to direct him to the ASM. It was a nightmare. Katie was getting into more distress and was covered in hives. We finally arrived at ASM. DM pays the cab, I carry Katie into the lobby. I yell for someone to watch her while I run to the room for her meds. I get back and administer her inhaler, and she is breathing better in a few minutes. I carry her into the room. She ended up covered in eczema and hives for the last two days of the trip. I called our pediatrician, and he called in steroids for her that we had delivered. She also remains on benedryl for 72 hours. Had she imediately had the benedryl, she woud have been fine.

The manager from Poly recretion did call me the next day. He did listen to my suggestions. Clear cups, 2 person phone consent for medication administration. Better identification for allergic kids. I also told him that had I been told they couldn't administer the benedryl, I would have had them call 911. I didn't ask for any compensation, nor was any offered. I expressed that my concern was that this not happen again because the outcome might not be as good the next time. He said that procedures would be looked at, and that discipinary actions taken. I told him that mistakes happen, and I wasn't after anyone's job. I just want to make sure that th kids are safe. that is where we left it.

In hindsight, I should have had the inhaler with me, and I should have gone to the hopital. The important thing is that Katie is ok.

I didn't tell this story to scare the parents of allergy kids. I had let my previous experiences with how wonderfully WDW handles allegies make me complacent. I personally will never leave Katie in one of the clubs again. If you do, make sure every employee knows your child and his/her allergy before you leave. I just don't want another child to become ill.

Beth
 
I just wanted to say how sorry I am that this happened to you. When I read about Katie's hives, it just made my skin crawl! My dd is 29 months old, and has already gone to the emergency room covered in hives when she was 4 months old due to an amoxicillin reaction. That was so scary! Her dad is very allergic to many things, and she's shown signs of being allergic to medications and laundry detergent, etc. Fortunately no food so far! I'm glad that your daughter is doing well now! :goodvibes :grouphug:
 
I don't understand why you would ever leave your child alone with Disney staff knowing she has such a bad allergy. Of course they are supposed to be organized, but why did you risk it? I would never trust my child with strangers if I were in your position.
 
LaurenO said:
I don't understand why you would ever leave your child alone with Disney staff knowing she has such a bad allergy. Of course they are supposed to be organized, but why did you risk it? I would never trust my child with strangers if I were in your position.

Yup that's right keep the poor child locked up the rest of her life because she has an allergy... and don't forget to insult and berate the parent for letting her see the light of day. I have severe food allergies and so do 2 of my 3 kids. We live life as normal as possible. Our best line of defense is preparedness. Always have the necessary medication and phone numbers available at all times and be prepared to know where doctors clinics and hospitals are when out of town. Unfortunately human error does occur and when in a large public area like WDW being prepared is the best way to handle it. Hope she is doing well and I really sympathize because we live with the same worries!
 

LaurenO said:
I don't understand why you would ever leave your child alone with Disney staff knowing she has such a bad allergy. Of course they are supposed to be organized, but why did you risk it? I would never trust my child with strangers if I were in your position.


Gees , pretty judgemental.

Not mom's fault. Disney should be better trained and more responsible to handle these situations.

Sorry that happened to your DD. Glad everything turned out OK.
 
Katie's food allergy is manageable, as long as proper care occurs. If she does get an exposure, a dose of benedryl within 15 minutes of the expose takes care of it. I took our previous experiences and WDWs reputation for deling with food allergies into account. Katie knew what was safe to order for her dinner, and expected to receive her order. I tried to let her have some time to play with other kids, and have an adults only evening. Hindsight is 20/20. We try to keep things as normal for my daughter as possible.
 
It's always good to have people post about these incidents, just to remind other parents about the limitations and risks inherent in leaving your kid at places like the Neverland Club.

I think LaurenO might be over-reacting a little; a kid with serious allergies definitely needs more close supervision than otehr kids, but you have to let the kids have some fun sometime, and when they get old enough to understand about their own allergies and how to deal with them, it's as safe to let the kid go to the Neverland Club as it is to let them go to school. But that age is different with every kid, and parents need to remember that some kids with medical conditions just aren't ready to be left on their own in places like Neverland until they are older than ordinary kids.

It's good to keep in mind that Disney CMs are prohibited from administering any type of medication or medical treatment to minors in their charge. If there is a medical incident, they are required to let either the parents or qualified medical professionals administer any treatment, even when the parents say, "Give her some Bennedryl" over the phone - after all, who knows which parents are correct and which parents are not? Administering meds to any kid is tricky and dangerous and should always be left to the hands of parents or medical professionals.
 
you are doing a great job!!!

I have food allergies, too. they can be a BIG pain. I am also allergic to some prescriptions. get her a epi card
https://www.myepi.net/webapps/epi/Dispatch?application=org.bcbsal.epi.EPIMgmtApplication

just in case you aren't there.

my food allergies is one reason I brought DVC. So I can prepare my food and know what is in it.

so sorry you had to go through this - not to mention your poor little ones. I bet she was scared.
 
WillCad, my only issue was that when I asked him to give the benedryl to my daughter, he said he would. Had he said, I can't, I would have then told him to call 911. I understand the difficulty of trusting phone consents.

Katie does wear a medic alert bracelet, and she does a great job knowing hat she can and can't have. Had she been handed a clear glass of milk she never would have touched it. The real issue was that she couldn't wee what was in the glass. She now know to peek under the lids of any cup she can't see through.
 
As the mother of 2 children with food allergies, I completely empathize with your situation. I'm glad your little girl is doing well. It sounds like you did everything you could to make sure your daughter was o.k., and as others have mentioned, you can't keep her in a plastic bubble all her life. It was the Disney employees who dropped the ball. Disney does do a great job handling allergies in it's restaurants, but they may need some tweaking in the child care department. Hopefully your daughter's experience will lead to better training for the employees and clear expectations for parents who entrust the care of their children to them. They could face any number of medical emergencies, not just allergic reactions, so it's important that parents and staff know what to expect before something happens.
 
Also in defense of Beth, not that she needs it ;) but the severity of the second reaction may have been much more serious than her usual, or in the case of her first exposure at the restaurant in World Showcase.

Having had the second exposure so close to when the body had dealt with the previous one can intensify the reaction. In this case, more serious than the exposure a few days before. Sometimes needinng much more serious intervention.

Unfortunate set of circumstances. I'm so glad your daughter is okay.

I think you're doing a good service by giving folks a reminder of things that happen.
 
LaurenO said:
I don't understand why you would ever leave your child alone with Disney staff knowing she has such a bad allergy. Of course they are supposed to be organized, but why did you risk it? I would never trust my child with strangers if I were in your position.

So her child should miss out on life because of her allergies? That was a very judgemental statement

To the OP I am so sorry this happened. I appreciate you're letting us know and if I were you I would write Disney and have my say. They should have offered to help with the expense since it was their people that screwed up.
 
One of my worst fears :guilty:

I'm glad Katie is doing okay now.

Thanks for the heads up on the current procedure of Neverland Club. Just one less phone call I need to make.
 
OP, thanks for sharing your story. That is really scary and I am glad she is OK.
 
I'm sorry this happened to your daughter, what a nasty experience.

You didn't say how old your daughter is, but could she carry a single dose of her meds when she is not with you, just in case? (Perhaps in a pill locket?) I understand that CM's cannot administer meds; but would they stop a child who tried to self-administer? All of these zero-tolerance policies scare the cr@p out of me; it would seem to be so much safer to have a child who is capable of taking the drug unaided carry a single dose of meds, rather than have to have a third party find someone who has permission to administer them.
 
I am curious how old the child is.

I think I probably would not take my child to any drop in day care until she could comprehend the consequences of her actions. JMHO, a child (with multiple allergies) that cannot comprehend the importance of not drinking her friend's milk is not ready for drop in day care.

But a parent is the best judge of a child's readiness to jump into new situations.
 
My son is now 15 and it's been awhile since he had an episode (knock wood), but we had many when he was younger. The hives, itchy tongue, throat swelling and very scary times. I totally sympathize with you trying to find the balance between keeping your daughter safe and giving her a normal life. I was never super comfortable leaving my son places, but we did use Disney's Clubs a few times. (Of course, I was under the impression that if something happened they would administer the Benadryl and if necessary, use the EPI-pen.) For my peace of mind, we always chose a restaurant and a club at the same property so we could get back to him very quickly if we were needed (which thankfully, never were). You might want to consider that for future visits, and maybe try again, especially as your daughter gets a bit older and more self reliant. It sounds to me like you are doing a great job, and I can tell you that for us, it has gotten better. I still worry when he is away as he travels with his school frequently, but I guess we always worry about something with our babies no matter how old they are :)
 
yeartolate said:
I am curious how old the child is.

I think I probably would not take my child to any drop in day care until she could comprehend the consequences of her actions. JMHO, a child (with multiple allergies) that cannot comprehend the importance of not drinking her friend's milk is not ready for drop in day care.

But a parent is the best judge of a child's readiness to jump into new situations.

Not the OP but I believe the OP said her daughter didn't drink her friends milk but had somehow got milk when she had ordered lemonade. She didn't notice because the cup was not clear. Her daughter now knows to lift the lid and double check because sometimes mistakes are made.

Scary. I am glad she is okay.
 
Katie would have to be a very brave little girl to want to go back there.

I certainly won't.

Once trust is lost - I don't know about getting it back again.

Disney dropped the ball BIG time here.
 
I'm very sorry to read this, but I'm so glad your daughter is OK. My oldest has a life threatening peanut allergy and we have used the Neverland Club before. We have a ressie for Sandcastle Club in January and now I'm a little scared. I will really, really go over everything again before I leave her. I really think WDW is more knowledgeable about food allergies than the majority of places out there, but unfortunately mistakes can happen. We've been numerous times to WDW and only once have we run into problems and that was at Boma. We won't eat there again. Lesson learned - too much chance for cross contamination there, even with the chef helping us.

We have to let our kids live life, though! Just ignore that person's comments. :goodvibes
 


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