feeling defeated

weswife

DIS Veteran
Joined
Feb 15, 2009
Hello Friends,

We went Wednesday and saw the specialist in the city. He gave us more hope that we are on the right road to healing, we return in 2 months for follow up.

On Friday the infectious disease doctor saw us. She said she wants to go back to aggressive treatment. She thinks the infection in the bone is still causing issues and perhaps its best to do another round of IV meds for 6-12 weeks. UUUUrrgggg ... but having said that its an antibiotic that penetrates the bone. So, I think maybe this is something to try! If we can get get that bone infection settled it will help her wound close and hopefully prevent her from becoming so ill. I guess we give it a try. Starting Monday we will return to the hospital for the day to start the meds. At least she can remain home with VON care.

We all know the goal is to remain well and home!of course slide a trip to Disney in <3
 

mommasita

DIS VETERAN
Moderator
Joined
Aug 3, 2004
Hello Friends,

We went Wednesday and saw the specialist in the city. He gave us more hope that we are on the right road to healing, we return in 2 months for follow up.

On Friday the infectious disease doctor saw us. She said she wants to go back to aggressive treatment. She thinks the infection in the bone is still causing issues and perhaps its best to do another round of IV meds for 6-12 weeks. UUUUrrgggg ... but having said that its an antibiotic that penetrates the bone. So, I think maybe this is something to try! If we can get get that bone infection settled it will help her wound close and hopefully prevent her from becoming so ill. I guess we give it a try. Starting Monday we will return to the hospital for the day to start the meds. At least she can remain home with VON care.

We all know the goal is to remain well and home!of course slide a trip to Disney in <3
Here is to hope. Let’s pray the aggressive treatment does what it should, and closes that darn would. 🙏
stay safe. Love and prayers. ❤
 
  • Grand Koalafornian

    Mouseketeer
    Joined
    Oct 25, 2014
    Oh man, I’m sorry your daughter and your family is going through all this! I hope the aggressive treatment kicks the infection’s butt and the wound can heal fast after that.

    Praying for you and your family! 🙏
     

    weswife

    DIS Veteran
    Joined
    Feb 15, 2009
    Hello,

    Thanks for the encouragement! I appreciate it so much <3

    We got 2 weeks in, hooray! She looks great and continues to be home. That darn wound is still there, gggeezzz it rules our lives! Sitting is still limited so that gets annoying. She still enjoys all of her Disney you tubers, that is a great passtime for her! She wants to go so bad and I want to take her just as much <3

    My province went into a 2 week lock down again yesterday! Our cases are very high! My husband got the vaccine last Monday and my age group opens up hopefully Fri!

    We continue to press on! Have a great week :)
     

    weswife

    DIS Veteran
    Joined
    Feb 15, 2009
    Happy New Year!

    A little update :

    My DD is home <3 She is battling another infection. Its actually the same bug .... osteomyelitis ! Its raised its ugly head and is on the move from the pelvis to the femur. She started IV antibiotics for 8 weeks, scheduled to be done Jan 14, 2022! Back to the city specialist on Jan 18, hopefully he has better news. The wound is smaller but still present. Its smaller in size but still deep. It has come a long way but still rules her life! We ordered a new wheelchair. She still spends most days in bed on her air mattress. The new chair has a 180 degree of tilt. She still dreams of Disney! Its a big pass time for her, watching and talking about Disney! Currently the wound treatment is iodine and dressings. We canceled our Christmas 2021 Disney trip because of COVID but it worked out because of this darn infection being on the move!

    We love her so much! She has the sweetest smile and can light up a room <3 Hopefully she makes a turn around. If someone told me this wound/infection would be still ruling our lives in 2021 from 2019 .. I would never have believed it!!!!!

    Bring on 2022 and let it be her year <3
     
  • Snowysmom

    <font color=darkorchid>If they say "That's interes
    Joined
    May 11, 2003
    Your love for your daughter comes through so much in all your posts. I hope that 2022 brings healing to her and you can think about the Disney trip she is dreaming of.
     

    mommasita

    DIS VETERAN
    Moderator
    Joined
    Aug 3, 2004
    I’m sorry yo read thus weswife. Wishing your daughter the best, as well as you and your family. May that infection go away, and yoir lives get better. ❤
     
  • weswife

    DIS Veteran
    Joined
    Feb 15, 2009
    Hello,

    Thanks for all the replies! The support means a lot <3 DD finished her 8 weeks of IV antibiotics ! Now to see if she can maintain herself and keep that infection at bae. We are scheduled to see a specialist in the city on Tuesday , fingers crossed for a good report. The wound is still present but smaller , I world have never believed she would still be battling it! We ordered a new wheelchair the end of Nov it will help her sit. She is still spending most of the day in her bed. When she looks at me and flashes that BIG smile, it melts my heart!!!!! We are planning a trip to Disney in May... if possible! We have not told her but hopefully!!!!! For now we continue to push forward!!!
     


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