Do you have a child with ADHD or SID/SPD?

[Liberty Belle]

We are having our six year old son evaluated for ADHD and SID and I'm pretty sure he'll be diagnosed with at least one of them, if not both. We've only had our initial interview. Our ADHD eval is next week and our SID eval after that.

I'm just wondering what to expect. Like I said, I know he's got something going on and all the behaviors and symptoms point to both of these disorders.

I want to get to the bottom of this and hope we get some insight, if not answers, next week. I'm a little sad about it, but I guess whatever he's got, he already has and a diagnosis can only make things better, right?

His teacher is royally ticking me off. His principal has been great. She acknowleges that he is a very intelligent, funny kid who has something going on that is creating misbehaviors. All we hear from his teacher is negative stuff. That, and the fact that she never greets her students is really wearing on my nerves. I'm gearing up to talk to the principal about her.

Any advice you can give me? A hug would be helpful, too.

 

[koolaidmoms]

My son is autistic (Asperger's)/ADHD. His diagnosis was a relief for me. I always felt like everything was my fault - if only I were a better mom he wouldn't be like this.

If you haven't yet you may want to go over to the DISabilities board (Community) there are quite a few people over there who have children with ADHD and/or SID. They are pretty well versed in how to handle teachers/administrators and others as well.

I wish there were more I could help you with but to you and your son.

 

[Mommy2three]

my son has both ADHD and SID. Feel free to PM with questions. We also go to OT for the SID and it helps tremendously. He has a brushing routing that also helps with the sensory.

 

[Nik's Mom]

Hugs to you, Liberty Belle. My 7 year old was just diagnosed with ADD this week. He and my 10 year old son both have autism to make things even more difficult, or shall I say challenging. My son really wasn't very helpful when it came to the testing for ADD. He was just bouncing off the walls during the process. After a couple of weeks of observation, along with parent and teacher feedback, ds was finally diagnosed.

We just started meds for my 7 year old today. I was really nervous, but so far I haven't seen a big difference in his behavior. He's still bouncing off the walls.

Anyway, hang in there, Liberty Belle. I hope you get some answers soon. If the diagnosis is ADHD, remember it's not the end of the world. At least there is a treatment that will be able to help. Keep us posted!

 

[zachnsamsmommy]

(((Hugs))) Liberty Belle

My DS is only 2 1/2, but he was diagnosed with SPD/SID about a year ago. I don't feel qualified to give any advice b/c he is so young and his symptoms are probably much different than an older child. He has severe palmer/plantar sensitivity, and didn't learn to walk until only 1 1/2 mos ago (age 2 yrs 4 mos). He also can't stand being wet (baths included) and many sounds bother him. Clothing sensitivities are common, but he doesn't seem to have any.

He may have Asperberger's, but it is still too early to tell with him.

Hope you have answers soon, and keep us posted...

 

[binny]

So far as close as we can come to a diagnosis is ADHD/SDI and SPD. She doesnt have all of the symptoms but has many from each category.

The testing for ADHD is a bunch of forms. Usually the teacher does one, the parents do one and the Drs do one. Then everyone compares notes and they figure it out from there. The SDI wasnt really a test persay more of just observation. "Does she have issues with certain clothing/textures/food" that sort of thing. If enough of them add up then there you go. The SPD was the same. She has been by so many therapists and Drs though I could be forgetting some things.

She is 10 and is on 30 MG of Metadate. It isnt one that builds up in her system, she takes it at 8 AM and it is gone 12 hours later. I really like that aspect of it. One thing my Dr warned me about was to watch for sadness and irritability in her. I havent seen that yet thankfully and we are going almost a year now I think. We started at 20MG and she hasnt had any issues at all with it.

Dont be nervous. You are doing this for your child. No matter what they say please realize that each child is unique and while one set of treatements may work for one it may not work for another. You have to keep trying to figure it out and find the best one for your child.

Good luck!

 

[MAKmom]

What is SID? I just googled it but nothing came up that would apply here.

 

[JerseyJanice]

What is SID? I just googled it but nothing came up that would apply here.

SID stands for "Sensory Integration Disorder."

It means pretty much what it says. That a person who has it doesn't feel or hear or smell or see things the same way that "neuro-typical" people do. Obviously, they don't react to things the same way that NT folks do.

SID can be a stand-alone diagnosis, but it is typically secondary to another condition, often one on the autistic spectrum (e.g., PPD or Asperger's Syndrome).

 

[binny]

My Drs refer to it as SI. Weird but I guess its because what SIDS normally stands for isnt related to this.


Try this link...

http://www.incrediblehorizons.com/sensory-integration.htm


A really great book is "the out of synch child" it was one of those "OMGOSH" moments for me because we have been searching so long.

 

[MAKmom]

Thanks

 

[lovesmurfs]

DS15 has ADHD with SID (diagnosed at age 5). DD10 has ADD (no hyperactivity, just leaves and goes into her own little world for a time). They've both been on Adderall since kindergarten -- DD 20 mg and DS is now up to 60 mg per day.

It's been a journey! My son's sensory issues involve the way clothes feel on him. He's never worn jeans; nor will he wear any kind of shirt with embroidery. We cut all tags off, and hair cuts (up until this year) were a nightmare because of the cut hair itching his back.

Also, we've had good school years and bad ones with DS in school -- some teachers really embraced his creativity, but others, well, those were very hard years. One of my major challenges is keeping up with homework (even as a HS sophomore!). We usually settle into a routine after the first quarter, and it usually involves my weekly emailing the teachers to get the assignments up front. DS isn't the most truthful, either.

Develop routines, have specific places for things. I have laminated checklists for both of the kids and they use dry erase markers every day.

Best wishes. PM me with any specific questions. We've been through it all.