Hello Everyone,
We have been offline for a bit. Yes, she had her surgery early June. She went through it like a champ!!!! We have had many ups and downs. We canceled our Disney trip for Christmas as she is not stable. The wound is not healing.She had been on a vac dressing machine but in early Oct they removed it as it was really bothering her skin. They did another debridement and she is now on strict bed rest with repositioning every few hours, very minimal sitting. We go back to the city on Wednesday with a nervous feeling. Our last visit was not good, the plastic surgeon told us he is very concerned about the wound and it is threatening her life. I cried the entire drive home for 2.5 hours. Since that day, I have dried my eyes and picked up the pieces! WE will keep pushing... WE LOVE her so much. I am looking forward to the Wednesday visit but scared out of my mind... but I need to know. I need follow up! All she talks about is DISNEY I pray we can take her again. THANKS for all the support and prayers .... I appreciate it so much <3