Fibro friends check in

[binny]

hey everybody, its been awhile, eh?

How is everyone doing with the crazy weather so many are dealing with? I was doing fine until a couple of hours ago and now... ouch!

I am ready for bed and it isnt even 5 PM.


How are you doing?

 

[mommasita]

To you Robin.

I am in pain as well. Arms, legs, etc. I had a 2 hour nap and feel guilty now, but what can do. . My daughter tried to get me up the whole time, but I had rented her movies, so she was semi satisfied, plus it was pouring rain.

I hope tomorrow is a better day for you.

 

[binny]

we do what we have to do. Please dont beat yourself up about it. Our kids are safe and tehy can deal for a little while. This stupid disorder takes it toll on us. If we rest when we need to we are better parents later.

 

[binny]

*bump*

 

[5lilfish]

I just posted this on the new Fibro page someone started up today and then found this thread.

I have been diagnosed with Benign Cramp Fasciculation (twitching) Syndrome. I have had a clean EMG and 2 clean MRI's to rule out some scarey stuff. Aside from twitching, I have TMJ, allergies, hoarseness, muscle aches/cramps (hands and feet now...legs back in Nov), pain, muscle fatigue (arms feel tired now...was my legs back in Nov), general fatigue (ie. NEEDING to sleep mid-day and/or nodding off at my computer), flare ups of joint pain in my hands, migraines, internal tremors (chest/arms and face) when I am tryin gto sleep, etc. I've been at this for 7 months. I am no worse and sometimes a bit better but everything comes and goes.

Since October, I have seen a chiropractor, ER doctor, neurologist, general doctor, dentist, TMJ specialist, ENT...I don't even know where to go from here.

Any tips/stories/familiarity with my symptoms/etc?

Jess

 

[tigercat]

I posted on the other thread that I am having some problems and am not sure if it is my fibro or not. I have a swollen foot and my hands are swollen. I keep getting really sick since Feb. I can't seem to get better. I am really achy all over. I hurt. AHHHHH
tigercat

 

[mommasita]

I just posted this on the new Fibro page someone started up today and then found this thread.

I have been diagnosed with Benign Cramp Fasciculation (twitching) Syndrome. I have had a clean EMG and 2 clean MRI's to rule out some scarey stuff. Aside from twitching, I have TMJ, allergies, hoarseness, muscle aches/cramps (hands and feet now...legs back in Nov), pain, muscle fatigue (arms feel tired now...was my legs back in Nov), general fatigue (ie. NEEDING to sleep mid-day and/or nodding off at my computer), flare ups of joint pain in my hands, migraines, internal tremors (chest/arms and face) when I am tryin gto sleep, etc. I've been at this for 7 months. I am no worse and sometimes a bit better but everything comes and goes.

Since October, I have seen a chiropractor, ER doctor, neurologist, general doctor, dentist, TMJ specialist, ENT...I don't even know where to go from here.

Any tips/stories/familiarity with my symptoms/etc?

Jess

I am sorry you are going through so much. I really do know how that feels Have you had your B12 checked??? I ask because I too had many of those symptoms and my B12 was almost non-existent. I started with weekly injections and now am on monthly. THey really do help. Also, have you seen a rheumatologist? That is who found almost ALL my problems.

 

[mommasita]

I posted on the other thread that I am having some problems and am not sure if it is my fibro or not. I have a swollen foot and my hands are swollen. I keep getting really sick since Feb. I can't seem to get better. I am really achy all over. I hurt. AHHHHH
tigercat

So sorry you are in so much pain Can you get in to see the dr anytime soon???

 

[tigercat]

I have seen my Dr as early as this Mon. She just keeps saying that I am fine although my Fibro is inflamed. I don't know. Is swollen feet and hands part of fibro? I know that stress is a factor and I have had a very bad year. My dm was dying (she died early Jan), my dfil died and my df is not in good shape and we are looking at a short time span for him. Also, I had to quit my job that I really loved because of the boss, who caused a lot of stress the whole time I was dealing with my dfil and my dm. As well because I have been so sick for so many months I have not been able to do a lot of things that I would normal do, and I don't feel safe going to see my dd. I don't want to give him anything. Sorry to vent but I just feel like my Dr really doesn't get it at all and there is nothing I can do about it. My chiropractor has been my life saver right now. My lungs have not been working right and he has been working on me. I was starting to feel better. Now I'm not sure because I am again feeling mucus starting up.
tigercat