feeling defeated

[lisaviolet]

Hi weswife,
So very happy that she is able to go.

I am not sure if I have told you this on here before but I took my mom, wheelchair bound, 24/7 care on all aspects of life, constant threats of sores, dementia and mute at that point. And of course the lovely travellers' insurance.
I am only telling you because there were always reasons not to go & boy am I thrilled I did. It was Christmas and NYE at the Polynesian. Great memories.

So please push through any window of opportunity.

And also when you do go - let go. Totally let go. Do not carry any stress into the time there.You're there, put any worrying as far away as you can muster. Love sent.

-----------

And I know of course you cope because she is your daughter. But please know I know how utterly stressful these sores can be. To wake up mornings and have hope - the constant rollercoaster of emotions - relief, frustration, almost begging things to change, exhaustion, gratitude. The gamut of thoughts & feelings is insane. And I only had about a couple of months of this threat & care. And I had a loved one who did so well, always better than me, with any threat or sore, helping - she was capable of not taking them in emotionally, which I was not at times.

I just want you to know you are something, weswife ! They are all lucky to have you. Please make sure to look after yourself as well.

 

[weswife]

Hi weswife,
So very happy that she is able to go.

I am not sure if I have told you this on here before but I took my mom, wheelchair bound, 24/7 care on all aspects of life, constant threats of sores, dementia and mute at that point. And of course the lovely travellers' insurance.
I am only telling you because there were always reasons not to go & boy am I thrilled I did. It was Christmas and NYE at the Polynesian. Great memories.

So please push through any window of opportunity.

And also when you do go - let go. Totally let go. Do not carry any stress into the time there.You're there, put any worrying as far away as you can muster. Love sent.

-----------

And I know of course you cope because she is your daughter. But please know I know how utterly stressful these sores can be. To wake up mornings and have hope - the constant rollercoaster of emotions - relief, frustration, almost begging things to change, exhaustion, gratitude. The gamut of thoughts & feelings is insane. And I only had about a couple of months of this threat & care. And I had a loved one who did so well, always better than me, with any threat or sore, helping - she was capable of not taking them in emotionally, which I was not at times.

I just want you to know you are something, weswife ! They are all lucky to have you. Please make sure to look after yourself as well.

Awe thank you for the beautiful reply! It hit me in the feels <3 a few tears as I reply.. THANKS for sharing your story, it means a lot. Yes, these pressure sores rule our lives. This one has tried to take my DD's life more then once! I am planning a trip of a lifetime for her and I hope/pray we can LET IT GO! Oh how she loves FROZEN!

I am continuing to push and sometimes pull ... we love her so much!

 

[weswife]

EEEEEKKKKKKKKKkkkkk... tonight I purchased airfare!!! Like OMG ... I can't believe it! We kept waiting but decided to go for it today. Unfortunately we paid a sky rocket price for direct flights and upgraded seats. We leave on April 2 and return April 11. her b-day is the 6! We plan to take her to magic kingdom that day <3 I have started to get shirts made, a special one for each day! She has no idea and we don't plan on telling her until we arrive at the airport! I am a basket case of emotions .. excited/hyper/worried/happy/sad .. YES I am a wreck!

 

[Dan Murphy]

EEEEEKKKKKKKKKkkkkk... tonight I purchased airfare!!! Like OMG ... I can't believe it! We kept waiting but decided to go for it today. Unfortunately we paid a sky rocket price for direct flights and upgraded seats. We leave on April 2 and return April 11. her b-day is the 6! We plan to take her to magic kingdom that day <3 I have started to get shirts made, a special one for each day! She has no idea and we don't plan on telling her until we arrive at the airport! I am a basket case of emotions .. excited/hyper/worried/happy/sad .. YES I am a wreck!

Wonderful, @weswife!!! It's real!

 

[lisaviolet]

EEEEEKKKKKKKKKkkkkk... tonight I purchased airfare!!! Like OMG ... I can't believe it! We kept waiting but decided to go for it today. Unfortunately we paid a sky rocket price for direct flights and upgraded seats. We leave on April 2 and return April 11. her b-day is the 6! We plan to take her to magic kingdom that day <3 I have started to get shirts made, a special one for each day! She has no idea and we don't plan on telling her until we arrive at the airport! I am a basket case of emotions .. excited/hyper/worried/happy/sad .. YES I am a wreck!

Yay! So happy for all of you.

Can you share where you are staying? Any dinner reservations made?

 

[weswife]

Its a big adventure!!!!! We fly in April 2 .. spending 3 nights at Grand Floridian which has been on her bucket list! 2 nights at Bay Lake Tower, her favourite place! Disney cruise 3 nights on the Wish! The direct flight for us means staying 1 more night after the cruise at the Poly! We plan to take her to Magic Kingdom on her actual b-day!!! Her older sister flies in the night before so thats another surprise! Unfortunately her little brother can not come as his professor put an exam on the Easter Monday he has been trying to get an exemption but no luck. He is in his 5 the year, obtaining his Masters in Political Science! Next step for him in Sept is law school <3 He is super disappointed as he has been so close to her even thou he is 6 years younger <3 I guess I better get some dining reservations .. that slipped my mind! I just can't believe this .. she keeps talking about a bowling party with pizza lol

 

[lisaviolet]

I just can't believe this .. she keeps talking about a bowling party with pizza

Priceless.

 

[lisaviolet]

Its a big adventure!!!!! We fly in April 2 .. spending 3 nights at Grand Floridian which has been on her bucket list! 2 nights at Bay Lake Tower, her favourite place! Disney cruise 3 nights on the Wish! The direct flight for us means staying 1 more night after the cruise at the Poly! We plan to take her to Magic Kingdom on her actual b-day!!! Her older sister flies in the night before so thats another surprise! Unfortunately her little brother can not come as his professor put an exam on the Easter Monday he has been trying to get an exemption but no luck. He is in his 5 the year, obtaining his Masters in Political Science! Next step for him in Sept is law school <3 He is super disappointed as he has been so close to her even thou he is 6 years younger <3 I guess I better get some dining reservations .. that slipped my mind! I just can't believe this .. she keeps talking about a bowling party with pizza lol

How exciting!

The best part of all of your locations is the ability to walk & and not use transportation each time.

But the monorail is such ease for special needs.

I have always felt that the ability to even walk between the Grand Floridian & the Polynesian is highly underrated. As is the ability to jump on the MK ferry if you're tired and the monorail is down.

---------

You could sign up for a restaurant reservation alert system But then again your daughter might see you jump in glee when a text comes in. Laughing. Loudly.

 

[butterscotchcollins]

EEEEEE I am so excited for her (and for you!!) This is going to be a truly special trip

 

[weswife]

Thank you .. thank you .. thank you!
I am beyond excited for my DD!!!!! Us too of course but we thought this would NEVER happen! I will be crying when we get on that plane.. not to mention MK day!
Today she was scheduled for monthly blood work but her port was not working so another nurse is coming to try for a draw on Wednesday. The wound is no worse but a stand still... which is ok! Tomorrow we are going to the city to renew our passports. We went for new pics on Saturday and told her they were for new ID pics to identify who you are.. ok she said! Her reading skills are extremely limited so she didn't notice. She was happy to be out and about for the afternoon. Her brother had 3 online interviews for law school, so the house had to be quiet.

 

[Dan Murphy]

It's getting real!

 

[weswife]

Hello Friends!

Checking in! So far everything is in play, DD is feeling great! She has the count down on until her b-day .. she is planning a pizza/bowling party!!!! I am busy getting special t-shirts made, 1 each day! I almost cry just thinking about it and picturing her face.. I melt actually!

 

[RogueX]

Hello Friends!

Checking in! So far everything is in play, DD is feeling great! She has the count down on until her b-day .. she is planning a pizza/bowling party!!!! I am busy getting special t-shirts made, 1 each day! I almost cry just thinking about it and picturing her face.. I melt actually!

I am so excited for you. I hope your family has the most amazing time on this trip!

 

[Dan Murphy]

I almost cry just thinking about it and picturing her face.

A good cry is good for the soul, @weswife. Keep moving forward.

 

[butterscotchcollins]

Hello Friends!

Checking in! So far everything is in play, DD is feeling great! She has the count down on until her b-day .. she is planning a pizza/bowling party!!!! I am busy getting special t-shirts made, 1 each day! I almost cry just thinking about it and picturing her face.. I melt actually!

I cannot wait to hear all about her reaction and your trip! So happy to hear she is doing well. Prayers up for you guys

 

[lisaviolet]

I am about to start counting days I am so excited.
You all must be bursting at the seams with it all.

So so hard not to let it out by accident. It is like a top secret mission.
Project Joy.

 

[Forevermarypoppins]

I'm praying you have a blessed and wonderful vacation!

 

[weswife]

AWWWWwweee .. thank you! Yes.. I have almost let it slip! Especially when I buy her something .. like her new shirts I had made and a beautiful sparkling gown to wear on the cruise!!!!<3

 

[flyingdumbo127]

Weswife and prayers truly that you have a wonderful trip! So happy for you and your family.

 

[weswife]

Hello Friends,
Today my DD went for a CT scan with dye, now we sit and wait for results. Thats the hard part. Overall she looks good, keeping in mind she still has a large deep wound. I am efficient in caring for the wound and dressing/cleaning it.I almost canceled the appointment today .. I then thought .. I need to know! I asked for the turnaround time, about a week. The unfortunate part is the specialist that ordered this test is in the city, which is 2 hours from me. I keep reminding myself not to dwell on it and look at my sweet DD! She is feeling well ... still no idea about her upcoming trip!!!!She has a bowling/pizza party planned! If you have a few extra prayers .. please keep us in mind <3